Skip to Content

Join the 'Actemra' group to help and get support from people like you.

Actemra Questions


We found 28 questions associated with the 'Actemra' topic.

I was given a one month sample of Xeljanz and felt great relief after 2 weeks?

Posted 18 Feb 2018 by Kpone 3 answers

However, I'm having trouble getting 'approved' from the drug company for co-pay assist. I have never experienced this before and I have had co-pay assist from Humira, Enbrel and Actemra. My sample has run out in the time it's taking for all the paperwork to go through. I have ...

Ro Acterma weekly injectiin?

Posted 16 Mar 2018 by Kayjon 1 answer

I had been on Ro Acterma (Tocillimibub) for three and a half years and decided to suspend this for a while. I am suffering greatly with a cystitis type of pain on Angina and Vulva. Had numerous tests, went privately to be told something in my life has changed and it is a rash I have in the outside. ...

What side effects are you seeing while using Actemra? Are you injecting yourself? Are you see good?

Posted 20 Feb 2018 by My4boys 0 answers

My wife is about to start taking Actumer for her PMR we would like to know if anyone else is taking it how are you feeling, have you had any side effects? How long have you been on the Drug.any feedback would greatly be appreciated. She was taking Enbrel and prednisone she was on a high level of ...

Starting Actemra for PMR, RA and GCA looking for others currently using Actemra?

Posted 19 Sep 2016 by Nitrobunny 7 answers

Hello! I am starting Actemra next week. I was Dx with PMR in 2004 and in January of this year and landed in the hospital with GCA and the worst headache of my life. I also have RA. I switched rheumatologists and my new one recommended I research and consider starting Actemra. I would like to know ...

Orencia - Any suggestions for prevention of infection after treatment?

Posted 14 Jan 2017 by Lynniek 1 answer

I am a teacher and I need to work for financial reasons. I have lupus, sjrogren's, fibromyalgia and unmanaged ra. My doctor put me on actemra (in addition to the plaquenil and sulfasalazine I was taking already, as well as periodic prednisone injections, and I had been on methotrexate until it ...

Do you have to stop taking biologic to take the hep c treatment?

Posted 20 Feb 2017 by jmo2280 1 answer

I've had rheumatoid arthritis for 20 years I take actemra, a biologic, to treat it, I found out I also have hep c and will be starting treatment for it this week, i know it is 12 weeks but don't know much else about it, will I have to go off of my actemra during the 12 weeks? I know ...

Actemra - How long will it take to work!?

Posted 4 Sep 2016 by GammaD64 2 answers

I had my 4th dose of Actermia one it will be two weeks Monday! I do feel better since taking it but I still have a Sed Rate of 68 down from 98 4 months ago. I don't want to be discouraged! How long should I expect a good response to this drug! I was on Remicade for 10 years and worked great ...

Does Actemra cause hair loss ?

Posted 13 Jul 2016 by kizzie4041 1 answer

The drug itself , not the disorder . Is there a cancer treatment in actemra? One of my previous infusions had chemo in it and caused hair loss .

Is there a negative interaction with actemra and steroids?

Posted 30 May 2016 by purplestar 1 answer

Could my sun-sensitivity I am noticing be related to this interaction? I have redness and blotchy skin on my shoulders and it itches. I have been on actemra for just 3 months. I went to dermatologist and doc had no clue to direct cause. My "rash" is in a circle not like skin bumps. I feel ...

I have PMR and GCA and have been on steroids for 6 months.My doc wants me to start Actemra infusion?

Posted 18 Jan 2016 by maryanned79 2 answers

The side effects from the steroids are out of control. I have trouble going up stairs, my leg muscles have really atrophied. I can't get out of the tub any more. I get claw like hand and foot spasms. Tremors in my hands. Bp 122/94. Anyway, I read about the potential life threatening infections ...

Hello Actemra users, anyone having issues with eyes on Actemra, dry eye and painful red eye lids?

Posted 18 Feb 2016 by cari1 1 answer

If so, how are you managing? I can't use Restasis. OTC drops, warm compresses and night time ointment already in use. I have RA, Sjogren's disease, and am using a prednisone burst at the moment.

My son is 19 yrs old and has been on Actemra IV infusions for about 4 yrs for his juvenile?

Posted 26 Jan 2016 by Hoopmomma11 1 answer

... rheumatoid arthritis. Since he has turned 18 he hasn't been getting his monthly infusions on time. Sometimes he skips a month... He has the attitude that he doesn't need it... BUT as his mother I know how important it is for his body. He was diagnosed w/ JRA when he was 3yrs old. ...

How long does it take to get actemra out of your system?

Posted 15 Aug 2015 by M-Cirlande 1 answer

I was getting ready for my fourth infusion. no relief at all yet, the pain and the fatigue was as bad as it could be. Them I developed rashes all over my body and swelling on my legs and feet. We stopped the infusions. Now I would like to know how long it will take for Actemra to get out of my ...

Systemic Sclerosis - Effectiveness of Actemra and Fresolimumab?

Posted 23 Jan 2016 by Maamen 1 answer

During my research today i found two new drugs specific to SS. Actemra and Fresolimumab. They both appear to be in a clinical trial stage but apparently are available. Does anybody on this site have knowledge of these?

Page 1 2 Next

Ask a Question

Further Information

Related Condition Support Groups

Giant Cell Arteritis, Cytokine Release Syndrome, Juvenile Idiopathic Arthritis, Rheumatoid Arthritis

Actemra Patient Information at

Search this Group