Tegretol User Reviews & Ratings (Page 4)

• Slats
• Taken for less than 1 month
• January 10, 2022

For Trigeminal Neuralgia "Diagnosed 3 weeks ago. I have secondary progressive multiple sclerosis and have just learned that it's common for MS sufferers to get Trigeminal Neuralgia. I started on 50mg Tegretol twice daily which worked immediately and without any side effects and it stopped the painful spasms. I was meant to increase to 100mg twice daily on the third week but I was confident that I would be ok at that dose but on the 13th and 14th day I started to get a few minor jolts so I have upped the dose to 100mg twice daily. The immediate side effect is that it works like a muscle relaxant similar to baclofen or lyrica. I find it difficult to walk or stand but I can eat without any jolts so time will tell! Take care my friends!"

• saburna
• Taken for less than 1 month
• December 5, 2016

For Bipolar Disorder "As I've only been on the medication a week, don't take this review exactly to heart. My first day on this medication was extremely brain foggy, trouble concentrating and very sleepy. I was already sleeping excessively to begin with, which is something I was needing help with. The first night I took this I slept for 14 hours, which is actually way more then I usually do. I also didn't really feel like myself taking this medication, it kinda sucks the life right out of you. I would reply slower to things, take longer to think of responses, and all in all lack the normal enthusiasm I usually had. Now, as far as my mood swings went, I believe I have a mild case of bipolar. My doctor prescribed me 200 mg twice a day, which I've just been halfing"

• Twist...
• August 13, 2014

For Epilepsy "Began taking Tegretol in 1986 along with Epilim, had the op in 1991 and have remained on Tegretol since. Somethings I have noticed over the years although I don't have any medical evidence to back this up only self observation are. Massive increase in body hair. Not on the head but over the rest of the body. Most of my nails split down the centre of the nail. As for controlling my epilepsy can not say they really did, prior to my operation, at first all was hokey dorey, then the body seemed to get used the medication and as a result the dose increased. Today 24 years after the operation I remain on 1200mg a day. Seizure free, thanks to the opp, although i do remain on the tablets."

• dskel...
• June 13, 2008

For Epilepsy "After being on this medication for seven years I am still having break through seizures. I have now developed lucopenia as I did with Depakote. Now I have to go through the trial and error of finding a new medication."

• Gunz
• Taken for less than 1 month
• April 21, 2016

For Epilepsy "I also suffer from bipolar 1 disorder and chronic pain. The drug so far has made me eerily calm and it's almost like I'm high all the time. So far so good... It has calmed my mania down since I am rapid cycling. Also my short term memory hard been affected. I am a Veteran as well."

• stex
• July 17, 2016

For Epilepsy "The XR seams better than the traditional form used in the 80s that resulted in sodium depletion. This form causes twitching, sporadic and rapidly occurring tremors that make sleeping difficult, increased urination frequency, some minor dizziness at first, and possibly elevated skin sensitivity to sunlight."

• Lovies
• Taken for 2 to 5 years
• December 26, 2019

"Hi I been drinking Tegertol, since I was very young. It assist me for my manic episodes, to be satisfied and excited. Before I had a hard time, at school problems of my academic performance was very poor Still I was in a treatment with Epilim but it wasn't working instead it made me even worse. Causing me to have depression mood and manic episodes at the same time . Been very tearful and loneliness also sad at high school those previous years 2014-2016 Now that I am on Tegretol is the best medication that is suitable for me. Now I am stable in condition. Balance of my manic episodes and depressed."

• Brand...
• Taken for less than 1 month
• September 7, 2021

For Trigeminal Neuralgia "Ive been living with TN for a month. I have MS as well (19+ years). ER visit put me me on Tegretol 600 mg a day. Just want to go back to same strength I had before Tegretol. Will have to wait and see. No pain of TN in meantime. Will take the muscle weakness for now."

• Anonymous
• December 8, 2008

For Epilepsy "My neurolgist just discovered I had seizures about a month ago and it has been constant trial and error finding a medication that will work. I was taking 600mg of Tegretol for the last week and I developed a awful red rash and itching all over. My doctor has changed me to dilantin today and I hope I do better on that. Keppra was the first drug and that didn't help."

• Anonymous
• April 9, 2009

For Epilepsy "I have been diagnosed with absence seizures for 6 years now, and have been taking Depakote ER. I have been seizure-free for 4 years, but have had severe migraines on and off, usually more during times of intense stress. My doctor prescribed me Tegretol to take as needed for them about a year ago, and it has always been 100% effective. The only side effect is that it makes me very drowsy."

