The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Stelara (ustekinumab) for Psoriasis: I had never had psoriasis until age 50 it came on all of a sudden pretty much all over my body and nothing worked to get rid of it. I started the Stelara injections 10-7-13 and was amazed at how it cleared. I also was using the vitamin d cream at night. Just had my second injection 11-7-13 yet this time it did not work near as well. The psoriasis is back and getting as bad as it was prior to the first shot. It's a bummer because the next injection won't be for 3 months. Just so happens had my yearly blood work 10-14 and my cholesterol was 280/170 it has never been that high. I am also a breast cancer survivor and remembered the first time to have them inject my right arm as I had lymph nodes removed from the left side wonder if thatmatter
Stelara (ustekinumab) for Psoriasis: I have had psoriasis since I was 4. Been on everything from biologics to light therapy. Stelara cleared me up but not without a price. I m a very healthy,exercise minded individual. Since being on, my blood sugar is off, I have night sweats, swollen breasts, feet, hands, swollen tonsils, and tiredness. My vitamin d levels are also low. Went of stelara for 6 months and every side effect went away. Flared up and went on it again and all symptoms came back!
Stelara (ustekinumab) for Psoriasis: After 6 years on Enbrel, it finally stopped working and I started on Stelara this past July 2013. Excellent results clearing tough, thick-skinned body areas like elbows and knees within 1 to 1.5 months and I'm very pleased. Somewhat perplexing while on Stelara are short cycles of psoriasis turning up and then disappearing from thin-skinned areas like scalp while the bigger problem body areas remain clear. I never had scalp psoriasis while on Enbrel, but I'd still choose Stelara overall for faster, better overall clearing.
Stelara (ustekinumab) for Psoriasis: Back when Stelara was first approved for psoriasis, my dermatologist went ahead and put me on it. I cleared in one shot, took the next 2, and we laid off. Minor side effects - some swollen tonsils and sinus issues. Fast forward a year and half - went back on it - after my second shot, I spent the next 6 months going through a continual round of sinus infections that required injected antibiotics, and got confirmed influenza A despite being vaccinated. Tests showed likely my immune system couldn't handle.
Stelara (ustekinumab) for Psoriasis: 54 years old ..chronic psoriasis for over 49 years. I've had all the treatments known and then some. This medicine is a God send. It's the only treatment that's ever truly worked and I can say I'm 100%.
Stelara (ustekinumab) for Psoriasis: Wow, what can I say, this medicine has changed my life. My head was the worst, completely covered. Had to put oil on it and leave it on most of day or over night. My head would be stiff after 3 days with the build up. After one treatment it was completely gone. So happy now. Was thinking about going on disability but now don't have too.
Stelara (ustekinumab) for Psoriasis: I am 50 years old and have suffered with severe psoriasis for 45 years. I've tried every treatment known to man and the best is Stelara. I was clear by the second injection and no side effects. I did take a study injection years ago and it worked but made every joint and muscle in my body swell and pain. Needless to say I stopped taking the medicine. I have been taking injections now for 10 years and my blood work is always perfect so there doesn't seem to be any long term effects.
Review by AMAZING results! (taken for 2 to 5 years):
Stelara (ustekinumab) for Psoriasis: I have suffered from severe plaque psoriasis for ten years. I have taken every biologic medicine that is available and Stelara has been by far the BEST. It has totally changed my life the past two years and the GOOD news is my dermatologist said it is not one of the medicines that eventually stops working like the others. If it clears you and you are healthy with no major side effects its possible to live a psoriasis free life for years! The side effects of many biologics were harsh especially Remicade but the last two years on Stelara I have only noticed a bit of fatigue and only one upper respiratory infection.
Stelara (ustekinumab) for Psoriasis: My Psoriasis started in my sophomore year in college (1985). Every year, my condition has gotten progressively worse. I've tried everything from PUVA, steroids, coal tar, Methotrexate, Enbrel, Humira & more. I've had success with the biologics, but got very ill with sinus infections on both Enbrel and Humira (so bad that I got vertigo and had to go to hospital via ambulance). I took 2 years off and now just started Stelara (had my "booster" second shot yesterday). My dermatologist is shocked how I've cleared already! This is a miracle and any person out there who can take it, should. I'm also sleeping so much better during the night-- not scratching in my sleep! Good luck and hopefully one day, we'll have a cure for this dreadful disease.
