Everolimus for Organ Transplant, Rejection Prophylaxis User Reviews
Brand names: Afinitor, Zortress, Torpenz, Afinitor Disperz
- Lau...
- Taken for 1 to 6 months
- May 9, 2022
"I was prescribed 3 mg/day, but after 10 days, I was in such a down with the immunity, my mouth full of sores and my joints in pain, also an acute depression state and hair falling, that I had to go down to 1 mg. The same symptoms continued, especially extreme fatigue and sleepiness, so now I take just 0.5 every 3 days. I feel much better, and it works for my condition. I feel that I could take it even once a week. We'll see. Good luck to everybody."
- Moh...
- October 11, 2020
"Helped me reduce tacrolimus and wean prednisolone. Safer to kidneys and no digestive issues like mycophenolate. But one downside is it is expensive."
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- How long can you take everolimus?
- What is everolimus used for and how does it work?
- mis...
- Taken for less than 1 month
- November 3, 2020
"At first, everolimus was okay, but after a few weeks, I developed bad sinus issues, flu-like symptoms, a heavy head, fatigue, and itching. Very strong drug and expensive as well."
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Afinitor, Zortress, Afinitor Disperz
Everolimus "This is an exceptionally good drug for liver transplants. In fact, it is a monotherapy for me. One of the big selling points is that it does not create problems with kidneys, heart, lungs, etc. as other drugs can and do down the road. I started with 6 mg/day - went through an acute rejection at 6 weeks post-transplant (jumped up to 8 mg/day and steroids) and weaned back down to a monotherapy and 6 mg in the first two years. After it was discovered that this drug had no impact on my neuroendocrine tumor progression, I quit the study and found a physician who would work with me to lower this drug. I am currently on 2 mg (subclinical dose) and doing fine, 8 years post-transplant. I recommend this drug and say just be patient if you are a new transplant person. After about 1.5 years, push to get off all other drugs except this one, you will have fewer problems in the long run."