Sorafenib User Reviews & Ratings
Brand names: Nexavar
Sorafenib has an average rating of 5.4 out of 10 from a total of 14 reviews on Drugs.com. 31% of reviewers reported a positive experience, while 38% reported a negative experience.
| Condition | Avg. Rating | Reviews | Compare |
|---|---|---|---|
| Hepatic Tumor | 2 reviews for Hepatic Tumor | 1 medications | |
| Hepatocellular Carcinoma | 9 reviews for Hepatocellular Carcinoma | 10 medications | |
| Thyroid Cancer | 1 reviews for Thyroid Cancer | 25 medications | |
| Renal Cell Carcinoma | 2 reviews for Renal Cell Carcinoma | 21 medications | |
| Add your review | |||
Reviews for Sorafenib
- LACHA...
- November 14, 2011
Nexavar (sorafenib) for Hepatocellular Carcinoma "I'm a female that has been taking this nexavar for 1 and half years now. I have continued to work full time. I have some side effects but nothing I cant handle. That's just a small price I have to live with for as long as I can. Just hang in there, it has been working for me."
- 2...
- March 8, 2010
Nexavar (sorafenib) for Hepatocellular Carcinoma "I've been on this medication now for 11 days and on the 10th day I got a bad rash on my whole body from neck to toe. I've stopped the medication and will continue when the rash goes away. I also have had my blood pressure raise quite a bit. I don't really like the way the medicine makes me feel but if it will give me a few more years on this earth I guess I can make a go of it!"
Frequently asked questions
- How does Nexavar work? Is it a chemo drug?
- Is Nexavar cost covered by Medicare?
- How effective is Nexavar? Does it shrink tumors?
- Lenvatinib vs sorafenib: for first line treatment in HCC?
- Scott...
- March 16, 2012
Nexavar (sorafenib) for Renal Cell Carcinoma "I have been taking Nexavar now for about 5 months and the only side effect currently is the dry skin and peeling skin on my hands. Initally after 2 weeks of use I developed a rash but pushed through it and the rash diminished after a few more weeks. I initally went through a normal chemo regimen for a little over a year as I had my right kidney removed for cancer in 1987 and wasn't about to have to go on dialysis for the rest of my days. I was diagnosed with renal cell cancer in Aug of 2010 and no it has spread to some lympth nodes and my left lung. After starting Nexavar my lung tumors have slightly diminished in size so hopefully it will allow me to hang around a few extra years. I work full time and travel extensively, so everyone be positive."
- Anonymous
- Taken for 1 to 6 months
- January 26, 2020
Nexavar (sorafenib) for Hepatocellular Carcinoma "My husband was treated for almost 3 years for liver and bladder cancer. He died after about a month on Nexavar. Causes of death were pneumonia, blood clot on the lung, sepsis, and of course liver cancer. I blame Nexavar for his death. Ironically just a few weeks prior to death his bladder cancer was complete gone."
Are you taking this medicine?
- Becky...
- July 30, 2011
Nexavar (sorafenib) for Thyroid Cancer "I have been on 800mg of Nexavar for thyroid cancer since 6-15-2011. Have had issues with the hand/foot blisters, thinning of hair, and diarrhea and blood pressure. My Oncologist has had me back off the pills several times to try and alleviate some of the blisters, but am off work and decided to just deal with it while off. As of 7-30-2011 the blisters have stopped, but I deal with the peeling and re-peeling of my skin. On blood pressure medicines now and have pills for the diarhea. No appetite loss, and thankfully no nausea. A visual inspection from my Oncologist approx. 1 month after beginning the treatment determined that the pills may be shrinking some of my tumors."
- Betow
- Taken for 5 to 10 years
- December 12, 2015
Nexavar (sorafenib) for Renal Cell Carcinoma "I have taken Nexavar for almost eight years, with stable disease. The most on going side effect is only the bottoms of my feet bother me, like they bother a diabetic, I have to buy cotton socks, and they bother me during each season than there ok after a few weeks. I have worked five days a week, this whole time and only missed a day because of a doctors appointment every three months."
- Cdav
- January 19, 2018
Nexavar (sorafenib) for Hepatocellular Carcinoma "Was on Nexavar since May 2017. Basically stymied growth until Jan 2018. Side effects included diarrhea, hand/foot syndrome (dry skin) and some dry patches on face. That reduced when dosage reduced from 800mg/day to 600/mg day. Significant weight loss (about 100 lbs), but been consistent past 3 months at about 215. Wished it would have continued to work. Next up is Stivarga...starts 1/19/18. Overall side effects easy to handle. Copay assist card from mfg was nice.8"
- Henry...
- Taken for 1 to 2 years
- September 17, 2017
"March 2016 diagnosed with Acute Myoid Leukemia mutated gene FLT3. Full chemo treatment and after 5 months started on Sorafenib 400mg per day. Still in remission September 2017 . Loss of weight and bowel probems, loss of muscle strength. Since I cannot be cured at least Sorafineb is keeping me alive for as long as it will last. Bloating and tender skin hands and feet using lots of Aveeno lotion. Drug supplied on a compassionate basis."
- Mannex
- Taken for 1 to 6 months
- September 29, 2020
Nexavar (sorafenib) for Hepatocellular Carcinoma "My wife used nexavar in 2013 for 2 months and 13 days due to HCC liver cancer. Tace was done initially. Then Nexavar suggested by doctor. My wife died in March 2013. Please don't use this passage which goes to graves."
- paddy...
- Taken for 1 to 6 months
- June 14, 2012
Nexavar (sorafenib) for Hepatocellular Carcinoma "I have been taking Nexavar since May 5/12. I have tenderness in my hands and feet and dry skin. Energy level is good."
- kkano
- Taken for 1 to 6 months
- May 22, 2020
Nexavar (sorafenib) for Hepatocellular Carcinoma "Used Nexavar for hepatocellular carcinoma and I thought it was poor. Many side effects and major weight loss. No impact on tumor growth"
- dfpm
- February 26, 2017
Nexavar (sorafenib) for Hepatic Tumor "My father died just in his fist month with this medication. Too much side effect and he was feeling well before the medication and as soon he started he died."
- Jana
- July 17, 2017
Nexavar (sorafenib) for Hepatic Tumor "This medication nearly killed my grandmother. Way too many side effects-this medication did not agree with her body. Really took a toll on her health overall."
- Anonymous
- Taken for 1 to 6 months
- October 29, 2016
Nexavar (sorafenib) for Hepatocellular Carcinoma "Not too much side effects, dry skin."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Nexavar (sorafenib) for Hepatocellular Carcinoma "I have been using Nexavar for Hepatocellular Carcinoma for nearly a year, I did develop a skin rash but nothing too distressing. I had slight hair loss and thinning but its starting to grow back. I also developed mild colitis but have found Omeprazole helps really well. I also have insomnia but my doctor prescribed sleeping tablets which I use occasionally. Apart from occasional tumor pain I feel great, and I am on the maximum dose. The tumor has shrunk considerably and is now stable, my blood tests are normal."