13 users found this comment helpful.
Stelara (ustekinumab) for Psoriasis: I have had two injections of Stelara so far and I am clear of all psoriasis. I did not have psoriasis too bad, just on my hips, elbows and the side of my nose. I have kept my head shaved which helps keep it off my head. I have been dealing with psoriasis for over 20 years, but have just recently developed psoriatic arthritis (about 3 years now) I was on Enbrel and it worked well for the psoriasis but did nothing for the arthritis, and it looks like Stelara is going to be the same way even though the doctor said it should work better than Enbrel for arthritis. The only other change in my lifestyle that I have noticed is the fact that I can hardly sleep. 3 hours a night on a good night. Not sure if this is because of the Stelara or not.
Stelara (ustekinumab) for Psoriasis: Received my second shot and am completely clear from chronic psoriasis. No side effects, can't believe the results happened so quickly. I am so happy, I am rid of this terrible disease.
14 users found this comment helpful.
Stelara (ustekinumab) for Psoriasis: After my first initial starter dose my my affected areas (back, rear end, hips, front legs, hair line, and behind the ears) were almost totally clear. After my next shot to present my skin is totally clear. I only have one issue (possible side effect), raising LDL (bad) cholesterol. My Dr. did not think it was the cause. Had a regular liver enzyme test ordered by Dr. I used another facility for the labs as I have no insurance. This test came with a full liver profile and my total cholesterol was 350. It's never been over 220 and that's when I drank, smoked, overweight, and ate terrible. All of those are now null. We tested it again a week later and it was 344. I waited 2.5 months and retested and it was 285. Nothing has changed, except time.
Stelara (ustekinumab) for Psoriasis: I started on Stelara in December 2012 after trying everything from creams to Methotrexate to Enbrel. While Enbrel mostly worked after about 4 months everywhere on my body except my elbows it started losing it's effectiveness after about 6 months, with Psoriasis cropping up on my scalp and other places. My doctor put me on 25mg Stelara and I noticed results almost immediately. My elbows are still my problem area, while the area fades nicely it flares up again after about a month, so waiting 2 months for another injection is awful. My nurse is going to ask if we can increase my dosage to hopefully keep the results for a full 3 months. I have a great benefit plan that covers me 100%.
Stelara (ustekinumab) for Psoriasis: 45 years with psoriasis. Tried everything - no luck. On Stelara for three years now. WONDERFUL experience. Only side effect is I am always tired, but I can live with that as I no longer have ANY symptoms. Wonderful medicine but VERY expensive. This would be the LAST medicine I would give up if I had to give up my meds.
11 users found this comment helpful.
Stelara (ustekinumab) for Psoriasis: I too been suffering from psoriasis all my life. I'm 34 and was on Stellara for a while last year. Then a month ago. Became hard headed and drank alcohol. What happen next my psoriasis flared up. Where its the worst ever. Joints were bothering me like crazy. Flaking everywhere. Now back on Stellara. Can't wait to be better again.
10 users found this comment helpful.
Review by Bambi999 (taken for 6 months to 1 year):
Stelara (ustekinumab) for Psoriasis: I have suffered from psoriasis for 20yrs and the condition fluctuated over this time. I have tried creams, methotrexate, light therapy and cyclosporine - none of which helped. Eventually I saw a fantastic dermatologist - I had to try 3 treatments and if they failed, I could apply for permission to try biologics. I tried Enbrel first -worked until I fell ill with tonsilitis & my psoriasis came back with a vengence. I switched to Stelara, I am about to take my 5th injection, and it has been amazing. Within weeks, I was almost clear. This was the 1st summer I've been happy to show my body at the beach! Minimal side effects too.
40 users found this comment helpful.
Stelara (ustekinumab) for Psoriasis: Stelara very effective, have been on it for 3 years and can lengthen time between injections i.e. 16 weeks without too much flare up. Have experienced chronic rhinitis and symptoms of depression as side effects.
