Copaxone User Reviews & Ratings (Page 2)

• Icky...
• September 15, 2015

For Multiple Sclerosis "I only took it for two weeks. I have been told to stop by the nurse at shared solutions. Right from the get go I was getting bad reactions. There was the normal hard swelling 3" rash at the injection sight and the stinging pursued for hours. the next week, after an hour of the injection weakness throughout my entire body, all of my joints hurt especially my spine, horrible cold chills, and extreme nausea. These effects were lasting up to 6 hours. The injection site swelling would continue to get bigger for 3 days. I tried the massaging cold packs and warm packs... Nothing worked. I know this an extreme way to put it, but it felt like chemo...."

• kpp...
• Taken for 10 years or more
• April 2, 2013

For Multiple Sclerosis "Been on Copaxone for over 10 years, kept me stable and still able to teach dance (but without spins & turns!!). Would not have continued without the shooter from your doctor, makes it quick and easy. Bought a needle clipper from the drug store so I can clip off needle and throw shot in garbage. Great travelling.......no need for a refridgerator for a couple of weeks. Just heard copaxone is coming out with a shot every other day YIPPEE!!!!..."

• Abbys...
• Taken for 5 to 10 years
• December 17, 2014

For Multiple Sclerosis "Copaxone has been excellent, for me, as far as slow -> minimal progression. I hate injections. However, I much prefer the 20 mg daily injection over the 40 mg 3 x week. I have fewer localized reactions."

• Middle...
• Taken for 5 to 10 years
• March 6, 2013

For Multiple Sclerosis "Was diagnosed in 2001 with relapsing remitting Multiple Sclerosis - never had any major flare ups - took Avonex for 5 years - didn't notice any real difference - went on to Copaxone 5 years ago. What a revelation - major difference is it took my tiredness away. Painful injection and one incidence of 'heart attack that wasn't' worth it for the lack of fatigue. Can now work full time - walk miles etc."

• Ranha...
• May 1, 2018

For Multiple Sclerosis "Diagnosed in 2000. Lost all feeling in half of right arm. MRI showed innumerable lesions in brain & 3 on spine. Also evidence of MS in spinal fluid. Immediately began Copaxone 20 mg daily. Swank MS diet limiting saturated fat to 15 grams per day. Have taken Vit B, D , Coq 10, chorella ( for the amino acids), multi-vits, sphingolin ( Myelin protein) , evening primrose oil & fish oil w/ food at lunch.. Also apitherapy ( hugely helpful) sting myself with live honeybees whenever possible . I Had one exacerbation in 2005 where I was dragging my foot when walking & was put on steroid intervenous drip for 2nd time ( which reversed all symptoms..). I exercise 3 times per week with mild cardio (stairclimber, weights, swim) don't push myself except to get heart rate up to about 130- 150 with push at the end. No real symptoms except for occasional tingling & minor balance issues. Naps also very important . Massage also helpful... Something is working... Don't know what..."

• Bourg
• January 26, 2016

For Multiple Sclerosis "Updating my 3 mri's and xray I'm stable nothing new just dealing with old damages . I've been in copaxone 8 years on Feb 8 . The 40 mg hurts more but if I'm stable with nothing new I'm sticking with my copaxone."

• Lindy...
• December 16, 2015

For Multiple Sclerosis "My first MS symptom was sudden right sided paralysis which is very rare. I was put on steroid therapy, infusion with tapering off meds. After the six months I regained most of my motor control. I started on daily injections 8 years ago. Had the usual itching, bruising, lumps under skin. It does melt the fat under the skin also. When the 40 mg 3 times a week came out, I jumped on board with it. Honestly, I have not had any major flareups and last 3 years have had no new lesions. Stick with it if you can. I know a younger woman than myself and she would never switch from it either. Good luck :)"

• Monic-a
• December 18, 2015

For Multiple Sclerosis "Hi all! I started copaxone 2 months ago. So far so good only a little redness in the injection site but I think that that's nothing compared to the damage ms can do. I have a sister that is blind and handicap so I will try to do my best to help myself even if the site injections gets bad every time I inject. Nothing is perfect in life. So far that's the only reaction redness and I do use autoinject. I don't drink or smoke and I also take vitamin d every morning 2 or 3 gummies 2000 mg. only thing I am missing is that I still put sugar in my coffee :( I read sugar is not good. That will be my next years resolution. God bless all of you!"

