User Reviews for Copaxone
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Copaxone.
Reviews for Copaxone to treat Multiple Sclerosis
"I was diagnosed with MS 10 years ago by MRI after many falls due to foot drop, around 2005. I took copaxone from 2009 - 2011, 20 mg per day. It didn't help, it didn't hurt. I stopped because my insurance wouldn't cover it anymore. I've had regular symptoms over the last 10 (or even 30) years, they have gotten progressively worse the last 2 years. I got back on Copaxone about 4 months ago, 40 mg 3 times a week. I don't think it is helping. My site reactions are worse than they were with 20 mg daily shots. I have gotten to the point where I can barely walk without pain, weakness, and shin splints from the muscle weakness in my legs and inability to walk and balance properly. I take Copaxone ONLY because I'm afraid not to. Good luck."
cpk777 (taken for 5 to 10 years) July 28, 2015
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"Diagnosed March 2014, and have been on Copaxone (3x weekly) since May 2014. Two MRI's since (Oct '14 and June '15) have shown no change. Had one exacerbation in April. Overall I am pleased. I do have site reactions, red itchy lumps, but worth it to have little to no progression. Early in treatment I had hair loss for 3 months, but that did stop. Plan to continue this treatment."
Diana1021 (taken for 1 to 2 years) June 16, 2015
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"I was just diagnosed Nov. 2014. Started on Copaxone 40 mg just a couple of weeks later. I have had all of the typical site reactions with every injection. The worst has been the itching. That of which I have been unable to control with ANYTHING until this last injection. I researched and have used every over the counter remedy. Started looking at the natural remedies for itching. Could not bare to invest any more money. Came across the use of oatmeal for itching (forgot all about that). I had steal cut oats on hand. Ground them into a flour-like texture. Put the ground oatmeal in a cheap knee high stocking, dipped it in hot water, allowed the concoction to drain so that it was not messy but still wet. Apply. AMAZING RELIEF."
Get'er-done January 14, 2015
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"Copaxone has been excellent, for me, as far as slow -> minimal progression. I hate injections. However, I much prefer the 20 mg daily injection over the 40 mg 3 x week. I have fewer localized reactions."
Abby's momma (taken for 5 to 10 years) December 17, 2014
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"I have been on Copaxone now for 6 weeks. Started on Tecfidera and that was just a horrible experience so switched to Copaxone three times a week. I also encountered an Autoject problem and after one week switched to doing the injection manually. The site reactions are pretty much gone but I do use heat prior and ice post injection to keep whatever reaction occurs to a minimum. I have only been diagnosed for 3 months now but I have so much more energy than I have had for a very long time so my experience has definitely been positive!"
Anonymous (taken for 1 to 6 months) October 27, 2014
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"Diagnosed in '08, been on Copaxone since then. Took me about six months to realize my injection site problems were caused by the auto-injection contraception. I found it not precise enough, needle can go at an odd angle, or too deep and into muscle (those were the worst). Learned to self inject. I go in at a 45 degree angle and inject slowly. Haven't had any injection site problems since. Knick a muscle once in a while, but that's it. It's a different experience for everyone, as you all know. Cut out the salt, take cold showers, and avoid the heat. Haven't tried vitamin D supplements, but sounds like a good idea. Last MRI showed no significant changes (good thing, I'm told.)"
Boston Steve October 2, 2014
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"I am 24 with RRMS. My right eye developed optic neuritis Nov of 2011. Officially diagnosed Sept of 2012. Started taking Copaxone a few weeks after diagnoses. Site reaction areas were bad at first but started to diminish after some time. Only other issues I had was around the one year mark but that was due to playing favourites with sites and not rotating properly. After almost 2 years of being on Copaxone I have had no other relapses."
Nick24 (taken for 1 to 2 years) August 4, 2014
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"Been on Copaxone 6 months. Injections really do get easy they are almost always pain free and rarely get injection site reactions. I know it's early but I do feel like I have more energy then I have had in the past 4 years since being diagnosed with multiple sclerosis. Don't let people's horror stories scare you it's really not bad very few people actually have IPIR."
