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Amphetamine / dextroamphetamine for Narcolepsy User Reviews (Page 3)

Brand names: Adderall, Adderall XR, Mydayis

Amphetamine / dextroamphetamine has an average rating of 8.1 out of 10 from a total of 91 reviews for the treatment of Narcolepsy. 77% of reviewers reported a positive experience, while 11% reported a negative experience.

Reviews for Amphetamine / dextroamphetamine

  • Irish...
  • Taken for 1 to 2 years
  • July 23, 2016

Adderall XR (amphetamine / dextroamphetamine) "I use Adderall XR 20mg at morning wake up for narcolepsy and find it effective. It helps like nothing else to start a day off "awake" as can be. I am also prescribed 20mg IR taken twice throughout the day as needed. As well as Nuvigil (armodafinil) 150mg at night right before sleep. Balancing meds is vital for this disease. But back to the point Adderall XR is amazing."

10 / 10
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28 Report
  • Lexin...
  • October 9, 2020

Adderall (amphetamine / dextroamphetamine) "I have been soooo sleepy for the past 15 years of my life. I finally found a PA that listened to me about my sleepiness. She has been great. I can not afford the recommended sleep study. I am currently taking 10mg extended release. It has helped but I am still falling asleep at work. My PA will meet with me in after a month on it. I’m not sure if I need an increased dosage or if it’s not working on me. It’s a struggle still. I don’t want to feel hopeless that I can’t find help."

6 / 10
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15 Report
  • Chris...
  • April 30, 2015

Adderall (amphetamine / dextroamphetamine) "I have narcolepsy and I take 20mg three times per day of quick release tabs. Mornings are great but mid to late afternoon I tend to nap and then take my last dose after last nap. Adderall helps great for keeping me awake and alert."

10 / 10
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30 Report

Frequently asked questions

  • Sherri
  • Taken for 6 months to 1 year
  • October 8, 2019

Adderall (amphetamine / dextroamphetamine) "I was recently diagnosed with Narcolepsy in early 2019. I was started on Adderrall, but it took about 6 months to get the regimen that worked for me. I was quite sick at the stomach for about 3 months with nausea, and headaches. I take 30 mg at 9 am, and 10 mg at 1 pm. Finally, it's working well to a certain degree. I still need at least two naps during the day and have most of my energy in the morning and early afternoon. Come 7-8 pm, I'm literally exhausted. I realized how well the medication worked after I missed a dose. I wondered why I was yawning all day and barely able to stay awake. It was because I had forgotten to take my Adderrall. Despite how well it works, I still seem to yawn almost constantly. I would not be able to get through the day without it. It's not 100 percent fix, but I can function for most of the day using it. So, that's a plus for me."

9 / 10
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  • Mjferg
  • Taken for 1 to 6 months
  • July 15, 2016

Adderall (amphetamine / dextroamphetamine) "I was diagnosed as narcoleptic at the age of 50 following my diagnosis of sleep apnea. I first tried Provigil and it was a game changer. I had spent the last 30+ years developing my own coping mechanisms to mitigate my EDS. After 6 weeks on Provigil I experienced progressive allergic reactions to the drug and sadly had to quit taking it. When I reported this back to my Sleep Doctor, he put me on the time release 20 mg of Adderoll. Love it!!!! I do get sleepy late afternoon....might need to take a second dose...will discuss with my doctor. My daughter was diagnosed with severe Narcolepsy and cataplexy about three years ago. She also had Graves Disease. She recently had her thyroid removed and just started daytime meds."

10 / 10
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Are you taking this medicine?

  • Lily
  • Taken for 6 months to 1 year
  • October 31, 2015

Adderall (amphetamine / dextroamphetamine) "Took methylphenidate SR (Ritalin sustained release) 100 mgs a day for years for major depression, was still tired, could still sleep at anytime, but not too bad. Dr retired, new Doc doesn't want to prescribe that he switched script to Adderall 90 mgs a day. Worked at first but not well, now it is worthless. I can hardly get out of bed and it is almost impossible to stay awake all day. Did the Sleep Study a few weeks ago and Dx with Narcolepsy w/o cataplexy, prescribed Modafinil to take with the Adderall, a little better. In my case the Adderall must go. Very good that it works for others, as no one wants to feel like they are sleeping their life away."

1 / 10
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  • trace...
  • Taken for 1 to 6 months
  • May 17, 2017

Adderall (amphetamine / dextroamphetamine) "I have been taking Adderall for now 5 months. This medication has completely changed my life. It is one of the most effective smart drugs out there. Adderall Improves concentration and ability to focus on your work. I suffer from Narcolepsy. I take 30mg adderall after a weak. It works very well. I have personal experience with the Adderall is absolutely great for me!"

10 / 10
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22 Report
  • Joseg
  • November 17, 2013

Adderall (amphetamine / dextroamphetamine) "In school I could not focus and went through bad moments that I will never forget. Writing this I can still picture all of those who made disgusting gestures because I would leave group projects 1/2 way. Through high school I was in the verge of failing, although, my commitment and dedication to reach the dream of going to college, kept me strong."

