User Reviews for Everolimus to treat Breast Cancer
Also known as: Afinitor, Zortress, Afinitor Disperz
Everolimus has an average rating of 4.6 out of 10 from a total of 10 ratings for the treatment of Breast Cancer. 40% of users who reviewed this medication reported a positive effect, while 60% reported a negative effect.
Afinitor (everolimus): “I have been taking Afinitor for about 2 weeks. Just feel I cannot continue in with it, feeling like my heart is racing for hours after taking it, it feels close to a panic feeling. No mouth sores(yet) doing the steroid mouth swish as ordered. However, I suddenly have a cluster of large pimple like sores on inner thighs, my skin in general feels very dry. I just cannot deal with sores and am terrified they will become wide spread. I was on Ibrance a year and then it stopped working. The only side effect was fatigue, that I can deal with but sores - no. calling my doctor and telling him the side effects are too much! Give me a med that has fewer serious side effects! I have not taken it long enough to evaluate if it is even being effective. Just no the side effects have begun right away.”
Afinitor (everolimus): “It was the worst experience ever with this medicine , I DO NOT RECOMMEND it at all , Please don’t take it , this is a TOXIC medicine , my mum used it , it caused her lung problems, lung embolism, lung inflammation, & MALIGNANT LYMPHOMA, and she dead after using this TOXIC medicine. She used the 10 mg from March to May , than 5 mg from May to June and she stopped it after suffering from allergy , she lost over 27 kilograms in a short period .”
“Sorry but after 69 days had to stop. Based on genomic testing this drug was used to treat platinum-based resistant ovarian cancer with pleural effusion. I suffered insomnia, indigestion, lack of energy, dry skin. My pleural effusion did not improve and this drug made it worse. My CA-125 tripled under this drug. It just did not work for me despite genomic testing. Glad to hear it helped others though.”
Afinitor (everolimus): “I was one of the few people who could not take it. It attacked my body along with the cancer. Quit taking it after 2 months but it would not flush from my system. My skin was bad from dehydration as it did not allow my body to absorb moisture in my arms and legs. My skin looked like parchment with nothing under it but bone and a little flesh. Lost over 20 pounds in about a month. Finally my regular doctor put me in the hospital -as I found some men in Australia had to do. I was given I.V's for 5 days and am feeling much better. It is a good medicine but some people just cannot take it.”
Afinitor (everolimus): “I've been taking it for 5 months. After 6 weeks on 10 mg my lymphedema arm got infected & real swollen--I was told it was shingles & Lyme disease. After 2 rounds of antibiotics I went back on 5 mg. My subsequent scans show liver mets decreasing. My insurance cap was exceeded after 1 month($$$), but I qualified for a Novartis program for free medicines--check it out. Side effects on 10 mg were intense--like chemo. 5 mg is much more tolerable, still I must take Protonix every day for gastric upset. And I get really itchy.”
Afinitor (everolimus): “Stage 4 with lymph and bone bone metastasis. Never on infusion chemo due to my autonomic diabetic nerve damage. Hormone treatments failed. Tamoxifen gave me terrible forgetfulness. Took Xeloda. At 6 months scan showed cancer gone except in giant ulcer on chest. Then Xeloda failed and cancer spread rapidly. Affinitor worked quickly with visible changes in two weeks. Four weeks ulcer showing definitely better . Been about 5 months. Cat scan showed no cancer active. Ulcer a third smaller and still healing. Cancer itching totally relieved although some iching as larger tumors heal. Had some nose slight bleeding issues early on but with summer humidity no problem. Chronic slight cough and congestion. Short of breath but can walk.”
Afinitor (everolimus): “Although the medication did effectively treat my cancer the side effects were so severe that I decided to discontinue use of the drug and try an alternate treatment. Skin rash started on my hands initially and spread to my entire body causing severe itching and scratching which led to something looking like opened bug bites all over. Severe gum irritation described by my dental hygienist as your gums are flapping in the wind, also red swollen gums which caused me to be unable to eat anything not soft. Lost 10 lbs the first two months. Also projectile vomiting, diahrea and nausea. At three months I found it had made me diabetic and raised my triglycerides to over 500. That's when I opted to stop treatment.”
Frequently asked questions
- How long can you take Afinitor for?
- How much does Afinitor cost per month?
- How long can you take everolimus?
- How does Afinitor work?
Afinitor (everolimus): “Dont have any side effects, only mild tiredness. Been taking it for three weeks.”
Afinitor (everolimus): “Within 7 days of taking Affinitor the fluid in my lung decreased.”
Afinitor (everolimus): “On this drug for 2 weeks, had severe side effects, swelling of both hands, rash,and small bubbles started appearing (pop it like water). now its on both feet,arm pit. I had to stop taking it.”
Afinitor (everolimus): “Although the medication did effectively treat my cancer the side effects were so severe that I decided to discontinue use of the drug and try an alternate treatment”
This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.
Learn more about Breast Cancer
IBM Watson Micromedex
Symptoms and treatments
Drugs.com Health Center
- Breast Cancer Guide: Causes, Symptoms & Diagnosis
- Breast Cancer: Treatment and Prevention Options
Mayo Clinic Reference
More about everolimus
- Side Effects
- During Pregnancy or Breastfeeding
- Dosage Information
- Drug Images
- Drug Interactions
- Pricing & Coupons
- En Español
- 23 Reviews
- Drug class: mTOR inhibitors
- Patient Information
- Everolimus (Advanced Reading)
- Everolimus Tablets (Afinitor)
- Everolimus Tablets (Zortress)
- Everolimus Tablets For Oral Suspension