Modafinil for Narcolepsy User Reviews (Page 5)

Brand names: Provigil

Modafinil has an average rating of 6.6 out of 10 from a total of 145 reviews for the treatment of Narcolepsy. 54% of reviewers reported a positive experience, while 26% reported a negative experience.

Reviews for Modafinil

Diann...
February 17, 2018

"This drug has made my husband have ED, he now is SO moody , irritable & nasty to live with... I have to live on other side of our home to avoid getter Blasted with his daily insults, demeaning belligerent horribleness!!"

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JMiller
March 8, 2021

"Increases my energy but leaves me with a headache all day that by the time I'm off work I am miserable. It also gives off a sluggish feeling like being under the influence of alcohol to a certain degree...light-headed/ dizziness kind of thing. Hard to focus."

6 / 10

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Lucien
Taken for 1 to 2 years
March 11, 2021

"Works pretty well for me, if I forget a dose, I get extremely debilitating migraines the day after. The meds last about 6 hours and then wear off extremely suddenly. I've had instances where I have just suddenly crashed and fallen asleep while eating dinner, taking a bath, etc. Overall, it actually helps me stay functional, before I was on medication, I would be drinking 2 energy drinks per day just so I could stay awake through the day. Happy to say I don't use those anymore."

7 / 10

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Frequently asked questions

Anonymous
September 1, 2016

"Modafinil gave me no relief from my day time sleepiness at all the medicine gave me headaches & made me nauseous all day long. I stopped taking & tried to deal with living with narcolepsy without medicine but that only lead to more problems for me."

1 / 10

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Sleep...
Taken for 1 to 6 months
June 12, 2023

"I have narcolepsy without catalepsy. I end up getting so sleepy, fatigued, and feeling like my head is full of cotton. This medication did absolutely nothing for me. They even increased my initial dose to twice the amount I initially started with and it had no effect. In fact, the ONLY effect it had (and maybe TMI) is that it made my urine smell TERRIBLE! Like celery. This is apparently a rare genetic side effect, but it's so unpleasant. I'm now on Adderal XR and am it is like night and day with how well it works."

1 / 10

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Are you taking this medicine?

Beach...
Taken for 10 years or more
November 20, 2021

"Been taking this for 10 years or so. I take 800mg a day along with Concerta 36-50 mg. My opinion? I don't like it. Never did from day one. I took Desoxyn for years before this. One small pill a day . My original Dr. gave me 5 mg. Desoxyn worked like a charm. He retired and my present Dr. decided this combo is better, It's not. What I find it to be is, it keeps you in an awake state without the Concerta, a "foggy" awake state. (regardless of dosage) I feel like I'm full of pills because the tablets are so large, I got used to this "dip" you get where you feel like your in trance for about 20 minutes..(even with one of the pills and it takes hours to peak). No matter how I juggle them I seem to stay more alert at night.. Desoxyn was 3 dollars and something for a months supply. THESE? Thank God I have a Prescription Card. I felt myself with the Desoxyn. It activated in minutes and lasted all day. No comparison. Great if you want to be a nightwatchman."

3 / 10

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Anonymous
Taken for 2 to 5 years
August 7, 2012

"Useful for narcolepsy, gives you more awakening and alert. Recommended low dose with a little caffeine for use in several years. Not useful for long term depression if you have problems modafinil. It makes you more alert and awake. "

8 / 10

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Flossy
Taken for less than 1 month
December 1, 2020

"I suffered debilitating myalgia in my upper back that also traveled up to my jaw. I have TMJ and this med negatively affected that as well (frequent to constant lockjaw). I only took it for a week and by the seventh day I couldn't move because the back pain and my jaws were hurting so bad. This med was definitely not a good fit for me in treating narcolepsy."

1 / 10

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James
Taken for 5 to 10 years
May 7, 2018

"I have had very little side effect on this medication and it helps a lot. There is stronger drugs out there but I cannot stand their side effects. So this is good for me and maybe others that dislike the side effects of other medications."

8 / 10

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Anonymous
November 4, 2009

Provigil (modafinil) "Provigil has worked well at treating my Narcolepsy. I had to stop taking it when I was pregnant and resumed taking it after my daughter's birth. If you choose to take Provigil and have children, you need to be driven around for the duration of your pregnancy and up until you are back on the medication."

7 / 10

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repul...
Taken for less than 1 month
October 9, 2022

"Generic Modafinil is a dirty nasty drug; it made me paranoid & my skin crawl. Had previously taken name brand stimulants with no side effects. Modafinil made me feel down right insane! I'll never take another generic stimulant ever again!!"