• Lion...
• March 1, 2017

For Multiple Sclerosis "I started taking copaxone in 2001, after trying avonex for 3 weeks with bad flu like symptoms. I began copaxone 20 mg once a day, it's been 16 yrs now with minimal side effects, compared to the exacerbations. I miss aprox 1 injection a week, on average due to it not injecting. I have not had a major attack in 16 yrs. I rarely ever use my cane. Once last year I caught the flu and had bad MS related symptoms. When I was 21 I had optic neuritis, @ 28 I became at least 90 percent paralyzed from my waist down and was told I would be in a wheel chair by 50. After this l quit smoking, drinking and any non medicinal drug, I began working out etc.The answer to me is the opposite to burning the candle at both ends & a positive outlook."

• spinn...
• July 7, 2016

For Multiple Sclerosis "i have been taking copaxen for 5 years now for ms i started the 1 a days shot but a year ago went to 3 a day this stuff kept me ms in check if you get this drug i suggest you get a auto injector with it makes things easer"

• Antti...
• Taken for less than 1 month
• August 19, 2016

For Multiple Sclerosis "After dealing with the horrific side effects of Avonex, and being admitted into a hospital for four days after I was suspected of having PML due to my worsening of symptoms and low white blood count (thanks to Tecfidera), I finally found the right treatment for me. I couldn't be any more happier with Copaxone."

• Sook
• October 20, 2015

For Multiple Sclerosis "I have been on 20mg for about 6 years. Some annoying side effects as itching back, and feet, muscle spasms, tingling but could pretty much handle them. Then went to the 40mg. Not good. For a few months was okay but then the severe heart palpitations, Tingling in head and face, muscle spasms that would would wake me up. Neuro said was not meds and kept giving me something for anxiety. Nothing helped so I figured it was me and would have to live with it. Decided to go off and see if that helped. Has been a week and a half and I feel the symptoms fading away already. Don't know if I will go back to 20mg or just stay off of it. I can't live with the harsh side effects of the 40mg."

• Carbo
• Taken for 1 to 2 years
• July 5, 2014

For Multiple Sclerosis "Took it off and on for 2yrs on the advice of my doctor and because of my age. I was told this was the best option for me. Had terrible deep itching it the injection site and painful welts. After stopping when I was pregnant and restarting symptoms were more pronounced and eventually went into anaphylactic shock. Fell over hit the side of my face and that's when I called it quits. It's been over a year and at this point I am choosing to stay off any of these medications. Not enough evidence to support the pros outweigh the cons."

• still...
• Taken for 10 years or more
• April 24, 2016

For Multiple Sclerosis "I was diagnosed in 2004 and I've been off and on Copaxone since then. I take the 3x a week 40-count shot now, and there is a study ongoing now that is trying to see if taking an 80-count injection once a month works just as well. I always feel better on Copaxone, and I will try to remain compliant. In the past I've had muscle stiffness, anxiety w/ it, but not now. I find I have less site reaction if I inject it chilled, and stomach is best. Multiple studies have show it's the best chance to avoid a relapse. I do wonder, if I had remained compliant, whether I would be able to walk without a cane, or avoid the burning legs that make it hard to wear most pants. (I find medical cannabis hugely helpful, but I would prefer the no-high variety.)"

• Bohem...
• Taken for 10 years or more
• March 24, 2014

For Multiple Sclerosis "Copaxone was working great for over 10 years, until the day came that my injection site reaction went anaphylactic. Not a pleasant experience, especially when health care providers (of which I am/was one) refuse to believe that the only potential exposure agent was Copaxone. I would be willing to give it another try (in a controlled hospital setting with emergency medicines on hand), but my neurologist and PCP won't let me. If you can take it, site reactions are the only problem I ever had, as they only occurred the last year I was on it. Side effects were virtually non-existent compared to the other ABC medicines and the new treatment modalities."

• Diegos
• May 8, 2016

For Multiple Sclerosis "I had two pretty worrying initial exacerbations in July 2011 and February 2012; since then I use Copaxone and I've had no relapses nor new lesions (I write this May 2016). Injections are of course a nuisance, but what can we do."

