My 49 year old son has alcoholic cirrhosis of liver and is still drinking vodka . He feels terrible and is very confused but will not go to hospital . I know all about ammonia levels and all that .Since 2014 he has been in and out of hospitals almost every 6 weeks, TIPS saved his life but I think the end may be near by the way he is acting. Very paranoid doesn't know if he is dreaming or it is real, thinks everyone is talking about him and looking at him can't sleep or eat much cries all the time and is afraid if he goes to hospital he will die there. He calls 3 times a day and keeps telling me how bad he feels and it's time to die. He does not want to live anymore. How can I help him I am exhausted and he won't listen. Thank you . How long should he have After a TIPS surgery he wants answers
Life expecency after TIPS surgery ?
Question posted by Ravenjeff on 5 June 2016
Last updated on 9 July 2016
Thanks for answering Steve. He had TIPS surgery on June 4th 2014 so
he has just passed the 2 year mark. He has had esophagus varices banded at least 4 times still won't quit drinking . Doctors don't know how he is still alive he has been thru it all and still won't listen. It is wearing me down
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Answers
The severe confusion is caused by high blood ammonia levels. Lactulose, while being a laxative, changes the digestive tract and osmotically absorbs ammonia and excretes it in feces. Try 2x20ml per day.
The TIPS procedure is to provide a bypass system to stop or prevent varices from bursting. The 3rd episode of severe esophageal bleeding is usually the last and fatal.
The continued drinking is a massive issue as he could potentially live quite a bit longer by quitting under supervision. He simply doesn't have the time it took me to quit.
So, I hate to say; less than 1 year even if he can get rid of the mental confusion he may be better placed to think more clearly. I'd be surprised by 2.
Google MELD score and armed with some blood work results we/you can do a little calculation that isn't based on assumed numbers. Fortunately I have blood work every month and I have also abstained from alcohol for 3 years so I have a record of an alcoholic steve to sober steve. The liver can recover pretty reasonable function once the assault has stopped and I'd much rather be alive than be dead and I'm sure your son doesn't want to be and my guess he has given up giving up. If we can get his head clearer he might listen to reason.
As always. See your doctor and get him to explain rather than pass stupid remarks.
Sorry, the stupid remarks comment was a little ambiguous. I was really referring to my experience with a Liver specialist who said to me some time ago on (separate occasions). The first was you're a tertiary graduate, look it up yourself; the second was: why do you expect me to make an effort when you won't even try to help yourself.
He is also head of the transplant board, so a copy of all my blood work goes to him once a month anyway as I have been given approval to apply. One of the issues now is that I gave up drinking early enough and am now too healthy. All of these things signal my compliance.
And the hospital can help. I assume he must have quite bad ascites? Getting rid of that fluid weekly would help as would osmotic peritoneal 'dialysis' (in quotes as no blood is involved directly)
I'm very sorry; I was trying to be glass half full. I was talking to a clinical Liver nurse this morning and explained my case for being dishonest with you but considering his symptoms, his life is only measured in weeks or months. He won't make Christmas. Say your goodbyes now as his brain is clearly not right (that might mean 2 weeks). Who the hell is still buying or selling him alcohol? They should be ashamed.
Thank you Steve. He goes to a bar and gets it but has slowed down considerably. He wants to die so he can be pain free and I feel so helpless. Whatever he goes thru he seems to come out of it only feeling worse. I pray for him to be at peace I just don't know what to do to help
I took him to hospital the other night because he was feeling so tired and just aching all over,headaches,severe confusion and pain in lower back and around the liver. I was shocked they did not admit him it is the first time they have ever just sent him home from ER. They said his blood work had not changed and his ammonia levels were good. So really don't know where confusion is coming from now. Sorry to go on and on but I have no one to get truthful answers from and I think hospitals are tired of seeing us. Thanks for listening
You ask and I'll be glad to help in anyway that I can. I'm thinking about it. Even if it's just something you want explained in plain English.
Sorry I haven't been more helpful as yet.
No need to be sorry. You have helped just by listening and being truthful
Stephen I have another question about Michael and wondered if this is a normal reaction to be seriously ill and if so what can I do to help.
As soon as it becomes close to nighttime every single night Mike becomes terrified of everything cries a lot can't sleep very nervous and bouncing his legs up And down keeps saying he can't do this anymore.
He wants to go to sleep and not wake up I have to try and calm him down every night it is very scary. He keeps saying he is worse and this time he feels different but blood work and ultra sounds on liver remain unchanged and I can't convince him he is stable. I would appreciate any help thanks
I'm giving it thought and will be seeing my treatment nurse Thursday (she has seen a lot of dying people over the years). Books, websites, journal articles lump liver failure all in one basket, however there are several reasons and combinations of reasons that will affect different people differently. Alcohol by itself fails one way, HCV has it's own way (combined and one's blood work will be different again). I'm something of a Lazarus with a bypass.
I simply do not have the numbers required to give a MELD score, which is a reasonable predictive model and the Child - Pugh test which is an indicator of current liver status. The problem is Liver failure does not present exactly the same way. It fails in a way typical of the poison/disease causing the issue. I just wish so badly that he would just give up drinking; I won't say it's easy but it is not hard, compared with some medications. The issue is that one wants to give it away but can't (scare tactics from medical professionals I don't like and are not helpful). If he just had some time of clarity he would realise he doesn't want to die really at all but has just given in.
Related topics
alcoholic cirrhosis, surgery, liver, hospital
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