I've been on it for 15 years. My vision is being affected, although my retna looks good. I also have periferal neuropthy along with just feeling crappy. Insomnia too. I want off.
Does anyone know if you have to be weaned off Plaquenil? I've been on it for 15 years, for Lupus?
Question posted by Lupie523 on 21 Dec 2015
Last updated on 27 September 2018
I discontinued Hydroxychloriquine seven years and had severe problems with inflammation within 2weeks all over my body especially the pancreas. 11 months later went back on Hydroxychloriquine and all my symptoms disappeared as the meds took effect.
I don't believe so. I was on the highest dose for a few years when I developed central vision loss. My doctor had me discontinue it immediately, no weaning. He warned that it stays in your system for a really long time so the vision loss could continue to progress. I was fortunate in that they caught the vision loss early so it improved after a year off of the medicine. Best of luck!
- Plaquenil uses and safety info
- Plaquenil prescribing info & package insert (for Health Professionals)
- Side effects of Plaquenil (detailed)
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