I have been on Xarelto since switching from Cumadin a month ago and about a week ago I had sharp pains in my chest then three days ago I had an irregular fast heartbeat on the lower right side of my heart for about 30 minutes. Once that was over I had wheezing in my chest for the next 12 hrs with severe fatigue and was very exhausted feeling lots of pain in my chest. I was wondering if anyone has had a blood clot while on xarelto. I am having lots of tests done to diagnose what happened, but I believe it was another blood clot due to my symptoms
Has anyone experienced a PE while on Xarelto?
- 24 Apr 2013 by jovifan
- 22 October 2018 (3 months ago)
- pulmonary embolism, tachyarrhythmia, atrial fibrillation, deep vein thrombosis (dvt), pain, deep vein thrombosis, deep vein thrombosis - recurrent event, pulmonary embolism - recurrent event, prevention of thromboembolism in atrial fibrillation, xarelto
This is my argument about these new anti coagulants you can't tell if they are working or working too well until something happens. It would be possible of course for you to clot, stranger things have happened. It is also possible it wasnt a clot. Other things could have caused the symptoms. Let us know when you get the results of the tests please.
I have. I have been on Xarelto since I left the hospital a little over a month ago. I just had another CT scan done on Monday. I had several on my right lung and that is completely gone but I now have a small one at the bottom of the left side of my lung. Going to my lung specialist tomorrow to find out what happened.
After 2 years on Xarelto I ended up wirh blood clots again too. My doctor switched me back to Warfarin which still hasn't stabilized my blood. But still nobody can answer my question as to why after 2 years the Xarelto stopped working!!
I have been on Rivaroxaban 20mg a day for a 16-18 months. Yesterday, i found out that i have new clots developing again in the same places- around the knees. The hospital also want to do a ct scan to determine if i may have cancer causing the clots despite taking blood thinners regularly. In the meantime, I have now been put on clexane 85m and warfarin a day. They want to move me to warfairn due to the costs and lack of anti bleeding effect with rivaroxaban.
Has anyone been in similar situation before?
I have been on Xarelto for 4 weeks now for a DVT after a sclerotherapy. My doctor told me I should be on Xarelto for 3 months total. My blood clot is attached high in my tigh. I now have pain in my lower leg. I fear another blood clot. I'm 40 years old and do not genetic predisposition for clotting. I was told to wear progressive compression stockings 20-30 every day. Today I did not wear them since I was home and thought I don't need them. Now the pain concerns me a lot. Also, I'm afraid what will happen to me after I get off Xarelto??
I have been on Xarelto for 2 years after being taken off of 2x daily lovenox injections after experiencing Coumadin failure and clotting at 3.7 inr at 15 mg a
I have been feeling very sluggish, developed a venous ulcer and noticed swelling in my left leg. Ended up in the er legs very swollen, in pain, barely able to walk 50 feet, turns out I'm clotted up to my groin... Dr switched me to pradaxa yesterday, been 24 hours and no improvement I'm getting worse. So painful!! If it wasn't for my faith in Jesus Christ I'd say I was a little scared... God is good... Praying for you all!!
Yo so I got put on Xarelto for a PE which resulted from a DVT. Three months later, I was rushed back to the ER after experiencing what I think was a clot passing through my heart. There, they found MULTIPLE PE's now in both lungs AND a DVT in my arm that they think was there when they found the original DVT. I have no idea why it's failed me and apparently no one else does either. My APC resistance was 5.7!
Hi, I've had a pulmonary embolism on Xaralto. I've also had DVT's while on Heparin/Tinzaparin while also taking aspirin, and for some reason I'm particularly unstable on Warfarin even when I vigorously plan my intake of Vit K foods. I have no known clotting disorders, but have had eight clots now. Five episodes of clotting. First episode was three clots, one in an artery, when I was nineteen. My leg was black, and stayed grey and swollen for months, even after the blood thinners. In those days, they didn't remove the clots like they do now. The last clot, the PE, was particularly worrying. Mostly because my D-Dimer was negative, and they ran it THREE times - negative each time. Had to have a contrast dye CT, and thank goodness the emergency doctor knew enough about me from my chart to be smart about it. We made the decision mutually.