• twatf...
• December 4, 2011

For Dystonia "Found it ineffective for facial spasms. Patients must get liver function tests while they are on this medicine. I believe other dystonia sufferers have had some relief with this but I was not one of them."

• Grann...
• Taken for 6 months to 1 year
• November 17, 2021

For Epilepsy "In the early 80's my five year old daughter was being treated by a top children's neurologist for focal seizures which she started having after a severe, undiagnosed life threatening illness at 4 months. She was changed from dilantin to tegretol by this doctor who I had great respect for when I told him the side effects from this drug were harming my child. She couldn't remember anything, she acted dazed and confused, she scared me concerning her development while taking tegretol. We fought over changing the drug which he said was new and better than dilantin. I said I don't care she doesn't act like this on dilantin and I'm not leaving your office until you change it. So now I read these side effects and I was right. I still love that doctor but I knew my child too... And also My other kid reacted better to Rondec syrup for bronchitis than that Albuterol new drug they changed her to, it was absolutely clear to me that while new drugs are wonderful and I am grateful for them, new needs monitoring"

• jan
• Taken for 5 to 10 years
• September 7, 2022

For Trigeminal Neuralgia "I have been on tegretol for 6 years. And it has been great no pain. Also amitriptyline at night to help me sleep. But after this time it's just stopped working and I can't eat drink or sleep Without pain Has anyone else had this problem with tegretol were it's just stopped working."

• Anonymous
• Taken for 10 years or more
• July 25, 2022

For Trigeminal Neuralgia "I have been on tegretol for 28 years! Started taking for trigeminal neuralgia and it worked well. Increasing and decreasing doses as flare ups from the pain came and went; added lamictal and eventually lyrica, for nerve pain. Tegretol has been my magic drug; eventually had the MVD brain surgery for the trigeminal neuralgia and I have lowered tegretol to 300 a day: it calms me and keeps moods even. I don't want to go off. I am also on the 300 lamictal, also used for Trigeminal neuralgia and mood stabilizing; Tegretol has affected my white blood count and electrolytes (sodium) low counts, so had to have blood drawn every three months."

• Raj
• Taken for 10 years or more
• July 13, 2023

"I was suffering from intense morning anxiety (upon waking up) and during the whole day while doing day-to-day tasks. Online meetings and presentations were freaky. I take only Carbamazepine CR 200 (100 in the morning and 100 at night). I am relaxed and think like an intellectual person :).. I had tried Xanax and Klonopin, but they didn't help :(.. Carbamazepine CR 200 is very good if benzos don't work for you. God bless all.."

• sunny...
• Taken for 1 to 6 months
• March 30, 2016

For Bipolar Disorder "I was depressed and in bed for 4 years until I was diagnosed with bi polar. I am now 2 months with Tegretol, out of bed and am enjoying life like never before. It has been a miracle for me."

• ANGEL...
• June 12, 2013

For Trigeminal Neuralgia "Stoped the pain of trigeminal neuralgia. Side effects like unsteadyness, fingers twitching, sore joints, seeing aura's, reading difficulties, speaking difficulties."

• Katie...
• March 15, 2013

For Trigeminal Neuralgia "This is the only medication that has helped me! It's great!"

• yayo
• Taken for 1 to 6 months
• June 4, 2014

For Bipolar Disorder "Most effective medicine for bipolar disorder, at least for me."

• Sandy...
• Taken for 5 to 10 years
• September 18, 2014

For Bipolar Disorder "No problems or side effects."

• Anonymous
• February 4, 2010

For Bipolar Disorder "I have been using Tegretol for over five years and I think it is the best medicine for the manic side of bipolar. I don't notice any side effects and have not gained weight while using Tegretol."

• romagna
• December 21, 2008

For Bipolar Disorder "I liked it more than valproate since it doesn't affect your weight."

• Wild...
• February 13, 2013

For Epilepsy "Have been taking for 13 years. Have been seizure free. It has changed my life. Only side effect I've noticed is a little more tired than normal. Only sometimes. Other than that good to go!"

• hlt
• March 14, 2015

For Trigeminal Neuralgia "Worked for awhile okay. After 2 1/2 months I developed a reaction to it called "Stevens-Johnson Syndrome" which is a potentially deadly skin rash."

• Mrosa
• Taken for 2 to 5 years
• April 18, 2016

For Bipolar Disorder "This drug killed my thyroid. You should also be screened heavily for certain blood illnesses before taking and monitor your liver and kidneys. A VERY poisonous drug."