41 yr old female diagnosed 5 months ago with PV & wondering if there is anyone else also diagnosed & trying to find info on healthy items to eat & not to eat with this disease. I've been told 2 good things to eat/drink are purple grape juice (the real stuff, not juicy juice) & kiwi fruit. Also been told to stay away from red meats, organ meats, p'nut butter & broccoli??? Anyone else have any info or links etc to share & help? Thanks in advance!!!
Hi. I am 61 year old Male diagnosed with PV three years ago. After going through many THphebotomies, I was put on Hydroxyurea and for more than a year now, I have not gone through a THp. I have not been given a diet restriction as such but alternate systems of medicine recommend that Pomegranate and a decoction made from the peel of the fruit in hot water and purple grape squash/juice may be consumed for reducing the PCV to below 45. The restriction on red meats, organ meats, etc could be because of some other condition that ails you.
I am 31 yr old woman and also have pv. Avocados and red grape juice have helped me. Also, I noticed when i would eat a lot of asparagus, my cbc stats would suffer, so i would stay away from that. Also, be aware that restricting your iron intake too much, can cause a platelet increase.I learned that the hard way. My platelets went to 1.3 million. Good Luck!
I am 30 years old and i have been battling PV since I was 5 yrs old and my brother has been PV since he was 18 months. I used to have Medicaid and was able to keep up with my therapeutic phlebotomies, but these last 2 years I have lost Medicaid and haven't had a treatment. My hematocrit is at 67% and my hemoglobin is a 21.7! Is there anything I can do to help lower my iron/hematocrit levels???
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