User Reviews for Afinitor to treat Neuroendocrine Carcinoma

“I started taking Afinitor on 20 May 2016, and I've given the drug a 9 because I'm still very much alive, able to work (computer work), take a 25-minute walk every day, and receive visitors. I have had side effects, including diarrhea, neuropathy (feet and ankles), loss of energy, and mouth sores (very infrequent now). I take paracetamol (6 x 500 mg daily) for pain. My tumors (lung and liver) shrunk a tiny bit and then remained the same. I have CT scans, x-rays, blood and urine tests. My appetite is good. I do not live in the USA.”

“I started this April 2016 the side effects did not start until June. It started with diarrhea, then hemorrhoids ,then itching, weight loss, loss of appetite. I kept telling my doctor something was wrong but he told me to eat anything I wanted but the final situation was I got an infection in my right eye I was in hospital for 10 days. He only came once to tell me to stop taking the Afinitor. Upon release I had to go to a doctor who specializes in infectious diseases for 2 months and this was everyday. Weight wise I went from 162 to 124 I am now just skin and bones also the tumor just kept growing I went to another cancer doctor he performed surgery to remove the tumor. This medication is the worse”