• LNP
• Taken for 1 to 2 years
• September 9, 2015

For Multiple Sclerosis "I was diagnosed with MS in late December 2013. I started taking Copaxone the summer of 2014. I started off using the daily 20mg, then I switched over to the 40mg because I didn't want to give myself a daily injection. When I first started the 40mg, the side effects included sore injection site welts. Overtime, the side effects became worse. Now, every time I take the 40mg, I get very sore, itchy welts at the injection site, along with patches of itchy, rash bumps on certain parts of my body. The other side effects happen randomly after an injection. These include severe body aches and chills. The symptoms are fever-like. Other than that I feel an increase in my energy levels since taking Copaxone and my MS lesions have not spread."

• Anonymous
• December 29, 2011

For Multiple Sclerosis "I've been on Copaxone since the day I was diagnosed almost 10 years ago. I too had the choice of which medicine I wanted to take and I chose Copaxone, and I haven't looked back since. Yes, I've had occasional flare-ups, but nothing major. I could barely walk when I started and it got me back on my feet and back to work full-time."

• Fern
• Taken for 10 years or more
• April 15, 2018

For Multiple Sclerosis "I had my first MS symptoms in 1985; diagnosed with RRMS in 1990. Started on Copaxone in 2000, 18 years ago. When they came out with 3x a week injections, I switched to that. My course has been largely benign: most of my symptoms involve sensory sensations on my right side, a few times those sensations have been pronounced enough that it causes weakness/numbness in my foot and some trouble walking. I haven't had a relapse for 8 years now; not sure if it's because I have mild MS or if it's the Copaxone. For now, I'm not willing to go off it to find out. Of all the MS drugs, I think Copaxone has the most manageable side effects. I've never had any problems aside from being a little sore after the injection and getting those lumps after repeated injections. Years back I stopped injecting in my arms/legs because I don't have a lot of fat there and the lumps I felt in those areas eventually went away. It took about a year, but they did disappear."

• Louise...
• Taken for 1 to 6 months
• August 21, 2023

For Multiple Sclerosis "Until today, I have had no issues with Copaxone. Today, it's possible that using my Whisperject, I may have accidentally injected into a vein with the result that, within 5 minutes of injection, I experienced accelerated breathing, flushing, nausea and intense back spasms. These passed relatively quickly. Other than that, I have had no issues, apart from injection site irritation and pain. Currently, it's too soon to assess the benefits, as this was only my 18th injection, and I don't go back to my neurologist until October."

• katblue
• Taken for 1 to 6 months
• May 11, 2014

For Multiple Sclerosis "Medicine appears to be effective. Injection sites are painful after injection, injection sites must be changed daily. Most approved injection sites can not be reached by user therefore requiring assistance."

• Jsw
• Taken for 10 years or more
• January 6, 2022

For Multiple Sclerosis "I have been on Copaxone for 15 years. It's the only medication I've been on for MS. Overall, great med. 1 flare up in that time. And progression only in the past 2 years. I have had injection site reactions like redness, swelling and knots. Last year I had a seizure immediately after injecting Copaxone and I don't have a history of seizures. Never happened again. But, like Lee, it is not mentioned in any Teva literature. I reported this to my Neurologist, Shared Solutions, and the drug manufacturer. Nobody had heard of this reaction."

• Camar...
• November 25, 2012

For Multiple Sclerosis "I started taking Copaxone soon as I was diagnosed. I don't like the red welts and stinging but my doctor prescribed me spray to put on before I inject and it helps. I don't have much fat so I have the indentions and bruising. But I had not had any new lesions on it! But I decided I would stop taking it and was off it for 5 months and had a MRI and have more lesions so it does work! I'm back on it now hope my next MRI proves it works."

• Vamp...
• Taken for less than 1 month
• May 16, 2018

For Multiple Sclerosis "OMG, first time taking copaxone after taking avonex for 20 years. It is unbelievable, no side effects. Even though I am happy that avonex was there and I truly believe that because I stayed on it my MS is controllable it was a pain, the side affects were too much. I am happy to try copaxone, I was not happy with injecting myself daily but since there are no side effects....that helps. :)"

• Monic...
• May 21, 2016

For Multiple Sclerosis "I wrote a review on 12/2015 unfortunately I had to stop using copaxone because I got bad reactions. The last one was body shaking like if I had a machine connected to my body for one hour my buttocks muscle shaking so much. I got very scared and stopped medication. It's been 2 months and I don't think I will go back to it. I am just trying to eat healthy I cut all lacteos and red meat. "