10 / 10
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30 Report
  • Anonymous
  • July 7, 2009

Adderall XR (amphetamine / dextroamphetamine) "Works wonders for me. I still occasionally have some daytime sleepiness, which I can handle with a quick 5 minute nap, but it has gotten rid of the Cataplexy. I really had a problem with symptoms of cataplexy. If I laughed, got mad, or was emotional in any way, I would end up on the floor. I rarely have any of these symptoms now, which is a miracle for me. I do have two side effects, one is that I can become pretty irritable and the second is that I get a bit more aroused."

9 / 10
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  • Mark
  • Taken for 1 to 6 months
  • November 17, 2021

Adderall (amphetamine / dextroamphetamine) "I was diagnosed with Idiopathic Hypersomnia and ADD in May, and this was taken with Modafinil twice a day (10mg). While Modafinil is a different story, Adderall has been wonderful for me. I take Amphetamine Salts and those worked a lot better than the generic, Dextroamp-Amphetamine. It's a nice boost in wakefulness and it's changed my life being able to finally focus on daily activities, and classes too. I'm quitting Modafinil because it interferes with my asthma and really screws with my heart rate, and will look into either 20mg twice a day, or maybe even Adderall XR. But the Salts have worked great for my sister, and same for me!"

9 / 10
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  • Myst
  • Taken for 10 years or more
  • August 9, 2019

Adderall XR (amphetamine / dextroamphetamine) "I grew up taking Adderall since elementary school, but tappered off all medications shortly after reaching legal age. I was convinced that it was all in my head and that I simply had to learn to cope with life like a "normal" person. However, when my inability to stay awake for a whole day continued to persist years later (and catching myself nodding off behind the wheel with a child in the back seat), I realized I couldn't let pride get in the way of treatment. I may still be drowsy throughout the day, but I can stay awake for more than a few hours at a time again. I can't say if or how Adderall affected my libido, having started taking it before puberty, but I am glad I am not bothered with urges more frequently than once or twice every few years. Ultimately, Adderall XR has saved my life in more ways than one. It may not completely prevent me from falling asleep while relaxing during down time, but it does at least help me stay awake when I have something else to focus on."

8 / 10
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  • Suthe...
  • November 25, 2020

Adderall (amphetamine / dextroamphetamine) "Adderall worked well for a year then it wore off even with medication free holidays. When trying a new medication and stopping I didn’t realize how out of breath it was making me, I thought it was because I was fat."

3 / 10
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10 Report
  • Sapp
  • Taken for less than 1 month
  • July 17, 2019

Adderall (amphetamine / dextroamphetamine) "Thank goodness for Adderall it has changed my life for the better - I take it for narcolepsy. I needed it. I was taking Ritalin then pharmacy changed brands from the yellow pills to blue and they didn't work anymore. I take 20 MG's. daily."

10 / 10
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13 Report
  • Tvano
  • Taken for 1 to 2 years
  • April 18, 2018

Adderall (amphetamine / dextroamphetamine) "Able to make it through the day without becoming sluggish most if the time. Needed to cut back dose during light season which impacts severity. Anxiety, inpatience, frequent blood pressure increase becoming bothersome after 2 years. Not sure what to ask for."

8 / 10
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  • Older...
  • December 4, 2009

Adderall XR (amphetamine / dextroamphetamine) "I have used Adderall XR for almost 5 years for narcolepsy, and find it to be most satisfactory. I still fall asleep on occasion, but feel the need ahead of time, and can take a quick nap, and wake fully refreshed. Adderall improved my libido, but contributed to ED problems due to blood vessel constriction, resulting in the need for daily Cialis, which keeps everything in balance."

9 / 10
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24 Report
  • Mike...
  • Taken for 10 years or more
  • March 5, 2021

"I've been on adderall 20 mg 3× a day for over 10 years from secondary narcolepsy due to a TBI. I will only take Teva there plenty of generics that don't work and are less than a 10% out of 100% I got these I think Mallinckrodt U30 on it I tried returning it after taking 3 and falling asleep they wouldn't return so I took about 7 more just to get home from the pharmacy 1hour drive without passing out it did nothing. If I took 4 Teva I'd bounce off the walls won't sleep for at least 1 day. I will never again take anything besides the Teva after sleeping for the remainder of the month. I wish I could afford the brand name. Don't listen to any pharmacist generic aren't close I can't believe they get away with saying there same as brand lol body doesn't lie. Scumbags looking for profit due not caring who suffers"

9 / 10
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7 Report
  • LGano
  • September 23, 2019

"I have been on generic Adderall (dextroamphetamine -amphetamine) for about a year and a half. I have always got the Teva brand with no issues. But in the last couple months I have noticed it not working as well. I just filled my script last week and they are even worse! I keep dozing off at work and back to taking naps in my car on lunch again. It's very frustrating! I take 30mg twice a day for narcolepsy. Last month during to the shortage on 30mg my script was shorted by 9 pills. This time the manufacturer was Alvogen and they were amazing! Only time I came across this manufacturer. I wish my insurance would cover the brand name. They denied me even with my doctor's appeal."

