Prednisone for Sarcoidosis User Reviews
Brand names: Rayos
Prednisone has an average rating of 6.8 out of 10 from a total of 4 reviews for the treatment of Sarcoidosis. 25% of reviewers reported a positive experience, while 0% reported a negative experience.
- thank...
- Taken for 1 to 2 years
- December 16, 2012
"I graduated from initial 40 mg to 2.5 mg. This was found to be ineffective as I was always in and out of the hospital with cough and other symptoms of sarcoidosis. I was later put on 20 mg and all symptoms disappeared. My doctor is considering reducing it to 10 mg."
- GiMysz
- Taken for 1 to 6 months
- March 5, 2016
"Taking prednisone for 6 weeks starting 60mg daily. After first week it significantly reduced chest pain. In week 5, dosage was already at 40mg, started feeling anxiety, tremors, increased blood pressure and heart beat 114-125, blurry vision, diahrrea, low potassium, decreased thyroid function, increased glucoze, and muscle weakness in legs. Dr reduced dosage to 20mg and prescribed potassium supplement. K came back to normal within a week. Now still on 20mg prednisone. So far my inflammation in mediastinal lymph nodes did NOT shrink and still having chest pain. Working on the right dosage and length of treatment."
Frequently asked questions
- What is considered a high dose of prednisone?
- Is it OK to drink alcohol with Prednisone?
- How long can you take prednisone safely?
- What's a good prednisone taper schedule?
- ralph...
- September 8, 2015
Deltasone (prednisone) "Feeling hyperactive like I can't walk fast enough, having to wait on a thought to process, always wanting sweet, salt and crunchy food. Med after 7p keeps me awake at least 4 hr although I feel tired. Only been on for 1 month for new sarcoidosis Breathing much better! Chest tightness better! Energy level better !"
- Bc1976
- Taken for 6 months to 1 year
- August 20, 2021
"I went to the hospital in December 2020 with pains in my lungs. The Dr said it was muscles then did a chest xray. Then told me it was pneumonia. In January had a lung biopsy found out it was sarcoidsis. Was in the hospital for 4 days with a tube through my ribs into my lung because my lung collapsed. I have been on prednisone 6 months the sarcoids got a little better. But I have scarring. I was off the prednisone for 2 weeks my lungs started to hurt again. So the dr put me back on. So I have been on prednisone for 7 out of the 8 months. They have me on a bone pill, magnesium, calcium and vitamin D. Because of cramping in my hands feet and legs. I bruise really easy. People stare at my arms when then talk to me. My immune system is weak so I get infections. I feel like rubbish every day."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Deltasone, Rayos, Sterapred, Prednicot, Sterapred DS
"This is the only drug doctors recommend for sarcoidosis. The side effects of other heavy-duty immune suppressant drugs are considered worse than the sarcoidosis symptoms. It's a dual-edged sword. It does reduce inflammation and makes breathing easier, but it also has permanent effects. For me, it permanently reduced thyroid function, increased puffiness in the face, overall weight gain, insomnia, and overall muscle stiffness to the point of spasms."