which I'm to swab on either side of my tongue. He says its safe for oral use. Is this true?
Ive been diagnosed with Oral Lichen Planus & prescribed Fluocinonide 0.05% gel?
Question posted by wickih on 13 June 2010
Last updated on 19 August 2018
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Answers
suzanne66
17 June 2010
I would be a little hesitant.
There are steroid preparations, like fluocinonide, that are specifically designed to be used in the mouth. Ask your pharmacist for brand names.
greeneyedgirl058
27 Oct 2010
I have been using this gel in my mouth for oral lichen planus for about 4 months now. It has helped alot with the reddness on my gums and the pain. It is amazing. But now the problem is no flavor in the foods I eat. Before I could barely eat because of the pain,now I don't really care because nothing has any flavor. This disease is no doubt the worst thing I have ever had to deal with. I have had many health issues and I pray for all of you who must also deal with this disease.
Drill Baby Drill
23 Sep 2012
I have been using 0.05% Fluocinonide for the treatment of OLP for a little over 3 years with no known side effect. I was told by a dentist and an oral surgeon that it is perfectly safe, and the only reason you do not find it recommended on the label is because there has been no case studies of this drug for the treatment of OLP. As a foot note: I apply it with my tongue on the inside of my gums and then with a finger on the outside. Once the discomfort in my gums improves, I spit it out and then rinse with water. ALL mouth washes burn my mouth, as well as, all toothpaste, with the exception of a paste called "Biotene". It is not easily found at some stores, although most Wal-Marts will have it. Good Luck and God Bless all of you out there on this bog... This is one painful disease... maybe one day a cure! Gotta keep hope alive!
scaron
31 July 2014
Actually, there are no fluocinonide preparations specifically designed for the mouth that I know of. Several studies have been published using gel/cream preparations intraorally with success (more effective than triamcinolone and retinoid-based treatments), which took into account the lack of mouth-specific excipients in their protocols. The concerns from patients who carefully read the manufacturers' instructions are legitimate (and I personnally find it refreshing to see that some people actually read them!), but they should be assured that their individual dentist did not make a mistake by prescribing this. The practice is widespread within the profession, supported by litterature, and quite effective in many cases (albeit often not definitive). Oral lichen planus is sometimes refractory, and many treatments of various potency may need to be tried before finding one that suits a particular patient.
I would say that the most important is to follow the treatment modalities recommendend by the dentist and consult an oral medicine specialist when all topical treatment options fail as there are systemic treatment options available. Severe oral lichen planus can be quite debilitating.
Drill Baby Drill
31 July 2014
I've been trying just about everything. I've suffered OLP for about 6 years... it is also in my scalp, where it actually originated. What I'm trying now and it has worked wonders is Turmeric Curcumin, 500 mg. It is kind of hard to find high grade turmeric in drug stores, so I buy it through Amazon. Just make sure it is 95% curcumin. I take a minimum of 2000 mg per day. If I'm eating 3 meals a day, I will push it to 3000 mg. You need to get it to a therapeutic level to do any real good. It's treatment is for inflammation. If you can control inflammation in your mouth, you're close to winning the battle vs. OLP. Still no cure, but it goes a long ways for relief. I started seeing results after about 4-5 weeks. I will continue to take turmeric, as it has helped me more then anything. My brother is a dentist. I have visited 3 different oral surgeons and a couple of dermatologists... this is, after all, a skin disease.
You might try the Texas Health Science Center, Baylor Dental School website. They actually have a Lichen Planus Department. Oddly enough, a lot of dentist know very little about OLP. About 70% of patients are female and over 55 years of age. A comforting thought: The incident of OLP becoming malignant is no higher % then in the overall community. Don't be afraid of it... it's not going to kill you. It may burn like heck, but it's not going to end your life... just watch your diet, and never give up. Good Luck, everyone!
Smiledi
22 Sep 2014
Does anyone have any recent relief for the oral LP ?
jaybug94
31 Dec 2014
I am new to this disease and have been dealing with it by brushing and using a waterpic as well as Zero Listerine swishes 3 times a day and it becomes almost pain free. I do have to eat more on one side as it hurts less on that side and eat softer food. Does this get more painful with time?
sjmkbp
31 Jan 2015
I started making my own toothpaste to help with pain. Even the violence burns. My doc gave me viscous lidocaine to swish when it gets bad.
Smiledi
31 Jan 2015
For toothpaste I use Hello Kitty bubblegum toothpaste recommended by my dentist. It has no pain while brushing.
As I follow-up my LP, I was sent to a rheumatologist and put on methrotrexate, a chemo pill. I take 20mg a week and it has almost put this disease into remission. All the oral bumps, etc., have gone away.
Naomi530
24 April 2017
My skin started to take a change in color shortly after a trip from Hawaii last year. I when to see a doctor, and was diagnosed with a condition called Lichen plants and was prescribed Fluocinonide USP,0.05%. I used it for my arms, nice, and chest for two months. The condition did not improved. Could it be I was prescribed with incorrect medication or wrong diagnosis?
Cvhob
19 Aug 2018
I was prescribed fluocinonide for oral lichen planus a few years ago. My mouth flared up badly recently and I attacked the ulcers with it. In retrospect, this was a mistake, as my oral pathologist told me only to use “a dot” of it. Now I am in worse shape and will stop using it for a few days. Any thoughts?
Related topics
Further information
- Fluocinonide uses and safety info
- Fluocinonide prescribing info & package insert (for Health Professionals)
- Side effects of Fluocinonide (detailed)
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