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Pulmonary Fibrosis Questions

Related terms: Asbestosis, Interstitial pneumonitis, from asbestos exposure, Pulmonary fibrosis, from asbestos exposure, Lung Fibrosis


We found 22 questions associated with the 'Pulmonary Fibrosis' topic.

Vicks VapoRub - Have any of you heard of Vicks Vapor Rub causing Pulmonary Fibrosis. I have this?

Posted 3 Apr 2013 by shelakay42 3 answers

... disease and this is what I am told caused it. Nobody believes Me and Im trying to find some proof to show them Im not crazy. Help Me Thanks

Does the use of Mycophenolate Mofetil cause hair loss? I have seen a noticeable thinning of my hair?

Posted 9 Dec 2016 by e2prios 0 answers

... since I started taking it. I have been taking it since April 2016 along with Prednisone 35mg, but have now been weaned off the Prednisone for about 2 weeks now. I am also taking Rituxan (1000mg) 2x/year (infusion). I have rheumatoid arthritis, which has also resulted in scarring of the lungs... ...

What is the difference between ofev, nintedanib, esbriet & pirfenidone?

Posted 15 Mar 2015 by RealFriend 2 answers

IPF or Lung fibrosis is serious diesease.In USA, FDA recently approved OFEV, the first medicine to treat IPF. Similar medicine for such treatment was manufactured in INDIA, under the name, PIRFENIDONE and some persons who used it had severe side effect on Liver and had to discontinue for this ...

Are there steroid alternatives which may lesson the effect on mood?

Posted 10 Mar 2015 by davepace 1 answer

irritability etc. as apposed to prednisone ? . my 90 year old father takes prednisone 10 mg daily for pulmonary fibrosis , it helps his breathing and health in general , however he is very difficult to be around due to extreme impatience , stressfulness and a mean negative outlook towards loved ...

Is dexpak a good drug to take?

Posted 11 Apr 2015 by Mls51929 1 answer

My pulmonologist prescribed dexpak 13 day. The reviews are scaring me. I took 3 1.5 before breakfast today. I have pulmonary fibrosis caused by pnumonia in 2010. 25%of lungs damaged. Have done very well. Rarely needed oxygen until lately. Short of breath. Any help or advice about this drug? Thank ...

Idiopathic Pulmonary Fibrosis - Hello, my father has Ipf and is experiencing severe abdominal pains?

Posted 14 Nov 2014 by rebrooks81 2 answers

... that are really effecting his quality of life. Our GP has ruled out prostate, bladder issues and basically has given up. Has anyone any experience of what this could be? Any thoughts appreciated. Becci

Flecainide use and Pulmonary Fibrosis?

Posted 26 Aug 2014 by HHead 1 answer

Any experience where continued use of Flecainide can or did contribute to lung scarring (Pulmonary Fibrosis)? I take 600 mg/day and have for years. Dr wants my Cardiologist to change to another drug. I am not sure there is one or that Flecainide is related to the problem.

My breath gets cut off?

Posted 29 Mar 2013 by ajoe_nathan 1 answer

Sometimes when I am sitting down doing nothing I will all of a sudden gasp for breath. This happens especially when I am talking. It is not like I am short of breath but it is as if my breath just gets cut off and I gasp. I recently learned that I have scarring on my lungs from a chest x-ray but ...

How soon will Pirfenidone be available in the United States? Help Please!!?

Posted 5 Oct 2014 by Concerned Daughter 7 1 answer

I have heard this would be available in late 2014. My mother needs it now! I am so worried! She has never smoked, but she has Pulmonary Fibrosis. She is on oxygen 24 hours a day.

Safety of tramadol with pulomonary fibrosis?

Posted 2 Oct 2013 by first born 6 answers

My mother is 85 years old and has pulmonary fibrosis. She has been given a prescription for tramadol for severe back pain. On the label it says DO NOT take if you have breathing problems. Her dr says to take it. Why is the DO NOT on the label it is ok for her to take it with her other medical ...

How many people with idiopathic pulmonary fibrosis are on lipitor (or related anti-cholesterol?

Posted 6 Mar 2012 by Davtren 1 answer

... drugs)? The hypothesis is that surfactant (which keeps the alveoli in your lungs inflated) needs cholesterol, so if it is inhibited the alveoli collapse and you get fibrosis

I read that people with ankylosing spondilitis often have pulmonary fibrosis. Is this true?

Posted 18 Apr 2012 by gramma2busy 1 answer

I have AS and have become a little alarmed at some of the other problems this horrible disease can cause. Does anyone have an answer for me?

I am on Remicade since Aug. I have had four infusionns and now I find that my musles ache. My neck?

Posted 26 Dec 2011 by AZsnowbird 1 answer

... hurt bad enough that I needed to take Vicadin and heat. Is this a common side effect? I have RA and pulmonary fibrosis so methatrexate is out of the question for me. I also have this ache in my leg musles and lower back. It is like a bad toothache.

Pulmonary Fibrosis - Has anyone had to arrange for oxygen out of the US?

Posted 9 Jul 2011 by baseballnut 1 answer

Our son lives in Japan and we want to go. How did you make arrangements for a concentrator and oxygen bottles? We at 50% capacity w/out the oxygen. Thanks

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Further Information

Related Condition Support Groups

Idiopathic Pulmonary Fibrosis, Respiratory Tract Disease

Related Drug Support Groups

mycophenolate mofetil, infliximab

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