Saphnelo User Reviews & Ratings
Saphnelo has an average rating of 7.0 out of 10 from a total of 2 reviews on Drugs.com. 50% of reviewers reported a positive experience, while 0% reported a negative experience.
| Condition | Avg. Rating | Reviews | Compare |
|---|---|---|---|
| Lupus | 2 reviews for Lupus | 54 medications | |
| Add your review | |||
- Gram
- Taken for 1 to 6 months
- October 22, 2023
For Lupus "I have had no lupus fevers since starting Saphnelo. I also have more energy and my bloodwork has returned to normal for the first time in years."
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For Lupus "I began Saphnelo in August 2022. During the first infusion, I experienced dizziness. Ten minutes later, I developed a migraine and nausea that lasted 2-3 days. The same symptoms occurred during the second and third infusions. For the fourth infusion, I made sure to stay well hydrated and took 2 Extra Strength Tylenol before the session. This seemed to help alleviate the symptoms. In November 2022, during my yearly eye exam, it was discovered that I had Plaquenil toxicity, and optic/retinal nerve damage, and I was taken off Plaquenil. Fortunately, I was still on Saphnelo and hoped it would be my saving grace. However, as Plaquenil left my system, I started feeling progressively worse. I became sicker than I had been in years. From January to May 2023, while still on Saphnelo, I contracted COVID twice, Norovirus, several sinus infections, and a UTI. My infusions were delayed by a week or more each month, and I even missed one infusion entirely. As of June 2023, since my last infusion 10 days ago, I have been experiencing constant nausea, an ongoing headache, a sore throat, dizziness, chills, and a low body temperature ranging from 95.2°-96°. If this is the future I can expect while on Saphnelo, I am considering discontinuing the medication."