Brad94 (taken for 6 months to 1 year) July 17, 2014
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"Took it off and on for 2yrs on the advice of my doctor and because of my age. I was told this was the best option for me. Had terrible deep itching it the injection site and painful welts. After stopping when I was pregnant and restarting symptoms were more pronounced and eventually went into anaphylactic shock. Fell over hit the side of my face and that's when I called it quits. It's been over a year and at this point I am choosing to stay off any of these medications. Not enough evidence to support the pros outweigh the cons."
Carbo32 (taken for 1 to 2 years) July 5, 2014
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"Copaxone 40mg, 3x a week: Shared Solutions is a helpline for Copaxone- they are AMAZING. They deal with Insurance (FYI: Anthem Blue Cross covers Copaxone;), pay copay!, send free supplies, send out a nurse to your HOME to teach you about using the auto inject making it super easy, and they have a 24/7 nurse hotline for questions. Its wonderful. Side effects: I really have none. Been using it 3 weeks, I get some little welts sometimes , but use a cold pack after for 15 minutes and that helps a lot. Also, Copaxone 40mg has ONLY a 2% chance of getting an immediate post injection reaction. Odds are, that will NEVER happen. After the first week of taking Copaxone, my foot felt less numb! Let taking injections EMPOWER you! You're taking control!"
LearningToRelax (taken for less than 1 month) May 26, 2014
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"Medicine appears to be effective. Injection sites are painful after injection, injection sites must be changed daily. Most approved injection sites can not be reached by user therefore requiring assistance."
katblue3 (taken for 1 to 6 months) May 11, 2014
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"Copaxone was working great for over 10 years, until the day came that my injection site reaction went anaphylactic. Not a pleasant experience, especially when health care providers (of which I am/was one) refuse to believe that the only potential exposure agent was Copaxone. I would be willing to give it another try (in a controlled hospital setting with emergency medicines on hand), but my neurologist and PCP won't let me. If you can take it, site reactions are the only problem I ever had, as they only occurred the last year I was on it. Side effects were virtually non-existent compared to the other ABC medicines and the new treatment modalities."
Bohemian Artist (taken for 10 years or more) March 24, 2014
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"I got diagnosed after numerous tests. I researched it and new I had Multiple Sclerosis, but Neuro just had to keep doing tests for months. I would get double vision about once a month and my stomach and left leg would go numb a lot. Finally was diagnosed and got on Copaxone and zero flare ups for 4 years. I also take multivitamin and 8000 IU of vitamin D per day. Get on Copaxone and take vitamin D if you get diagnosed."
Bdg83 (taken for 2 to 5 years) January 4, 2014
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"I was diagnosed with MS about 7 years ago and started on Avonex. The side affects were pretty severe for me, but I stuck to it for 18 months. I also formed new lesions and had brain atrophy. I switched to Copaxone over 5 years ago and I have had a much better experience. Copaxone has slowed the progression of the disease and in some areas the myelin has shown repair and regrowth! I have more energy and my balance has come back - I am able to ride my bike with ease again. I was able to stay on Copaxone through out my pregnancy and while I was breast feeding. I did this under the watchful eye of a high risk OB specialist and my neurologist. I was able to remain stable after my son was born with out any relapse. And he is perfect."
GreyEyedGirl November 14, 2013
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"I started Copaxone about six months ago. I had been diagnosed with MS 10 years ago but didn't take anything for it but a giant dose of B vitamins daily. Last December, I had my first real flare up and it was awful. The nuero told me I had no choice now, but to take something. So after researching with my husband, I decided on Copaxone. Do not give up if you just started and are having itchy bumps and stinging when injecting. It really did get better for me. I did have one incident of the chest tightness and anxiety which lasted about three minutes but only once. When I read the side effects from other drugs (Flu like symptoms and hallucinations!) I picked this drug. So far, so good. Neuro thinks I am not progressing at this point."
