41 yr old female diagnosed 5 months ago with PV & wondering if there is anyone else also diagnosed & trying to find info on healthy items to eat & not to eat with this disease. I've been told 2 good things to eat/drink are purple grape juice (the real stuff, not juicy juice) & kiwi fruit. Also been told to stay away from red meats, organ meats, p'nut butter & broccoli??? Anyone else have any info or links etc to share & help? Thanks in advance!!!
Hi. I am 61 year old Male diagnosed with PV three years ago. After going through many THphebotomies, I was put on Hydroxyurea and for more than a year now, I have not gone through a THp. I have not been given a diet restriction as such but alternate systems of medicine recommend that Pomegranate and a decoction made from the peel of the fruit in hot water and purple grape squash/juice may be consumed for reducing the PCV to below 45. The restriction on red meats, organ meats, etc could be because of some other condition that ails you.
I am 31 yr old woman and also have pv. Avocados and red grape juice have helped me. Also, I noticed when i would eat a lot of asparagus, my cbc stats would suffer, so i would stay away from that. Also, be aware that restricting your iron intake too much, can cause a platelet increase.I learned that the hard way. My platelets went to 1.3 million. Good Luck!
I am 30 years old and i have been battling PV since I was 5 yrs old and my brother has been PV since he was 18 months. I used to have Medicaid and was able to keep up with my therapeutic phlebotomies, but these last 2 years I have lost Medicaid and haven't had a treatment. My hematocrit is at 67% and my hemoglobin is a 21.7! Is there anything I can do to help lower my iron/hematocrit levels???
I was diagnosed 17 years ago. I always ate clean but I was warned to stay away from any supplements containing Iron, B 12, B6, magnesium, ginseng, since they thicken the blood. What has helped me is OPC-3 purchased from health care professionals and independent distributors. Instead of every 3 weeks of painful phlebotomy, it was extended to every 6 weeks then 8 weeks. Right before treatment, my body craves red meat. My nutritionist told me, that even though I have too much iron, the iron is toxic which is why my body is craving it.
I never had good veins and after so many years of treatment they are shot. If anyone has this problem, bring a heating pad and heat your arm. Heat makes your veins plump out for an easier treament and plenty of fluids and no salt for 5 days prior.
I am 64 years old, female and for the past three years have been living in terrible pain. I've been managing with Tylenol, and my health is generally good. June I decided I was going to try to lose 50 pounds. I started swimming which took me three months to get up to capacity. In July I went for my physical and my doctor sent me to a hematologist because my HCT levels went from 40 to 45.7. I never thought twice about all the symptoms I was having believing it was my first diagnosis of MS. I will have confirmation of my diagnosis on the 11th. I've been told by my doctor at the cancer center that they would start me on the with drawl of blood. I have read quite a bit of information on this particular blood disease, but I am wondering what foods I should avoid. I have never been able to take any supplements that have iron. When I do I am in pain. I'm kind of a person who always prepares.
One is sensual question that I have is should I have someone with me the first time they take the blood from me? Can someone please give me an answer as I cannot seem to find that answer via the websites.
Search for questions
Still looking for answers? Try searching for what you seek or ask your own question.
Posted 7 Jul 2011 • 1 answer
Posted 21 Oct 2013 • 2 answers
I am a 39 year old woman who was diagnosed with Polycythemia Vera at the age of 25. My hematologist?
Posted 20 Mar 2014 • 1 answer
Posted 4 Aug 2016 • 1 answer
Polycythemia Vera - Is it OK to take sumatriptan for migraines (which constricts blood vessels) when
Posted 14 Jun 2017 • 1 answer