God bless smart doctors who listen to patients!! I have had my Xaralto increased to 30mg/day, and I feel like I may be developing thrombophlebitis in a peripheral vein, in an area of previous clotting. I will have it checked tomorrow. I'm generally right about my clots - I've diagnosed all of them myself before going to the doctor. I've had members of my family pass away from clots (Thrombotic Storm Disorder). My sister died of clots when she was 32, and my daughter had clots when she was less than a year old, resulting in her developing a disability and cavernous transformation of the portal vein. I'm an active person - I swam 40 lengths in the pool yesterday, I'm at ideal/under weight, and I eat a ton of fresh fruit and veggies. I'm as healthy as a horse beside for the clotting. I don't think it was a fault of Xaralto - having clotted in strange situations, on various anti-coagulants including Heparin, I have to say that there's a lot we don't know about clotting. In time, as we understand clots more, we'll be able to be more specific about medications, and matching medications to the type of clotting disorder. I hope that the study at the University of Miami Hussman Institute can one day shed light on strange clotting disorders such as Thrombotic Storm Disorder.
I was on xerelto for approximately 2 years, did not miss dosages, watched my diet, no drinking, smoking or unprescribed or over the counter drugs or supplements, I went to the ER 29 Sept.2017 with familiar pain in my leg and they found a look clot in my calf, thigh and abdomen, the Doctors diagnosed this by ultrasound, not only once but a couple of times on different machines... by the way I also got a blood clot when taking plavix, it absolutely does happen.
I had a DVT due to an injury. In the hospital the skipped Warfarin and put me on Xarelto right off the bat. Two days after discharge I had another DVT and a PE. I ended up spending an additional 8 days in the hospital and was switched to Warfarin.
I've had a heart attack and then blood clots 4 years later. It sounds like blood clots to me. I went through the exact same thing when going through the clot issue. I had 5 in my right leg and 1 in each lung. The ones in my lungs were sizeable.
Hi I’ve just found this thread. I had severe bi lateral pulmonary embolism in June 2016. I was active, I worked full time & went to the gym 3-5 times a week. There was no reason for the clots so was put on Xarelto/Rivaroxiban for 6 months initially then life. A few months ago I was changed from 20 mg to 10 as I was told this may be a reason for my complaint of not being much better. I lost my job, no longer go to the gym, need a ridiculous amount of sleep & I’m getting more chest pains now very similar to the I initial ones. I had a heart scan last week for pulmonary hypertension but I’m convinced after seeing these comments I have another clot...
My husband was on Xarelto for over a year. He died September 3, 2018. Cause of death, blood clot. In my opinion it doesn't work in all cases. It gives a false sense of security.
Did you end up getting any resolution to this? I had a PE 23 days ago and was put on Xarelto. I had a hemorrhage and pretty severe damage in my left lung as a result. I was feeling almost back to normal, and then, on day 21, I had to switch my dose from 15mg twice a day to 20mg once a day. Since I did this, I’ve been experiencing chest pain and difficulty breathing similar to when I had my PE. Trying to see if anyone else had experienced any changes in pain when going to a lower dose of Xarelto. Reading all of these responses about people getting clots while on it is scaring me a bit.
I was diagnosed with my first PE In July of this year. I was told I had multiple blood clots on both lungs then 5 weeks later I didnt take the xerelto for 5 days which was stupid of me but as i felt depressed at the time It was the last thing on my mind. Then Again 3 weeks later I had 1 more episode and now as we speak I think I may have more don’t listen to the symptoms on the nhs website the only symptoms I had was the first time was the most severe pain when i breathed in and pain in my arm and shoulder I was not out of breath at all and it was multiple clots it also hurt when i turned on the same side. The other episodes there was just pain in my left sided chest and pain when I breathed in so you can’t always rely on the evidence of google symptoms !! Sorry this post is so long but yes you can still clot while on this medication .
- Xarelto Information for Consumers
- Xarelto Information for Healthcare Professionals (includes dosage details)
- Side Effects of Xarelto (detailed)
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