Tegretol User Reviews & Ratings (Page 3)

• Felicia
• January 25, 2018

For Trigeminal Neuralgia "While I've taken tegretol in the past with no issues, this time is different. First time around no side effects. This time - possibly due to other medication - I've had horrible side effects. Headaches every day, dizziness, nausea to the point of not even enjoying a glass of water. Lightheadedness, unsteady on your feet -going for a walk with my friend the other day I MUST have looked like a drunk. TBH -this time around I'd rather have the nerve pain."

• Herbie...
• Taken for 2 to 5 years
• August 21, 2016

For Bipolar Disorder "I found teratoll very helpful I take I conjunction with mertazapine and it has really changed my life I have many lifetime issues that will never go away but with this combination of drugs I feel my condition is under control now I take 400 milligrams per day of slow release with my dose of mertazapine and I only get angry now like a normal person get irrational only in extreme circumstances but generally I can function fine"

• Seatt...
• March 27, 2012

For Epilepsy "Have had complex partial seizure disorder for over 40 years. My main medicine that held me for years was Phenobarbital. When I started having breakthrough seizures, Tegretol was the secondary medicine that has held me okay for the past 4 years. I tried Tegretol XR first but for me, I felt very tired, some dizziness, poor memory, and very bland. When the Dr switched me to regular Tegretol, it was totally opposite! I felt alive again, memory sharp, out riding horses, happy as a lark and felt like my good old self. People should know there are many different medicines for epilepsy these days and also that there is a Tegretol XR (long-acting)."

• Cross...
• Taken for 5 to 10 years
• May 3, 2018

For Trigeminal Neuralgia "Been taking 3x day for several years. Suffered on and off for decades from head/facial pain with no diagnosis. Finally went to good neurologist. Tried gabapentin. Didn't work at all. (Neither does Dilaudid) This does make me groggy still and I have nausea, brain-drain and more. I would take any side effect for relief from that horrific pain. I've had it so bad, I literally couldn't breathe in. The break through pain I now gets is mainly an ache in my ear and sometimes teeth. The side effects also may be from the 15 other meds I take for various problems."

• Jan4a...
• Taken for 1 to 6 months
• February 9, 2013

For Trigeminal Neuralgia "My problem started with severe uvetis/iritis (inflammation of the iris) for which I was under a eye specialist care. This went on for almost 3 yrs before the Dr was able to get it under control. I lost a lot of vision the the left eye (it was in both eyes). Eventually I became aware that I had tested positive for Lyme disease in 2005 but was never treated for it. I continued to have severe pain around the left eye that was incapacitating. I finally found a Lyme Dr. after much pain, agony, & suffering. I was told I had trigemial neuropathy in my left eye. I was given carbamazepine 100mg x2 per day. I have only been taking it prn but after reading other peoples experience I believe I need to take it every day to get the full effect . Thank Yo"

• Anonymous
• December 2, 2011

For Peripheral Neuropathy "It took approximately 3 months for the Tegretol to have any effect. When it did it was almost overnight. Also found that taking Xanax with it helps tremendously (with Doctor approval of course). I take up to 3 mg Xanax with 3 times daily and 200 mg Tegratol 2 times daily. It really works. The burning has almost ceased."

• Lindy
• Taken for less than 1 month
• April 24, 2013

For Trigeminal Neuralgia "I have been put on this medication for pain. After 6 mouth operations - I was left with terrible upper gum and palate pain. I have only been on it for 5 days - it is not working. The pain is severe and constant. I am praying - as I take it longer - it will take the pain away."

• Anonymous
• July 14, 2009

For Epilepsy "I HAVE HAD SEIZURES FOR TWENTY (20) YEARS NOW. i HAVE TAKEN EVERYTHING THERE IS TO TAKE, NOTHING WORKED EXCEPT FOR TEGRETOL. HOWEVER, I STILL HAD BREAKTHROUGH SEIZURES, SO NOW I TAKE KEPPRA WITH THE TEGRETOL. I HAVE NOT HAD ONE SEIZURE FOR THREE (3) YEARS NOW. WOW, OH WHAT A FEELING!"

