I need information about the medications used for Wilson’s disease (Galzin and trientine)?
Question posted by Anonymous on 13 Dec 2020
Last updated on 13 December 2020
I have been diagnosed with Wilson’s disease however the information about it is not clear to me and the doctor is confused about the medications.
I found 3 medications for my conditions however only one is generic medicine and that is what i need the brand name of it is trientine, not syprine or clovique here I got confused as well
I also couldn’t find any company that produces the generic medicine that I need. Could you guide me if it is made by a pharmacist or in a lab?
And lastly can I start zinc acetate at the same time I am taking the medicine trientine?
Your help would be helpful and i would get the right medicine faster
The information on this page reflects personal experiences shared by our community members. It is not reviewed for medical accuracy and should not replace professional medical advice.
Answers
MA
masso
13 Dec 2020
Medications If you take medications for Wilson's disease, treatment is lifelong. Medications include:
Penicillamine (Cuprimine, Depen). A chelating agent, penicillamine can cause serious side effects, including skin and kidney problems, bone marrow suppression, and worsening of neurological symptoms. Penicillamine should be used cautiously if you have a penicillin allergy. It also keeps vitamin B-6 (pyridoxine) from working, so you'll need to take a supplement in small doses. Trientine (Syprine). Trientine works much like penicillamine but tends to cause fewer side effects. Still, neurological symptoms can worsen when taking trientine. Zinc acetate (Galzin). This medication prevents your body from absorbing copper from the food you eat. It is typically used as maintenance therapy to prevent copper from building up again after treatment with penicillamine or trientine.
Zinc acetate might be used as primary therapy if you can't take penicillamine or trientine. Zinc acetate can cause stomach upset.
Thanks a lot masso for confirming the information also can i start using zinc acetate along side trientine and after i stop trientine i continue zinc acetate to maintain low copper level.