I won't tell you how I was done after being under what I thought was a real pain doctors care for 8 years. I was done flat out wrong.
That being said I will tell you I am an almost 50 year old disabled vet that can get no help from the VA. That being said in MN because of the state we are he is forcing me to choose between a teen daughter that hates me ( we only do things on her terms when she feels good). Because of my pain issues I have no quality of life. A short list involves 12 and maybe soon to be 13 surgeries on my stomach, 6-8 diagnosable issues with my C spine, Neuropathy that is advanced to the point I should be 30 yrs older and then problems from past surgeries.
This next surgery is an all or nothing type. If they mess up I die ( there are only 4-5 hospital in US that do it), everybody needs this body part to live.
Anyways I am forced to move. I would prefer the ocean like FL or TX or any Gulf of Mexico states. Can anybody give me an ideal of what state i should be moving to, to make it easy to find a doc, or if the doc inst as described over the phone. I would be extremely grateful
I have not had to play this stupid game for many years. In MN there is no other doc because despite MN Physicians board rules all clinics have agreed and are taking the 1 size fits all approach. As you can imagine if I have been doing this for 15 yrs give or take my physical dependence is high. I know one doc in AZ but I dont wanna live there. Can anybody give me ideas, ocean towns or not. Please remember I am a disabled vet so If you say San Diego I couldn't even afford to live there. Thanks for the help.
Help needed badly, after 8 years
Question posted by Zoomy81152 on 27 Jan 2021
Last updated on 29 January 2021 by Windchimes123
Just a quick detail. This issue of pain management is related to about the top 4 or 5 things going on in my life. Right now everything is at zero or below. The reason why I was put on this earth is to protect my daughter and guide her through life but the days of me doing that are getting less and less do do the problems I have. Before I can advocate for myself, try and win my daughter back, see her when she gives me no notice I need to be at least a t a 3 on the pain scale. I am far from that because my doctor had not been making med adjustments and I think he went off the deep end. I think I got the family part figured out but Ive gotta get this pain thing figured out otherwise my daughter is gonna suffer needlessly and I am not sure what my future holds but I know it isn't good. If you dont want to spread the word to everyone I gave you a way to communicate with me. I would say a kind gesture really isn't that but it is a life saving measure by yelping out a vet or your fellow man. Thank you
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Answers
Hi Zoomy81152,
I feel so bad for you. I've been there.
You have no idea how overwhelmed you are!
Clear your mind right now and take a deep cleansing breath.
Anxiety and Depression have their hands around your neck. It would be “abnormal” with untreated long term high pain levels without any hope in sight. Normal!!!
Why can't you get help with the VA or the doctors doing your surgery?
If you lost trust then you need to make a change.
Do you have an adult friend that can help direct you and be your advocate!
You don't want your daughter burdened. You feel like your hopes and dreams are crushed. Write your daughter an honest letter. Focus on the positives and be sincere about how much you love her. Don't give it to her until you get your plan of action. Sit there while she reads it. Allow her the opportunity to talk. Go from there. Do not dismiss her feelings. They are what they are.
Respect whatever she says without interrupting. Validate her feelings. Stuff like “ I can see why you feel that way” or “what would you do... ” You may learn something new, Dad. Lol,,,
So, let's make a list:
#1 - Forget about moving right now. Your decision-making skills are under the bus. It will all come back when you feel mentally healthy.
#2 - You need counseling! Your helplessness and negativity are so obvious. Like “nothing good will come... ” or your feelings about surgery. If you believe in Karma you may get what you put out there. Be careful.
If you don't want your medical care through the VA, will you take advantage of their mental health division?
You need relief from the depression or you will become a “victim”.
I'm not going to go there because you have to make that decision. Get the fight back in you.
Check with your city/county for a referral.
I'm not dismissing your pain but they go hand in hand and you need a plan. I don't know anything about your meds but anti-depressants accentuate the effectiveness of your pain meds.
The “one size fits all” is not state specific. It's nation-wide under the standards of care presented by the American Chronic Pain Association. Moving without running into the same issues could cost you a fortune plus a disconnect from your daughter.
Could her behavior be a result of helplessness? She can't stand to see you suffer so she chose to be not available emotionally to you. Possibility?
#3 - Do you have a good friend that will agree to help you navigate this process?
Don't let your pride prevent you from asking for help. Everyone needs help at some time during their life. Human nature makes us feel good to be needed. You need to be honest and receptive and above all be grateful for his help. Allow your friend to guide the conversation. Listen and be open-minded or he/she won't feel up to the task.
Don't interrupt and think about what was said before continuing.
#4 - Develop your plan to share with your therapist and your friend.
I think I know what type of care you need. It's a University setting with all the services to meet all your needs. I love Mayo Clinic! You live in MN. Right?
I drove from Philly to MN with a bowel obstruction for help. They saved my life!
I'm about typed out but if you want to continue, I'm here and so are a lot of other people on this site.
Thank you for your service.
Chin up, my friend.
;-)
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