• Emank...
• May 24, 2016

For Bipolar Disorder "This was the best medication I have ever had. I take 2 at night and 1 in the morning. I only trouble I have had was at one time the Doctor tried to up me to 2 night and 2 in the morning and it caused terrible vertigo like feeling. I couldn't even stand up. Overal I would say it's a great medication."

• Mnyc
• Taken for 1 to 2 years
• October 25, 2019

For Epilepsy "Tegretolol is the only medicine that stops my tonic clonic seizures. I've been on it over a year, taking 1,000 mgs a day. The first month I had memory problems and drowsiness but that went away fast. The biggest side effect I had that never went away is severe depression caused by it. My depression is gone thanks to Lexapro 20 mg a day. I highly recommend Tegretol for tonic clonics seizures due to Epilepsy."

• Anony...
• December 31, 2010

For Epilepsy "I am 39 years old now, and have been on Tegretol since I was 20. I have not had a seizure for 19 years. Then, this past weekend, I went on a trip and did not take my Tegretol for 3 out of the 4 days I was there. The next day, I had a grandmal seizure and the ambulance came. I attribute it to becoming complacent and it really bit me, but I will not make this mistake of being lazy and not taking it again. I was on 200 mg for the last 3 years without a problem, but will increase it to 400 mg just in case. Tegretol really does work wonders and I hope to be seizure free the rest of my life, if I can faithfully stay on this medicine."

• Anonymous
• July 7, 2010

For Epilepsy "No seizures whilst on Tegretol. Extreme headaches first 4 weeks, extreme tiredness. 6 weeks after starting Tegretol hives started to appear and got worse. Blood tests showed liver enzymes were 3 times higher than usual and red blood cell counts slightly reduced. Thyroid gland swelled up also. All these were shown to be a severe allergic reaction to the drug. People should be aware of this as a possibility."

• Kate
• Taken for 10 years or more
• May 20, 2014

For Epilepsy "I have been on this medicine for 27 years. Except for extreme tiredness, I seem okay. Have not had a fit when on this medicine. One week I came off the medicine, between suicidal thoughts, crying jags and depression, I had massive fits. I have not been off since. This medicine seems to affect the liver, so liver tests are a must."

• Anonymous
• September 20, 2009

For Trigeminal Neuralgia "I have trigeminal neuralgia and have been suffering from it for quite some time. I was put on 300 mgs twice a day and it didn't help at all and the attacks were just getting more severe and frequent, so the neurologist upped it to 900mgs a day. Still no relief! I have been on two other kinds and pretty much have to rely on pain medication which doesn't even relieve all the pain."

• Anonymous
• January 26, 2011

For Trigeminal Neuralgia "I have had TN for about 10 years, but was switched from Trileptal to carbamazepine, 100 mg 3x/day, about a month ago. The first week I felt almost pain-free, but since have been in constant pain. It does not seem to work for me at all now!"

• Tdogg
• June 20, 2011

For Bipolar Disorder "I just started taking Tegretol on June 3 for mood stability. Also prescribed Celexa on same day. I also take Methadone 10mg 4x a day for chronic pain management for last 10 yrs. I love how it makes me feel and it's very hard for me to get angry BUT, it interferes with the methadone. At first nothing except feeling drunk for the first 4-5 days. Then it started. Withdrawal symptoms, increased pain, restlessness, insomnia, fatigue and nausea. Not sure if I can continue treatment but will find out on June 24 after my doctors appointment. Also taking meloxicam. Will let everyone know my results Friday afternoon."

• Anonymous
• November 3, 2009

For Epilepsy "I have taken Carbamazepine for 36 years and have experienced no significant side effects. I take 400mg per day and have gained almost total control of my condition. No seizures since 1983. Do not cease taking Carbamazapine suddenly for any reason whatsoever. The withdrawal can be extreme. The ER medication is very useful."