18 users found this comment helpful.
Stelara (ustekinumab) for Psoriasis: Stelara was just as effective as the other Biologics (Enbrel, Humira), a bit inconvenient is the Dr. visit for the injection, but it is better controlled in this application. Great medicine for psoriasis, been on it for 3 years and just recently getting headaches (5 days since injection)...I'll give another 48 hrs, then I'll check in with my Dr. I am still sold on this medication, wonderful break through.
14 users found this comment helpful.
Review by Anonymous (taken for less than 1 month):
Stelara (ustekinumab) for Psoriasis: I think Stelara is okay. I have had psoriasis for thirty five years. First shot two weeks ago has barely done anything but has lightened the patches. I also have psoriatic arthritis.
11 users found this comment helpful.
Stelara (ustekinumab) for Psoriasis: After going through the PUVA, topicals, vitamin E, fish oil, dry skin lotions, both tanning under the sun and even meditation. The answer to my psoriasis has finally arrived after 10 years in the form of Stelara. I'm 47 years old, single, workout at the gym 2x a week and mountain bike every weekend. Two weeks after my first shot in June 2012, I saw improvement on my skin: the scales were flatter and I didn't itch as much, and my dry skin didn't seem to be dry as it was. My face and scalp had the most obvious clearing, that my hair stylist asked what shampoo I was using. When I came back for my next injection in July 2012, I was 90 per cent clear! Now I believe I am 100 per cent clear. So far no side effects. Thank you Stelara.
34 users found this comment helpful.
Stelara (ustekinumab) for Psoriasis: This medication just makes me ask the question WHY PEOPLE STILL TAKE METHOTREXATE AND 6-MP FOR PSORIASIS? I've been on this medication for about a year now and it's been a life saver. It took me from 80% body coverage (very thick plaques under all hair follicles, eyebrows would crack and bleed, just horrible) to just having a few little spots within 8 weeks. If your doctor is going give you a TNF blocker, tell him you want Stelara. So much more effective, convenient, and with fewer side effects. It's now classified by my insurance as the same coverage as Enbrel for psoriasis, and is even covered to a greater degree than Humira. In turn, you may be able to get it as a first line biologic if you request it.
28 users found this comment helpful.
Review by takingmylifeback (taken for 1 to 6 months):
Stelara (ustekinumab) for Psoriasis: I have both psoriasis and psoriatic arthritis. I have been dealing with psoriasis for over 20yrs all over my body and head ...always embarrassed and having to wear long sleeved shirts. Those of you that are still looking for something Stelara is worth trying. I love it after trying several other medications this is so far the best. I have found and it helps with both. I haven't had any side effects either. I have a 3yr old and I can finally take him to the park alone.
19 users found this comment helpful.
Stelara (ustekinumab) for Psoriasis: I have had horrible psoriasis since the age of 20. Even as a kid I had a flakey scalp that was embarrassing. Stelara for me feels like a miracle. I have been on Enbrel, cyclosporine, and I've used all of the steroids. I've used the Pagano diet which is very difficult. Stelara is great. When I combined UVB lights at the doctors office with Stelara my skin cleared up 100 percent in about 3 and a half weeks. My scalp even cleared up. This is the only medicine that works that I've used. The blood tests to stay on the medication are expensive and sadly many insurance companies won't pay for this. I hope that changes. I was so sick I could not work and got Stelara through charity for 1 year. It is amazing.
24 users found this comment helpful.
Stelara (ustekinumab) for Psoriasis: I'm 26 and was diagnosed with Psoriasis about 5 yrs ago. I have Psorisis ALL over. I've tried everything from topical ointments to PUVA light treatments. The lights helped externally but with Psoriasis, we need help from the inside out. I've tried Enbrel and Humira. I've been on a waiting list for Stelara. I FINALLY have recieved my first shot last week and this is AMAZING. Within this one week, all of the flakiness is gone and my patches are reduced to a soft pink flesh color and are no longer warm to the touch. I can tell it's slowly working and cannot wait for my next shot. The only side effect that hit me was an upper respiratory infection which included coughing and sore throat and only lasted a week.
26 users found this comment helpful.
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