User Reviews for Topamax

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10
   
19%(37)
9
   
23%(44)
8
   
15%(28)
7
   
6%(10)
6
   
5%(8)
5
   
8%(14)
4
   
5%(8)
3
   
6%(10)
2
   
5%(8)
1
   
15%(28)

Topamax review summary

6.6/10 Average Rating

195 Ratings with 167 User Reviews

Compare all 31 medications used in the treatment of Migraine Prevention.

Reviews for Topamax to treat Migraine Prevention

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Review by Amanda919 (taken for 1 to 6 months):

User Rating:  
   
6.0

Worked wonderful to get rid of my headaches! For the first time in nine years I didn't have daily headaches. The side effects were awful though!! Ringing in the ears, dizziness, flushing, numb face/hands/arms/feet, the list goes on and on. My doctor had to wean me off of it.

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October 14, 2014 11:07 PM

Review by usmcwife0341 (taken for 1 to 6 months):

User Rating:  
   
4.0

I've been on Topamax for about 5 months now (100 am/100 pm) and finally giving up faith. The negative side effects outweigh the slight change in my migraines. Carbonated beverages taste terrible, I have to force myself to eat, I stutter constantly, I can never find the right words and often switch up words in a sentence. My memory is horrid, and I always see tracers, which is enough to drive anyone crazy. The only pluses are the slight decrease in consistency of my migraines and the weight loss.

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September 11, 2014 4:50 PM

Review by Anonymous:

User Rating:  
   
7.0

I've been on Topamax for about a week now great results. carbonated drinks taste horrible little confused in class but overall its a Lifesaver. My migraines had me suicidal.

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September 9, 2014 11:02 AM

Review by Wonder medication! (taken for 5 to 10 years):

User Rating:  
   
10

I've been taking Topamax (brand) for approximately ten years. Due to severe migraines this was the only medication to prevent what had been dabilitating headaches, nausea & vomiting, sensitivity to light, smell, sound, movement, and dizziness. After several years, my insurance refused to continue payment of the brand until I tried the generic tablets. After 3 days, the original symptoms returned. They finally approved continued payment of brand and now two years later they again have refused to cover (pay) for medication although it falls under the plan. For three months, my neurologist and I have issued appeals with no clear explanation of the denial. I would just like to again take meds to rid myself of this pain.

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August 20, 2014 10:32 PM

Review by Sam2287:

User Rating:  
   
1.0

Took a 50 mg last night before bedtime for the 1st time. Woke up like a zombie, my top lip numb, in a fog, soda taste metallic. I can't function on this medicine. I function better with migraines. I am a receptionist, and about to fall asleep at my desk.

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August 14, 2014 8:43 AM

Review by Anonymous:

User Rating:  
   
7.0

By the time I started Topamax, I was getting migraines 2-4 days a week. Topamax seemed like the best fix. And for a while, it was. My migraines significantly reduced, though I did get most of the common side effects: slight tingling in my fingers, carbonated beverages tasted gross, and weight loss. My main warning about this medicine is weight loss. It seems to be paraded as a benefit, and to some it may be, but if you are already naturally slim, pay very close attention. I wound up dropping to an unhealthy weight despite all attempts to counter it, and it's ultimately why I had to stop Topamax. I was unwillingly wasting away. When I stopped, my migraines returned in short order, and I'm still looking for an alternative that works.

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July 16, 2014 11:00 PM

Review by Anonymous (taken for 2 to 5 years):

User Rating:  
   
8.0

I have been taking Topamax for 2 years now after trying many different medications. Yes I got some of the side effect mainly thought process was slow and word confusion that was real frustrating it is worse under stress. The all over tingling is not as bad anymore but not have headaches every day, you have to weigh you options.

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July 13, 2014 3:17 PM

Review by DIANA FORD (taken for 1 to 6 months):

User Rating:  
   
1.0

I used it for migraines. My side effects were: depression, dehydration, impaired thinking, confusion, drowsiness, memory problems, nervousness, trouble in concentrating, weakness, loss of appetite, vertigo, and SEVERE ANXIETY. After stopping this medication, I still suffer from severe anxiety and vertigo.