• beach...
• June 24, 2014

For Epilepsy "I have been on Tegretol 31 years as well as Lamictal, excellent until I turned 52. Then had some partial seizures..... so my neurologist upped it from 400 to 800 Tegretol and upped Lamictal as well. Getting control slowly. Been 5 months....now..improvement is happening but slow...confident..depends on what meds suit your body. Keep positive."

• Ash
• Taken for 1 to 6 months
• January 16, 2019

For Epilepsy "I'm 18. I had random contractions and twists in my arm since when I was 10. It lasted for only about 0.005 secs. And then gradually increase. Now I have attacks that last for hours (the longest one lasted 9 hrs). I used to consult ortho docs since I did not not know what it was. They kept telling me I had muscle cramps. Because I do martial arts I believed it. But at last I consulted a nuero when once I had a bad attack and the ortho doc was on leave. He diagnosed me with exercise induced paroxysmal dystonia. He prescribed tegretol and I started on a low dose. It didn't seem to help me. I gradually increased its dose and now I don't get those attacks! I have no family history of disorders but one cousin with epilepsy."

• DennisF
• March 25, 2015

For Epilepsy "I had 1 seizure, 2 weeks after our son was born... So they put me on 200mg twice a day. I took it, maybe not religiously, but atleast 1 pill a day. Well I missed a full day, and had a seizure in my sleep again. I can't help but think it works well, if the first time I miss a full day I have 1. Mad at myself? Yes. Glad I have Tegretol? Yes."

• Tano
• Taken for 1 to 6 months
• November 10, 2020

For Trigeminal Neuralgia "Just out of hospital blew up like a balloon had very bad reaction. In hospital for 3 days was on tabs for 4 weeks so am off them now. No good for me as I was swelled up like a beach ball on them. A neurologist told me to go on them for 8 weeks gees after 4 weeks ended up in hospital taking 3 to 5 a day."

• sarah...
• October 31, 2010

For Epilepsy "I have been using Tegretol retard 200mg for ten years now. I made the mistake of forgetting to collect my script from my doctors for a week! I have been lucky as I did not have a seizure, but my word I have been so poorly, depressed, loss of appetite, and body tingles, from my lips to my toes. I never realized how important it is to take my pills till now. I will never make that mistake again, the 1st day I started them again, I was a ball of tears, very sad and tired, but a day later I'm back to my old happy self. I'll never forget them again."

• apple...
• Taken for 6 months to 1 year
• February 6, 2015

For Epilepsy "Oh my. I was put on carbamazepine for possible epilepsy and it didn't seem to do anything - but the doctors said to just keep trying. However, it continued to worsen, making my focus dip considerably, and causing my hearing to change! (I'm a musician, I could tell - it dropped a semitone down.) Was very annoying."

• Haileyp
• January 12, 2017

For Bipolar Disorder "I just started tegretol 2 days ago in conjunction with Cipralex and Clonazapam. I've taken the last two mentioned for years up until a few months ago and never had side effects so I know the side effects are from the Tegretol. No appetite. Nausea, and severe migraines. Definitely making me more hopeful and less suicidal and less impulsive, but I just hope the physical symptoms go away soon. I've never been on Tegretol before."

• Dawn
• Taken for less than 1 month
• March 5, 2017

For Epilepsy "MAKE SURE YOUR DOCTOR TITRATES THE DRUG AND DOES NOT START YOU ON A HIGH DOSE. The 1 grade should be for my Dr. Not the medication. I am a female about 105lbs. My Dr. started me on 800mg without titration for possible seizures. After 2 days I was so sick and dizzy and my head / ears were was buzzing like crazy. I had non stop vomiting, ringing in my ears and severe indescribable dizziness. I ended up going to the ER. I am sticking to lamictal and found a new Doctor."