The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
I was on Avonex for the first 7 years after being diagnosed. I would lose 1-2 days of every wk feeling lousy with flu symptoms. Had to switch to Copaxone (only non-interferon) after liver tests began showing Avonex was causing problems. Been on Copaxone for 4 years now and have not had any new exacerbations since I've been on it. Now I wish I hadn't let my fear of needles eliminate Copaxone from my list of treatment choices in the beginning. Now, giving myself the injection daily is no big deal.
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I have been on Copaxone for 5 months now after being diagnosed in June. The injections are easy, but the site reactions are awful. I get red, itchy and swollen at the site despite using heat, ice and the various adjustments of the needle depths as directed by the nurse. I also had a really bad reaction that included chest pains and what seemed like muscle spasms coupled with electric shocks in my joints which lasted about 30 minutes. I am going to continue for a few more months, but if there is no change, I'm going ask my neurologists about other options. I'm glad to hear that it works for others.
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I have R/R MS, and after having more than 2 relapses in 1 year, I was put on Copaxone. 3.5 years on I realise that this drug really suits me. The only problem with this medication is my poor memory, at least once per month I totally forget to administer my injection. This causes no exacerbations, and I feel so good on it. I had suffered for quite a few years before using this preparation, and it seems like a God send.
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I have been using Copaxone for almost ten years. In that time I have had maybe two flareups. I self inject. Found the auto inject hurt more. Skin irritation lasts less than half an hour. The only long term side effect is a loss of fat cells under the skin which cause slight indentations. I chose Copaxone after many hours of research and have never been sorry. I intend to continue using this drug until someone convinces me there is something better.
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My doctor let me choose which medicine I wanted to be on. After many hours of research I chose Copaxone. I absolutely love it. I self inject. I do not use the auto-inject. Less pain that way. I love it so much. Very easy to do - the only area I can't reach is behind the arms and my kids do those ones. Only site reactions. I feel great and look forward to many flare-free years.
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I have been on Auto Inject Copaxone for over a year now. I have just entered my second year. I may have the disease but it certainly does not have me. I feel great for most part. I get tired but I think that is from chasing my 9 yr old son. I have had swelling from injections but it disappears within 20 minutes. Arms seem to be the worst for me for injections.
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Taking shots everyday isn't great and the reactions to the shot sites are not always pleasant but there are no flu like symptoms and the results that I have had are wonderful. I've been taking it for less than a full year and the lesions on my brain and spine have all shrank, according to my last MRI a month ago.
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I have been on 3 different MS medications, Avonex was the first and I loved it. My husband gave me the shots. I had to stop because of insurance reasons. I later went on Betaseron and I loved it too, no problems with my MS on either one of them. I had to stop it because I got blood clot in my left leg in January of 09 and my Doctor said it could be from the Betaseron based on side effects so she put me on Copaxone. It is most painful of them all, where I take my shots from one week till the next, I am still in pain.
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Really nasty side effects - The injections are so painful that I had to find ways just to tolerate the pain. I put a Lidaderm patch on as soon as I take the shot. This helps with the pain, but then I get these large welts that last for days and are very itchy. I found a Lidocane cream to help with the itching, but suffer from having under the skin turn into a leathery hard tissue. These do heal, but the constant assault on my body has been a nightmare. I went off the drug, three weeks later had a serious relapse. I am back on the drug, I have tried everything, using the autoinjector, not using it - nothing really changes how the drug affects me.
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My doctor gave me my choices for what medicine I wanted to be on and I chose copaxone. I've been on it for 6 months now with little side effects. The biggest side effect I have is a skin reaction and that goes away in about 20 minutes and I haven't had another attack since I started it.
I was diagnosed with multiple sclerosis 2 years ago and this is the 1st medicine I've tried and hopefully the only! I've only had 1 relapse since I've been on it and only side effects I've had (other than the after shot reaction which I've had 2 times, and isn't as bad as it sounds if you know it can happen) are redness, swelling and itching at injection site and weight loss (which I'm not complaining about). Sure everyone's response will be different, just like MS is different for everyone, but I'm very happy with this therapy and got over the fear of needles quickly. Actually I feel empowered when I take my injection.
I have used Copaxone off and on for about 5 years. I don't like the injection sight reactions but they are small compared to some of the other treatments I have used. I was on Tysabri and it was great. I felt normal as before MS for about 2 weeks every month and 2 weeks waiting for the next infusion. Due to Liver problems my Doctor recommended I go back on Copaxone but with injections every other day. I have done this for 2 years and no relapse.
I was diagnosed with MS 10 years ago and started on Copaxone within a month. I chose Copaxone because it's a subcutaneous (tiny needle) rather than in the muscle injection and no flu like symptoms. During these 10 years, I have had only one flare-up. When I first started on the drug I had painful site reactions that lasted about an hour. After a couple of months these got less severe and soon became very mild and currently I have no injection site discomfort. I don't have much body fat and I suspect I was accidentally injecting into muscle tissue, which I understand can cause burning pain. Teva's Shared Solutions is a great and caring resource. Thanks Teva!
I have been on Copaxone for a month now and each day gets easier. At first the itchiness and red welt was not nice but now, after adjusting my injection depth and warming the area beforehand, I have very little problems with it. I inject first thing in the morning and then just get on with my day - seems like no big deal to me.
I've been on Copaxone for 2 years, and symptoms have gotten worst. I guess there's a reason the side effects make it so appealing to everyone. My doctor is finally changing it to another medicine, unfortunately due to severe liver side effects. I am in so much pain and fatigue everyday, I've lost so much of my life, my job, my social life. Trying to overcome this monster.
I have been on Copaxone now for about 10 yrs. I never tried any of the other medicines but can say that my MS has not reached a stage which has debilitated me so its reasonable to conclude this may be having some benefit.
Never had major side effects - recommended for RRMS.
I've been on Copaxone since the day I was diagnosed almost 10 years ago. I too had the choice of which medicine I wanted to take and I chose Copaxone, and I haven't looked back since. Yes, I've had occasional flare-ups, but nothing major. I could barely walk when I started and it got me back on my feet and back to work full-time.
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