Modafinil for Idiopathic Hypersomnia User Reviews
Brand names: Provigil
Modafinil has an average rating of 4.6 out of 10 from a total of 8 reviews for the off-label treatment of Idiopathic Hypersomnia. 38% of reviewers reported a positive experience, while 50% reported a negative experience.
- Tabatha
- June 19, 2022
"After many years of sleep problem I was finally diagnosed with Idiopathic Hypersomnia. I feel my mind clear up, the fog goes away and I can finally think and process like I used to. I finally have the energy to do the things I need to do for myself and my family."
- Mark
- Taken for 1 to 6 months
- November 17, 2021
"At first this worked just okay for me. It worked for about 4-5 hours before I crashed hard, but I took it twice a day (100mg twice a day, combo with 10mg Adderall) and that worked better. In the past month, I noticed problems when at practices for my college swim team. When we were in more intense practices I felt like I reached a cap in regards to energy, I couldn't go any faster, felt out of breath, like my lactic acid was at its max after barely starting a hard set. Even when I didn't take the Adderall I had these same problems, after going to my dorm my heart rate was at 162, like it was going to jump out of my chest. After connecting the dots I remembered I've been short of breath a lot more often than I should be, just thinking my asthma was worse. Turns out, Modafinil is a Histamine inhibitor, which can cause the bronchials to swell and cause allergies. I'll have to halt Provigil and Nuvigil unfortunately. It worked great for me, until it made me a worse breather."
Frequently asked questions
- Modafinil: Smart Drug For Decision Fatigue Or Workaholic Crutch?
- Modafinil vs Adderall: What's the difference?
- Debbie
- Taken for less than 1 month
- October 5, 2022
"I have been suffering from excessive sleepiness for most of my life. I'm 47 now and I feel like I am sleeping my life away as I will sleep an average of 16-18 hours on the weekends and have to call out a few times a month because I can't wake up in the morning. I am on day 2 of 200mg of Modafinil and it has zero affect on me aside from increased heart rate. Day 1 I took it an hour before I had to be at work, zero affect. I couldn't wake up, slept in and was late for work. Day 2 I took it at 4:30am and still couldn't wake up. Got to work on time but I can barely keep my eyes open. I don't think this medication works for me, I'm so disappointed."
- Akala...
- June 27, 2023
"This magical medication increased my energy level from 10 to 10.25. It's a great success; it's pure magic! But after a while, I became drowsy, then lethargic, and finally, I felt like I was about to die. It's a rather powerful hypnotic. I have insomnia as a disease, and sometimes when nothing works, I take it as a sleeping aid. Works like a charm; again, it's pure magic! I've talked to many people who have taken this magical medication, and it's the most awful one."
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- Amanda
- November 15, 2021
"This is the only thing that keeps me alert and ready for the day. It does not replace sleep. If I didn’t get a good night sleep of course it will not work as well. It must be taken in the morning or you will be awake super late. I cannot start my day without it. If I do not take it I will stay in bed napping all day."
- mafra...
- Taken for 6 months to 1 year
- January 13, 2022
"My experience with modafinil has been good. I've always had issues of severe "sleep attacks" about three times per day. Coffee tends to put me in a fog 9 out of 10 times. So I would take short, power naps (< 30 minutes) to help alleviate the attacks. The naps never truly brought me back to life. The worst of the attacks would be around 6pm. I would yawn a few times per minute and felt like I would faint. With two kids under three, that can be a big problem as I'd have to leave the family for a moment while I napped. I slowly increased the dosage and found 200mg worked best. I no longer have those huge crashes nor feel faint. That being said, I've found that I need to take it within two hours of waking up. When starting the medication, I could feel the jitteriness but after a week that went away. When you first start out, skip the coffee to see how the pill affects you by itself."
- Anonymous
- Taken for 1 to 6 months
- August 24, 2021
"Gave me a headache. Put me in a mental fog. Would only work for a couple hours then no benefit."
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"Provigil worked great at first. My body developed a tolerance very quickly though, and I had to start taking 200mg twice a day. Even though I’m taking this much of it every single day I am still really tired and have no energy. I might as well not even be taking the medication. The benefits are so minimal. It’s like instead of sleeping 20 hours a day, I sleep 19 hours a day. there’s not enough improvement."