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June 10, 2014 7:18 PM

Review by allisanderson (taken for 1 to 2 years):

User Rating:  
   
9.0

Works extremely well to prevent my migraines.

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May 24, 2014 7:26 PM

Review by RJinVegas:

User Rating:  
   
9.0

Wow, what a roller coaster ride! Started on 25mg, no effect, then 50, 200 finally 400. It did stop the cluster headaches, but Extreme confusion, serious loss of hearing, forgetfulness, couldn't remember my phone number! My wife wouldn't let me drive at 400mg, I was dangerous, parking became very difficult, once I had to get out of the car and let her park. Frustrating and humiliating. In the end, I was down to 50mg a day, Doc said that wasn't causing any side effects at that low dose. WRONG! When I finally stopped, it took a couple of weeks to become me again. I was shocked at the difference it made being off of it. Some of my hearing came back thankfully. I did lose 30 pounds that did not come back.

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May 4, 2014 3:05 PM

Review by mrs.thrompson (taken for 2 to 5 years):

User Rating:  
   
5.0

I've been taking Topamax for about 2 years now, 100 mg a day. I have severe chronic migraines due to my spinal cord. So my doctor put me on this medication. The only side effect I've had was the tingling but I get that anyways even before this medication so who knows if it was a side effect. But it works ok for me when I take it regularly but I also have focal seizures so this medication is for both of my problems. But I always take it with my hydrocodone so my migraines are fine.

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May 4, 2014 1:52 PM

Review by Bojomom:

I'm 50 yrs old and have suffered from Migraines since I was about 12 years old. Too long! I've taken every medicine possible for prevention or cure with little or no relief. Too many trips to the ER for shots...the only real fix; then back home in a dark room for much needed sleep. When my Internist suggested Topamax, I jumped at the opportunity. Boy, I'm happy that I did. Yes, I had the initial side effects, lost 35 lbs originally (gained 10 back), have tingling in my fingers & toes but only in the winter when I'm cold. Very manageable. I don't drink pop, but tried one WOW...it was flat. I do struggle with words at times, but still manageable. My 3/week migraines now down to 1/month are generally managed with Excedrin Migraine. A

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March 16, 2014 2:50 PM

Review by Nearly Migraine Free!:

User Rating:  
   
9.0

Topamax literally saved my life! I have been getting headaches often since I was 14 or so. They progressed to full blown migraines after my 3rd child (I was 28 in 2004)and increased from there. By 2008/2009 they had gotten so bad I was literally having paralysis on the left side of my face, could not keep my eyes open at all, severe vomiting. Once I had one there was no driving or I'd run off the road. Thankfully after getting no relief from several medications & including visits to the ER, ENT, and neurologist to try and figure out something... I was prescribed Topamax. Use 50mg a day with 2 Aleve & 500mg Magnesium. Pretty much wiped out my migraines. Got pretty much all the side effects...who cares? I'm not suffering everyday anymore. :)

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February 10, 2014 11:52 PM

Review by mrhotel_ca (taken for 10 years or more):

User Rating:  
   
6.0

I took Topamax as much as 300mg/day for 15 years and my last dose was 150mg at night. I recently changed to Lyrica which is also an anti-convulsant and am taking 100mg/day and find it more effective than Topamax without the memory and lost word problems. I discontinued Topamax because it slowly got to the point where I could not remember something for an hour. Topamax also was causing erectile dysfunction problems for the last 3 years. I do not have this problem with Lyrica. In the end I was getting 5 or more migraines a week and now get 2 or 3 a week and expect to increase Lyrica to 300mg/day.

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December 25, 2013 11:40 PM

Review by Anonymous (taken for 5 to 10 years):

User Rating:  
   
10

I have taken Topamax for about 5 years I take 100 mg in the morning 100 in the afternoon and 200 more mg at night I almost never have a migraine.I used to have one 4 out of 7 days a week. I don't have any side effects not even drowsiness.

