i live in the uk and i've been taking it for more than 30 years to control my 3-4 migraines a week - just went to get a prescription renewed and i'm told it's no longer available in the uk - at this point in time, all i can see is losing my job and then losing my house and ending up on the streets! does anybody have any information? have tried all other migraine meds and prophylactics but nothing else works for me . . .
Is cafergot being discontinued?
Question posted by lucyglitters on 13 Oct 2012
Last updated on 16 October 2019 by Patrick Dunne
Hi everyone, I live in Ireland and the supply has dried up here too. I've been getting Cafergot and Hemicraneal, which is similar, with Paracetamol, in Spain and Italy over the counter without prescription for years now. I think they might require a prescription soon as the last time I got my supply I could only purchase a couple of boxes at a time. They're still available there though for now. I hope this is helpful as I know only too well what you're all going through and the thoughts of no supply was making me pretty anxious too! Best of luck to you all.
We have been ordering brand name Cafergot with a 1/100 formulation from SafeDrugsOnline for a few years now. It costs $60 for a 90 day supply. Just mention the name Lesley Finn and you will get a discount.
Back in the 80's, I became ill with chronic Epstein-Barr syndrome. I began having Migraines more and more frequently until I was waking up with one every single morning! Caffergot was prescribed for them and it worked very well. I was concerned about taking so many so my Dr. suggested taking one each night at bedtime. It worked. One a day kept me headache free. Then the Dr. put me on Effexor. My migraines stopped completely. That was in the 80's. I no longer needed caffergot and have not had a migraine since. I know that migraines have many causes. My Dr. said any infection can set one off but I thought that this information might help some of you.
I know how frequent migraines can ruin your life. I cannot understand why Caffergot is no longer available and feel terrible that those companies have chosen profits over the welfare of people. My best to all of you sufferers. May you find a solution soon. Love to all, Mary Cassat
This is an old question but I've also been suffering because I'm unable to get it in the UK - however I've found that it's available in Spain without prescription and just over €1 for a pack of 10, I've just been going into pharmacies and asking for it to stock up. Thought this might be useful for other suffers to know as it's a common holiday destination!
Hi, I realize that this question is three years old, but I just want to let you all know that Cafergot 1-100 mg is available in the United States. It's manufactured by Sandoz, and the cash price for 30 tablets was $330. My insurance brought it to $70, but yes, it is available. I'm in the southern part of the U.S. and it was in stock at my fairly small pharmacy. I hope this helps those who really need it; it's my first time trying it and I was shocked that it worked!
I see this entrance is 3 yrs old, so I mean it for you luci & all with this dilemma. I only found it because I am researching Cafergot availability for a relative debilitated by severe migraine. Her sinuses trigger them. I am so sorry you can't find cafergot, I was once where you were when you asked this question. I hope you have been able to find it. I suffered from debilitating, excruciating days in the dark, vomiting with migraines. The only thing that helped was the Cafergot PB suppositories or ErgoCaff PB suppositories that I understand are even harder to get if at all. I needed that because I threw up everything once they started & the pentobarbital & bella donna stopped the nausea. The neurologist tried every preventative that didn't work. The triptans the imitrexes, all that just gave me palpitations. One daily preventive med that he prescribed helped control the severity & frequency- the anti seizure med Topomax or generic, topiramate.
I also lost weight on it, a happy side effect that I believe also contributed to less migraines. If all else has not helped & you haven't tried it, do so by all means. Just remember to eat. I had a hysterectomy at 43 for gyn trouble & happily a side effect was that my migraines were gone within a year. For this reason, I am sure that hormone levels worsen them. Prostoglandins also. I pray you see this & find a treatment plan to enable you to function. Good luck luci
I live in Malaysia and thank goodness we have a generic supply of Cafergot called Caffox. From what I have been told by the pharmacist Caffox is manufactured in Singapore however I have not verified that. I looks, tastes and works. So I am happy as a clam.
BUT I am now in a panic attack because I am now suffering from high blood pressure, one of the main no no's for Cafergot. Looking at my records the cardiogist cannot figure the cause of my high blood pressure except for my increased use of Cafergot. In the past year my migraines have centred around my periods and last around 2 weeks. So now I do not know what to do. Like all of you Cafergot is the only thing that has worked for me for the past 25 years. Imigran, even the nasal spray is useless.
If anyone has advise on how I can deal with this latest issue pleasssseee help! Thank you.
I live in Wisconsin, nearest to Green Bay. Last week I called the (closest) compounding pharmacy, (75 miles, up north). The pharmacist said he could make the generic easily enough for me.
Even though it is an hour+ drive, I knew it was well worth it to get the meds I need. (Maybe a friend would help me get it as my she had just moved up there only last month)...
But I digress...
My GP doctor phoned in all the stuff they needed; but when I called, the pharmacy they said that it might be a few days before it was ready to be picked ...
