Join the 'Pulmonary Fibrosis' group to help and get support from people like you.
Pulmonary Fibrosis Questions
Related terms: Asbestosis, Interstitial pneumonitis, from asbestos exposure, Pulmonary fibrosis, from asbestos exposure, Lung Fibrosis
We found 22 questions associated with the 'Pulmonary Fibrosis' topic.
Posted 3 Apr 2013 by • 3 answers
... disease and this is what I am told caused it. Nobody believes Me and Im trying to find some proof to show them Im not crazy. Help Me Thanks
Does the use of Mycophenolate Mofetil cause hair loss? I have seen a noticeable thinning of my hair?
Posted 9 Dec 2016 by • 0 answers
... since I started taking it. I have been taking it since April 2016 along with Prednisone 35mg, but have now been weaned off the Prednisone for about 2 weeks now. I am also taking Rituxan (1000mg) 2x/year (infusion). I have rheumatoid arthritis, which has also resulted in scarring of the lungs... ...
Posted 15 Mar 2015 by • 2 answers
IPF or Lung fibrosis is serious diesease.In USA, FDA recently approved OFEV, the first medicine to treat IPF. Similar medicine for such treatment was manufactured in INDIA, under the name, PIRFENIDONE and some persons who used it had severe side effect on Liver and had to discontinue for this ...
Posted 10 Mar 2015 by • 1 answer
irritability etc. as apposed to prednisone ? . my 90 year old father takes prednisone 10 mg daily for pulmonary fibrosis , it helps his breathing and health in general , however he is very difficult to be around due to extreme impatience , stressfulness and a mean negative outlook towards loved ...
Posted 11 Apr 2015 by • 1 answer
My pulmonologist prescribed dexpak 13 day. The reviews are scaring me. I took 3 1.5 before breakfast today. I have pulmonary fibrosis caused by pnumonia in 2010. 25%of lungs damaged. Have done very well. Rarely needed oxygen until lately. Short of breath. Any help or advice about this drug? Thank ...
Idiopathic Pulmonary Fibrosis - Hello, my father has Ipf and is experiencing severe abdominal pains?
Posted 14 Nov 2014 by • 2 answers
... that are really effecting his quality of life. Our GP has ruled out prostate, bladder issues and basically has given up. Has anyone any experience of what this could be? Any thoughts appreciated. Becci
Posted 26 Aug 2014 by • 1 answer
Any experience where continued use of Flecainide can or did contribute to lung scarring (Pulmonary Fibrosis)? I take 600 mg/day and have for years. Dr wants my Cardiologist to change to another drug. I am not sure there is one or that Flecainide is related to the problem.
Posted 29 Mar 2013 by • 1 answer
Sometimes when I am sitting down doing nothing I will all of a sudden gasp for breath. This happens especially when I am talking. It is not like I am short of breath but it is as if my breath just gets cut off and I gasp. I recently learned that I have scarring on my lungs from a chest x-ray but ...
Posted 5 Oct 2014 by • 1 answer
I have heard this would be available in late 2014. My mother needs it now! I am so worried! She has never smoked, but she has Pulmonary Fibrosis. She is on oxygen 24 hours a day.
Posted 2 Oct 2013 by • 6 answers
My mother is 85 years old and has pulmonary fibrosis. She has been given a prescription for tramadol for severe back pain. On the label it says DO NOT take if you have breathing problems. Her dr says to take it. Why is the DO NOT on the label it is ok for her to take it with her other medical ...
Posted 6 Mar 2012 by • 1 answer
... drugs)? The hypothesis is that surfactant (which keeps the alveoli in your lungs inflated) needs cholesterol, so if it is inhibited the alveoli collapse and you get fibrosis
Posted 18 Apr 2012 by • 1 answer
I have AS and have become a little alarmed at some of the other problems this horrible disease can cause. Does anyone have an answer for me?
Posted 26 Dec 2011 by • 1 answer
... hurt bad enough that I needed to take Vicadin and heat. Is this a common side effect? I have RA and pulmonary fibrosis so methatrexate is out of the question for me. I also have this ache in my leg musles and lower back. It is like a bad toothache.
Posted 18 Feb 2011 by • 1 answer
Posted 9 Jul 2011 by • 1 answer
Our son lives in Japan and we want to go. How did you make arrangements for a concentrator and oxygen bottles? We at 50% capacity w/out the oxygen. Thanks