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November 2, 2013 5:48 PM

Review by Blondiechick (taken for 2 to 5 years):

User Rating:  
   
10

I have been on Topamax now for 2 years. I reached a breaking point where I almost lost my job because I was calling out of work so much with 3-4 (sometimes 5) migraines a week. I was initially annoyed because I wanted it to work immediately, but I still had migraines. You have to titrate the dose up 25 mg a week. I initially went up to the recommended 100 mg, but I hated the "loss of words" feeling I had, and found that I had about 1-2 migraines a month. So I decided to go back to 75 mg and see what happened. I had less loss of words and finger tingling, and yet my amount of migraines stayed at 1-2/month. This has been a lifesaver for me. I don't know what I would do without it.

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October 26, 2013 12:13 PM

Review by Wombat Divine:

User Rating:  
   
5.0

I was prescribed Topamax as a preventative migraine med. It was effective in significantly reducing migraine. However it gave me insanely severe sinus/hayfever symptoms. I couldn't leave the house because my nose was running like a tap. I was sneezing all the time and totally stuffed up. I got all the other usual digestive upset side effects, but I could live with those as they seemed to reduce as time went on whereas the sinus problems intensified.

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October 19, 2013 10:08 PM

Review by Danj515:

User Rating:  
   
9.0

I began taking Topamax about a year ago after suffering from weekly migraines since age 15. I increased the dose to 200mg a day before it seemed to be a therapeutic dose for me. My migraines reduced a lot for a long time but I also do not drink alcohol, caffeine, or eat chocolate, cheese. The last few weeks my migraines are back with great intensity. One lasted 4 days. So I will be going back to my doctor. Topamax did not affect my appetite at all. I get occasional tingling.

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October 6, 2013 8:29 AM

Review by tinafla444:

User Rating:  
   
10

Love this medicine, no headaches.

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September 29, 2013 8:17 AM

Review by 1217jess:

Your experiences helped me a lot. This is my 3rd day on Topamax at 25mg at bedtime and the only side effect I'm experiencing is nausea. I'm also looking forward to the weight loss! Would love to lose 15 pounds.

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September 22, 2013 10:08 PM

Review by comon' MOM ! Remember? (taken for 2 to 5 years):

The side effects outweighed the Wonderful absence of migraines. I did not remember most things I was told. I couldn't remember words, was in a constant fog, hardly smiled or laughed anymore. After I get over these odd "withdrawal" symptoms all will be back to normal.

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September 22, 2013 12:24 PM

Review by Sweaterpoo:

User Rating:  
   
5.0

I'm on day 4 of 50 mg of Topamax, and am supposed to up it to 100mg on the 7th day. I've not had a migraine but the side effects are draining me. I have headaches almost everyday and they usually turn into a migraine. But so far in the 4 days on Topamax I've only had to take one triptan and it worked ASAP. I hope I can hang in there. I'd like to lose some weight too!

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September 19, 2013 7:06 PM

Review by thisisendless:

User Rating:  
   
5.0

My migraines are primarily abdominal, but I get daily 'tension" type headaches as well. But my nausea "attacks" are totally debilitating and the headaches get more so every day. I took Topamax starting at 25 mgs then increased. I noticed it really helping my symptoms, way less nausea, headaches stopped and I could sleep well. Unfortunately, I am one of the people who react with a rare side effect of an acute onset closed angle glaucoma attack and my vision got very blurry and got so bad I could not see anything but blobs if it was more that 12 inches from my face. If you get blurred vision go to the ER and show them the letter from the Topamax website, because ER had never heard of that reaction. I gave it a 5 because it worked until then.

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August 8, 2013 3:00 AM

Review by Larissa555:

User Rating:  
   
7.0

At first this medication impaired my ability to drive a lot. My depth perception was way off making it very dangerous for me to be on the road, over time I did notice my migraines were less often and sometimes I would get all the symptoms of a migraine (light sensitivity, nausea) but no pain, kind of like a ghost migraine, which was weird and inconvenient. For the most part I think this medication is worth a try. I am currently on 25mg.

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July 31, 2013 2:44 PM

Review by Lorrie Louise:

I have been on Topamax for 13 years now and cannot live without it. Before the doctor prescribed it for me I was in the hospital at least 4 times a year for 2 to 3 days. I have not even been to the emergency room for a shot since I have stared taking it. I take 50 mg morning & 50 mg at night. I did not lose many pounds and the side effects did not bother me at all. I would suggest anyone with severe migraines to give Topamax a few months before giving up on it.

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July 29, 2013 6:54 PM

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