TiaNC (taken for 1 to 6 months) November 13, 2013
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"I have been on Copaxone for a week, side effects, gives me severe stomach pain, back and side pain and vomiting. I'm going to try and get through it this weekend. If symptoms persist, it will go in the trash and I will have my doc give me something new."
dawndee (taken for less than 1 month) October 5, 2013
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"I have been on this medicine for about 15 years now with very few flare ups. The down side to this medicine is the injection site but with that aside it has worked well for me."
sadermaxx (taken for 10 years or more) September 24, 2013
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"I had Multiple Sclerosis since I was 19. I'm 28 now I got on Copaxone, about 4 years, it took about 8 months seeing results only side effects was palpitations and a little panic attack, it was 2 minutes long but it felt like 20 minutes. That only happened once other then that I get redness around injection site. I like this Medicine because I feel that it has slowed my MS down And I haven't got sick since I feel like I got my life back."
Mylife1988 July 25, 2013
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"I have been on Copaxone for almost 10 years. I am very pleased with the results. Its the only medicine I have been on so I can tell you it works for me. Like some of the other reviews I have had a few issues but nothing I can't handle. One episode was after the shot, I had heart palpitations worse then usual. Only lasted a minute or two but felt like 20, soon after vomiting and headache.. slept it off and fine after. In all the years taking Copaxone the heart palpitations happened maybe 6-7 times. So I'm not going to complain. I grew up with an uncle that battled progress stage of Multiple Sclerosis. I wish Copaxone was around before his got to that stage. Thanks shared solutions for making my life easier."
punkysue (taken for 5 to 10 years) July 16, 2013
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"I've been on Copaxone since January 2012. I was diagnosed Dec. 2011. Copaxone has give me energy to do my daily duties. I still have a day or 2 in bed from time to time. The key to Copaxone working is to keep those D3 vitamin levels up. I go to pain management for combination of degeneration & Multiple Sclerosis pain. Family is a comfort & very needed for the emotional comfort of the disease. You have to balance medicine, family, God, love & friends. All of the above is a prescription to help manage MS more comfortably. Hope this will help others. Copaxone has been a real winner for me."
ncnoel July 10, 2013
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"I was diagnosed with Multiple Sclerosis Jan 10, 2012. Since being on Copaxone for one year, I haven't noticed any change in my symptoms. I have noticed they come every three months instead of monthly. Haven't seen a neurologist yet and hope no new lesions. I will say that I have experienced hair loss. I have never had a problem with hair loss other than cutting it off myself, but this has been on-going. At first I had the indentions, but was told by a MS nurse to try getting a massage. And that I have done. I get a massage on a weekly basis and it has taken the indentions away and it relaxes me. I have hope this medicine works for me."
TishaM May 29, 2013
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"After approx. 1 year of using Copaxone daily injections, my Neurologist is convinced that my Multiple Sclerosis progression has slowed down; if not, stopped progressing all together. My last MRI showed "NO NEW LESIONS", but up until then, my MRI's showed steady progression with "NEW LESIONS" every time. Copaxone has absolutely changed my life and I'm now living instead of just existing, but I'm worried about my recent weight gain (in the last year). "
evelyn1964 (taken for 1 to 2 years) May 17, 2013
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Learn more about Multiple Sclerosis
Micromedex® Care Notes:
Related encyclopedia articles:
- BAER - brainstem auditory evoked response
- Bowel retraining
- Cerebral spinal fluid (CSF) collection
- CSF oligoclonal banding
- CSF total protein
- Head MRI
- Lumbar MRI scan
- Multiple sclerosis
- Multiple sclerosis - resources
- Remembering tips
- Urinary catheters
Symptoms and treatment for:
Mayo Clinic Reference:
More about Copaxone (glatiramer)
- Other brands: Glatopa