Pirfenidone and Constipation: What Users Say

• don...
• Taken for 1 to 6 months
• January 24, 2021

Pirfenidone for Idiopathic Pulmonary Fibrosis "I was on pirfenidone for 6 months. Terrible side effects - sunburn, constipation, loss of taste and smell leading to loss of appetite and weight. Lots of coughing, tiredness, and generally feeling unwell. One night I could hardly breathe because of chest pain, so I stopped treatment. Been off it for several weeks now and feel a lot better, although still coughing a lot in cold weather. Consultation coming up, so let's see what the next option is."

• Anonymous
• September 30, 2020

For Idiopathic Pulmonary Fibrosis "Delayed reaction, severe sunburn rash - I was okay for several weeks, then suddenly 'wow'. The top of my bald head and amazingly, on the back of my hands, which I have never protected!! Fortunately, there wasn't much sun (UK weather), and I wore long sleeves. Lower abdominal pain - dull a lot of the time - severe occasionally. Moderate constipation. Moderate tiredness and weight loss. Can't believe I might have to take this stuff permanently."

• Anonymous
• Taken for 1 to 6 months
• August 1, 2020

Pirfenidone for Idiopathic Pulmonary Fibrosis "On Esbriet, my side effects were constant headaches, runny nose, sneezing, sore throat, constipation, bloating, nausea. Not worth the money."