1 / 10
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9 Report
  • Lannett
  • Taken for 1 to 6 months
  • August 20, 2021

Adderall (amphetamine / dextroamphetamine) "I have been taking generic Adderall for many years and have never had any problems until I started taking the Lannett generic. It does not seem at all to be working and it actually makes me drowsy. It also caused sores inside my mouth."

2 / 10
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5 Report
  • E344 ...
  • Taken for 2 to 5 years
  • June 10, 2023

"I take my medication every day. I went and took my drug test today since I’m in a contract. Amphetamine was negative!!!! I noticed several times that I was not getting any results after taking it. Mine is obvious because I pass out without a reason if I do not have medication to stimulate my brain to stay awake."

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  • seawife
  • Taken for 6 months to 1 year
  • September 12, 2016

"ive been taking this med for awhile now'' the pharmacy change it'' to the very lowest cheap genaric they bought and made a HUGE PROFIT ON THE CHEAP STUFF. my goodness i didnt look at the bottle i kept fallen sleep while driving my kids to school ect'' i couldnt stay awake' 30 mg of the right med was helping me stay focus and alert for sure awake'' cvs , wal mart ect'' if u get ur meds plz ck and c if you got the ones ur dr. prescribed'' it didn't dawn on me for about month' I thought was over working, but i wasnt'' I was getting depressed, and moody'' I looked at the bottle and brought it back to THE drug store and never went back, take care all u good ppl that have disorders' we cant help what we're deal with'' Peace And LOVE' Sharon'"

10 / 10
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9 Report
  • Barbara...
  • Taken for 2 to 5 years
  • August 26, 2017

"This particular brand - Mylan does not work on me. I didn't know why I kept falling asleep but learned each manufacturer uses different inert ingredients. I remember the orange oval ones worked the best. Does anyone know which pharmaceutical company makes it so my pharmacy can order that one specifically for me?? Thank you."

1 / 10
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  • Sojrn
  • Taken for 1 to 2 years
  • October 5, 2012

"I fall between fatigue and narcolepsy. I've been this way for about 15 years. Thought I was just a sleepy person. Then my doctor suggested I might have sleep apnea. So I went to a sleep specialist and had the test. Mild results (6x an hour). She put me on a C-PAP machine and after a few months there was no improvement in my EDS. First there was Provigil which made me fall asleep a few hours after taking. Then on to Nuvigil which wasn't strong enough. Tried Ritalin next and the crash was too severe. At my suggestion the doctor prescribed dextroamphetamine salts and it has helped immensely. No more falling asleep at traffic lights, at the office or after work (no more strain on my marriage). I take 2x 30mg a day with zero side effects."

10 / 10
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  • Poppy...
  • Taken for 1 to 6 months
  • July 4, 2022

Adderall (amphetamine / dextroamphetamine) "I'm from the UK, and it's called Elvance but it is the same medication. I first started on the lowest dose and worked my way up, 20mg, 30mg, 50mg and then 70mg. For a long time I was on 70mg, trying to figure out what works best for me to stay awake. And it did keep me awake for school, however I was still very tired after and would often nap so my Doctors decided to start giving me Sodium Oxybate (Xyrem). Whilst on Sodium Oxybate, I lost a lot of weight going from 10.6 stone (67kg) to 8.13 stone (51kg). This meant that the 70mg Elvance I was taking was making my body work too well and I kept getting a fast heart rate whilst resting. It was quite worrisome since I've never had symptoms like this before. My doctors have took me down to 50mg, however my heart rate still goes up for no reason eg. today I was sat on my computer with 60bpm when my heart rate started going up to 132bpm which lasted for minutes. It's definitely something I am looking into, but I assume it's the stimulants."

7 / 10
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2 Report
  • old...
  • April 19, 2016

"I was ready for the nut house, when finally diagnosed with narcolepsy. I would need to take a 10-15 min nap every 45 min. I would start feeling like throwing up and fainting. I had losed my ability to function, think or anything else. I could not drive, as I would nod out constantly, within the first mile. I could not even do basic thought process like addition/subtraction in my head. After the first dose, I felt immediately better. I could make it thru a normal day, without falling asleep. Even better, my thought process came back. I could figure things out, understand things. and I could drive without nodding out. I have been on this for a year. same dosage, I stop for a day or two every 3 mths. as instructions say."

8 / 10
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  • aslhy...
  • August 7, 2011

"I am 27 yrs old. I've been on Adderall since 21. I was diagnosed with narcolepsy, cataplexy, sleep paralysis, sleep hallucinations, etc. I have such scary dreams, lose my muscle control and fall asleep out of nowhere. After trying several things Adderall was the ONLY thing that eased my symptoms. BUT it is hard to take as directed. And running out makes for a bad time. Running out throws me into more frequent and severe sleep fits. I also get prescribed hydrocodone. I don't promote people to take pain medicines but Adderall does make my body/muscles tense and sore at times. So it takes the pain and edge off the negative symptoms of the Adderall. Dry mouth is also a negative symptom but I'm used to it now."

9 / 10
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8 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.

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