1 / 10

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Celti...
June 1, 2009

"This is the first and only drug I've ever taken for narcolepsy and my standard of life, work, etc. has improved incredibly since then. I do get the side effects (dry eyes, dry mouth, crawling skin, headaches, tummy problems and ironically enough: sometimes tiredness too) but these are subsets of one main side effect - massive dehydration. So I just drink lots of water and am mindful of it. Once you get over the main onset headache (which admittedly took me a few weeks), the benefits far out way the cons. I'm lucky with the costs as I live in the UK so 6 boxes x 30 tabs(200mg) only costs the price of a prescription (about "

9 / 10

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Menta...
Taken for less than 1 month
July 7, 2021

"Have had Adderall before to treat narcolepsy & loved it! Then I had a doctor switch me to Modafinil bc it's "less addictive" & not as high of a controllable with the government. It made me feel completely crazy & about made me come out of my skin and loose my mind! As a drug I feel like it was just a step above bath tub crank! No thanks never again will I ever consider taking it again!"

1 / 10

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Loulou
Taken for less than 1 month
December 5, 2020

"I MAY have narcolepsy (from reviews here with people who have been diagnosed with it), I have the exact same symptoms but without cataplexy , I slept up to 14 hours a day plus 1-2 naps. I walked out of 3 jobs as I could not stay awake. My sleep doctor (which I now have) plus my respiratory therapist have been working with me 13 months now, looking for the right sleep apnea, mask and settings for me. Nothing kept me awake so the doctor put me on 100 mg Modafinil 1 or 2 pills, up to twice a day. The dose that works for me is 2 pills. I am hyper all day long and its fantastic. Modafinil has given me my life back. I am in Ottawa, Ontario, Canada and I am now 67 years old, I retired with a tiny pension from the Government of Canada at age 58 because I became too exhausted to work."

10 / 10

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Emah
Taken for 2 to 5 years
January 27, 2021

"I got diagnosed with Narcolepsy in 2017 and I was given modafinil after my Ritalin lost its effectiveness. I started with 100mg 1x a day, then moved to 200mg 1x a day. It gives me terrible body aches and at times I wake up feeling like I got hit by a bus, but I also have a genetic connective tissue disorder - so they put me on baclofen. The Baclofen counteracts the pain and I no longer get the body aches. 200mg wears off after about 5 hours though and I find myself very sleep by noon, so I'm also supplementing 20mg of Ritalin with the 200mg of Modafinil. With this combined regimen of medication, I am finding myself with more energy than I've had in years and feel like a fully functioning human being again. Beware of some nausea and body aches and it not lasting very long, but other than that it's great."

7 / 10

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Big...
Taken for 1 to 2 years
January 24, 2022

"Yes it works you just need more and more till it causes other problem , I just want to stay awake . Cataplexy anxiety . . The side affects list must be read by the consumer, the docs never told me the side affects or showed me the list. My parent shocked after research"

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tandr...
Taken for 5 to 10 years
May 5, 2024

"I have been taking (Provigil) Modafinil 200 mg for many years. It was determined after multiple sleep studies that I had narcolepsy. Without this medication, I would fall asleep at work during meetings and just talking with coworkers. Taking the Modafinil is literally like day and night for me. It keeps me awake during the day with no side effects. If I forget to take my medication, it will be obvious to my office coworker, and she will say, 'Did you forget your medication today?' Without it, I am tired, sluggish, and feel horrible. I cannot live a productive life without Modafinil!"

10 / 10

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Anonymous
Taken for less than 1 month
November 13, 2012

Provigil (modafinil) "Felt like the energizer bunny! Within an hour I was racing around work. Pain I normally have(back surgery) disappeared but after 6 hrs when I slowed down finally, I ached everywhere!"

10 / 10

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Infin...
Taken for 2 to 5 years
September 16, 2015

Provigil (modafinil) "Sensational medication. Provigil taken alone for my narcolepsy kept me awake and alert when needed yet allowed me to take my short nap(s) through out the day when needed."

9 / 10

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Anonymous
June 24, 2008

Provigil (modafinil) "Works great for my Narcolepsy; the only complaint I have is that the price is prohibitive. It is the only medication that has worked effectively for my condition and with dramatic results."

10 / 10

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53 Report

Millie...
Taken for 5 to 10 years
July 11, 2014

Provigil (modafinil) "This was more effective than any others tried including Ritalin, Vyvanse which made my heart rate rise to the 140s. Modafinil worked quickly but not suddenly and lasted for the entire day."

10 / 10

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Anonymous
April 30, 2008

Provigil (modafinil) "compared to ritalin i was taking, provigil works much better and less side-effects. hasnt effected my blood pressure"

10 / 10

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Sagem...
July 25, 2013

Provigil (modafinil) "Wide awake, enhanced reflexes, but too expensive."

10 / 10

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CM550
Taken for 1 to 6 months
August 16, 2016

Provigil (modafinil) "over 2 months on provigil. still tired, can't remember words, yawn all day. only side effect was appetite suppressant. which is all I felt. waiting for Dr to prescribe something else."

2 / 10

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Willie
Taken for less than 1 month
December 10, 2019

Provigil (modafinil) "Does not work for me at all. It gave me bad head aches and I still slept all the time."

1 / 10

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19 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.