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Everolimus for Organ Transplant, Rejection Prophylaxis User Reviews

Brand names: Afinitor, Zortress, Torpenz, Afinitor Disperz

Rating: 6.5

Everolimus has an average rating of 6.5 out of 10 from a total of 4 reviews for the treatment of organ transplant, rejection prophylaxis. 50% of reviewers reported a positive experience, while 25% reported a negative experience.

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  • WLJ...
  • Taken for 5 to 10 years
  • November 28, 2019

Everolimus "This is an exceptionally good drug for liver transplants. In fact, it is a monotherapy for me. One of the big selling points is that it does not create problems with kidneys, heart, lungs, etc. as other drugs can and do down the road. I started with 6 mg/day - went through an acute rejection at 6 weeks post-transplant (jumped up to 8 mg/day and steroids) and weaned back down to a monotherapy and 6 mg in the first two years. After it was discovered that this drug had no impact on my neuroendocrine tumor progression, I quit the study and found a physician who would work with me to lower this drug. I am currently on 2 mg (subclinical dose) and doing fine, 8 years post-transplant. I recommend this drug and say just be patient if you are a new transplant person. After about 1.5 years, push to get off all other drugs except this one, you will have fewer problems in the long run."

10 / 10
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  • Lau...
  • Taken for 1 to 6 months
  • May 9, 2022

"I was prescribed 3 mg/day, but after 10 days, I was in such a down with the immunity, my mouth full of sores and my joints in pain, also an acute depression state and hair falling, that I had to go down to 1 mg. The same symptoms continued, especially extreme fatigue and sleepiness, so now I take just 0.5 every 3 days. I feel much better, and it works for my condition. I feel that I could take it even once a week. We'll see. Good luck to everybody."

5 / 10
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1 Report
  • Moh...
  • October 11, 2020

"Helped me reduce tacrolimus and wean prednisolone. Safer to kidneys and no digestive issues like mycophenolate. But one downside is it is expensive."

9 / 10
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Frequently asked questions

  • mis...
  • Taken for less than 1 month
  • November 3, 2020

"At first, everolimus was okay, but after a few weeks, I developed bad sinus issues, flu-like symptoms, a heavy head, fatigue, and itching. Very strong drug and expensive as well."

2 / 10
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Reviews may be edited to correct grammar/spelling or remove inappropriate content. Reviews appearing to come from parties with a vested interest are not published. This information is not intended to endorse any medication and should not replace the expertise and judgment of healthcare professionals.