(Fine by me, I was "YAY~Thrilled" and just stinkin'~happy to be getting it at all). hehehe
What pharmacy didn't tell me is that they were trying to order it for me.
I called back the next day, just checking... It was ready to be picked up. I gave her my insurance[s] information-
... She asked why I was having a problem getting it?
I explained being able to scrape together a refill of 30 so long ago- (And THAT was filled with product from about 6 different pharmacies to equal the #30 Rx)!
Long story short(er), this new pharmacy had gotten my cafergot by simply ordering it. They had called my doctor back with this news, no compounding necessary; and she, with her infinite wisdom, had opted then to Rx me an entire bottle of it. I now have 100 pills of Cafergot. They are even the REAL thing too.
This should last a while, maybe even for me.
My g/f picked the script up saving me much time, and gasoline.
So call your pharmacist and see if they can order BRAND NAME CAFERGOT. This bottle is from SANDOZ.
Further, if it might help, it expires late, late, next year.This leads me to believe that this is [possibly] a new run of meds.
As an aside I must say that I called my regular pharmacy they said,"no", that it was, as yet, still UNavailable to them...
(I have yet to call CVS, Walgreens, and WalMart, just to check).
My best to you all!
Please write back on here and let me know if you are as relieved , and successful) as I was!!!
Don't give up. After the panic attack, go to a pharmacy that has the capability to make up the drug from scratch ("compound" is the term they use). The ingredients are simple -- caffeine and ergotamine tartrate (I think I got that right). However, I don't know about the availability of ergotamine in the UK. I learned here in Canada that it was not a banned substance (Health Canada) but, if it had to be imported it had to be ordered in by a licenced company (which the pharmacy knew how to find). My order ended up on back order because of the erg., but after a couple of false starts I`ve got the meds. My pharmacy said they did this (compounding) all the time for drugs that had gone out of production. They didn`t think it was a big deal. It was for me for a while there!
All the very best.
Cafergot was recently discontinued in Canada. None of the expensive designer drugs was as effective. I found a suggestion online that a _compounding pharmacy_ could compound it. My doctor found one, Smith's Pharmacy in Toronto, and I now have Cafergot once again! I had them compound it in a half strength dosage, 0.5 mg ergotamine tartrate and 50 mg caffeine citrate, which usually is enough for me (half a tablet). Works like a charm!
I have been on Migril for over 30 years which I see from the above posts has been suggested as an alternative to Cafergot. It has been my saviour and lifeline over the years so was absolutely gutted to go for a repeat prescription to Boots yesterday to be told it is suddenly unavailable. Is there anywhere you can order meds to the UK from abroad as I don't think I can exist without it!
I could not remember where this question was posted online; even though I have used drugs.com since I learned... (I had better add it to my list of favorites).
I saw an ad on TV and found that only 30 miles away the pharmacist will compound ergotamine for me- AND, at a very reasonable price!
I am so happy I could dance- But with 30 fractures I'd best not try...
I almost lost it on my pharmacist when they told me that Cafergot was discontinued. After doing a small amount of research, I found a company locally that will compound it for a reasonable cost. Who knew it was that easy. I am in Edmonton, AB, Canada.
I've just joined the chat. Have also just found out about Cafergot being unavailable in Canada, where I live. Have been taking it and managing well for 20+ years. Health Canada said ergotamine is not a banned substance in Canada, so I can get a compounding pharmacy to make it up from the individual Cafergot ingredients -- if they can find a supply of ergotamine (lots of caffeine around for the taking!). If not available domestically, they can order ergotamine from abroad through a Canadian licenced company (or, by a longer route, apply to import directly under a special provision of Health Canada). You have to get your doctor to write on the prescription: Cafergot: compounded alternative. I'm off to see my doc tomorrow and on to the pharmacy with the prescription. The pharmacy by phone was very helpful, said they deal all the time with discontinued drugs, compounding them for customers. It all comes down to accessing a source of ergotamine.
I am also disgusted that my regular pharmacy could find no reference to the discontinuation of cafergot. I got a refill just a few months ago OK. Also, FYI, a prescription from a Canadian doctor cannot be filled in another country. However, I'm going over to the UK in July and family there say Migril is still available through the NHS so I could go to a UK dr. and get a prescription and legally import the drug to Canada. If I am travelling TO the UK, I must (emphasized) take with me a letter from my dr. listing the generic name and dose of the alternative drug I am carrying (made up by the compounding pharmacy), plus a copy of the dr's prescription, otherwise UK customs will confiscate what I am carrying into the UK.
Hope this helps, at least to any Canadians on line here.
Migril is the closest replacement to Cafergot . Here in the UK it's available on prescription. They've added the anti sickness drug cyclizine to the caffeine and ergotamine compound. My mother took half a tablet and that worked the same as 1 Cafergot. The dosage of ergotamine is double(2mg) that of Cafergot so be aware of that.
- Cafergot uses and safety info
- Cafergot information for Healthcare Professionals (includes dosage details)
- Side effects of Cafergot (detailed)
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