41 yr old female diagnosed 5 months ago with PV & wondering if there is anyone else also diagnosed & trying to find info on healthy items to eat & not to eat with this disease. I've been told 2 good things to eat/drink are purple grape juice (the real stuff, not juicy juice) & kiwi fruit. Also been told to stay away from red meats, organ meats, p'nut butter & broccoli??? Anyone else have any info or links etc to share & help? Thanks in advance!!!
Polycythemia Vera - Newly diagnosed?
Question posted by lilmizdiz on 28 Jan 2014
Last updated on 8 October 2020 by DaVinci314
Patients with Polycythemia/Polycythemia Vera should try to avoid eating an increased diet of spinach, as well as other foods with high vitamin K, as this can increase the chances of thrombosis, further increasing the chances of stroke, heart attack and/or PE. Many patients with Polycythemia/Polycythemia Vera display elevated ddimer, appt and ptt levels after eating food with high vitamin K.
I am 64 years old, female and for the past three years have been living in terrible pain. I've been managing with Tylenol, and my health is generally good. June I decided I was going to try to lose 50 pounds. I started swimming which took me three months to get up to capacity. In July I went for my physical and my doctor sent me to a hematologist because my HCT levels went from 40 to 45.7. I never thought twice about all the symptoms I was having believing it was my first diagnosis of MS. I will have confirmation of my diagnosis on the 11th. I've been told by my doctor at the cancer center that they would start me on the with drawl of blood. I have read quite a bit of information on this particular blood disease, but I am wondering what foods I should avoid. I have never been able to take any supplements that have iron. When I do I am in pain. I'm kind of a person who always prepares.
One is sensual question that I have is should I have someone with me the first time they take the blood from me? Can someone please give me an answer as I cannot seem to find that answer via the websites.
I was diagnosed 17 years ago. I always ate clean but I was warned to stay away from any supplements containing Iron, B 12, B6, magnesium, ginseng, since they thicken the blood. What has helped me is OPC-3 purchased from health care professionals and independent distributors. Instead of every 3 weeks of painful phlebotomy, it was extended to every 6 weeks then 8 weeks. Right before treatment, my body craves red meat. My nutritionist told me, that even though I have too much iron, the iron is toxic which is why my body is craving it.
I never had good veins and after so many years of treatment they are shot. If anyone has this problem, bring a heating pad and heat your arm. Heat makes your veins plump out for an easier treament and plenty of fluids and no salt for 5 days prior.
I am 30 years old and i have been battling PV since I was 5 yrs old and my brother has been PV since he was 18 months. I used to have Medicaid and was able to keep up with my therapeutic phlebotomies, but these last 2 years I have lost Medicaid and haven't had a treatment. My hematocrit is at 67% and my hemoglobin is a 21.7! Is there anything I can do to help lower my iron/hematocrit levels???
I am 31 yr old woman and also have pv. Avocados and red grape juice have helped me. Also, I noticed when i would eat a lot of asparagus, my cbc stats would suffer, so i would stay away from that. Also, be aware that restricting your iron intake too much, can cause a platelet increase.I learned that the hard way. My platelets went to 1.3 million. Good Luck!
Hi. I am 61 year old Male diagnosed with PV three years ago. After going through many THphebotomies, I was put on Hydroxyurea and for more than a year now, I have not gone through a THp. I have not been given a diet restriction as such but alternate systems of medicine recommend that Pomegranate and a decoction made from the peel of the fruit in hot water and purple grape squash/juice may be consumed for reducing the PCV to below 45. The restriction on red meats, organ meats, etc could be because of some other condition that ails you.
PV is caused by your bone marrow malfunctioning. It has nothing to do with your diet. You should eat a, balanced diet and get plenty of fluids. Don't cut things out of your diet unless your dr tells you to.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.