Levothyroxine for Hypothyroidism, After Thyroid Removal User Reviews (Page 5)

• Extreme...
• Taken for 1 to 2 years
• April 8, 2022

Levoxyl (levothyroxine) "I was doing okay on Levoxyl until my last refill. Finally put it all together tonight and figured it out. Refilled March 3, 2022 and started to feel bad three days later. At first I was tired, and then cold, hair falling out, my ears are ringing, increase in appetite, aches and pains, constipation, dry mouth, foggy brain, and just getting worse and worse. I do not have a thyroid so I completely depend on the medication. This happened once before when I was on levothyroxine and they ended up recalling that med. This is awful. Will call pharmacy tomorrow. Heart rate is in the 50’s, slowing down."

• Suzette
• Taken for 5 to 10 years
• May 29, 2019

"Nine years on this med and I feel worse. Osteoporosis, I developed it after being seen for extreme hip pain, a bone density test was ordered and Osteoporosis seen. I have to have hip and lumbar injections. I also feel research should be reevaluated on desiccated thyroid meds. My mother and grandmother was on this type and did wonderfully. The claims against it sound like a classic coup for pharmaceutical companies."

• Thia
• Taken for 1 to 6 months
• May 3, 2021

"After levothroid was no longer manufactured, I tried Levoxyl. My body did not respond well to this. I get hives from synthroid. So, I am on a generic. And since I have no other alternative, I go from Mylan, to the Bayer ,now on Acella.(2 months). My legs are are swollen . Especially my feet. Muscle pain, skin itches and I have a rash. Kidney pain. Gastrointestinal problems. The list goes on. I just wish they would make a decent replacement. I have lived without a thyroid for 49 years. Have not woken up in the morning feeling refreshed. Just as tired as when I went to bed. These are no replacements."

• MTano
• Taken for 6 months to 1 year
• January 21, 2021

Tirosint-Sol (levothyroxine) "I have been on Tirosint-Sol (liquid, not the pill form) for about a year. This medicine has improved the way I feel tremendously! I took Synthroid for years and never felt good on it. I initially started on a lower dose of Tirsont-Sol than my Synthroid but am now up to the same dose. I love that it is not full of fillers. I am so glad that I discovered this medication."

• chris...
• Taken for 6 months to 1 year
• November 5, 2021

Euthyrox (levothyroxine) "I was switched to Euthyrox (Walmart Pharmacy) because I guess their contract ended with a different generic and it was becoming increasingly difficult to get those ordered every month. So, I said screw it and obliged to Euthyrox. Just like my experience in the past to switching thyroids meds, I had every reason to believe this would make my thyroid to go completely bonkers and I had even prepared to get labs done frequently. And to my surprise, my labs have stayed normal and has even improved by a few decimals. Note to patients: get labs done frequently whenever switching thyroid medications. Better yet, try not to switch at all. But if you have to, get labs done as much as you can. I wish doctors and pharmacists made their patients aware that switching different brands and generics can cause some issues. Do your due diligence and you'll be fine. I'm actually glad to be taking Euthyrox, an actual brand-name drug for the price of a cheaper generic. The blister packaging is great."

• LuciNZ
• August 24, 2017

"I got a total thyroidectomy around 5 weeks ago following a small papillary carcinoma. No need for RAI so was started on 125mg/day of thyroid replacement pills (100mg levothyroxine and 25mg Sythyroid). I am feeling completely normal and can't notice any changes in energy etc since the surgery. Everything is going smoothly!!"

• Dr Sa...
• July 12, 2009

"Reviewers who have had deleterious symptoms after using this drug after thyroidectomy due to cancer were either overdosing or underdosing it. Adequate dosing has virtually no side effects for otherwise healthy patients. "

• Banne...
• Taken for less than 1 month
• October 9, 2017

"Levothyroxine 50mcg was prescribed. First time user. First day took only half. By mid day I felt hyperactive. Had difficulty falling asleep at night. 2nd day took 1 tab. Still felt overactive for the day. Still insomnia 3rd, 4th, 5th day heat intolerance set in. I had the airconditioner on all day and all night. 6th day, all were felt and at about 7pm severe headache was felt while at a party. Headache was so severe it felt like the pressure on my head was going to bust off my head. Cooled off by putting ice on my face which also made my glands swell, did not lower the pressure on my head. Took blood pressure reading when I got home. It was very high. I have never felt such pressure headache before in my life nor high blood pressure reading."

• MRano
• November 30, 2009

"I have Grave's Disease and after treatment, my thyroid is hypoactive. My doctor put me on the Levothyroxine, but I struggle with constant fatigue and insomnia. I changed to Armour Thyroid a few months ago and noticed considerable improvements-- not only in my fatigue and energy levels, but in my mood. I struggle with depression while I'm on the levothyroxine, but I don't on the Armour Thyroid. Also, on the Armour Thyroid, my skin and hair were much healthier, my appetite and gastrointestinal system more regular, and what an incredible thing it was to actually sleep! I have had to go back to the Levothyroxine because of problems getting the Armour thyroid (it's on backorder). I have insomnia again and I'm always miserably tired."

• DCG
• Taken for 1 to 6 months
• February 22, 2022

Euthyrox (levothyroxine) "I do love the internet for this type of communication. Wal-Mart switched me back in late November 21 to Euthyrox. By late December I thought I was going to need my prostate removed. Body aches, joint aches, fatigue and brain fog to boot. Do not let happen to you. Back on levothyroxine and after 2 days, everything improved."

• Carley
• Taken for 1 to 6 months
• March 18, 2022

Euthyrox (levothyroxine) "This stuff is awful. Had thyroid removed November 17th, 2022. It took a while to get my levels normal. When they finally were normal I felt terrible. Chest pains, anxiety, go from cold to burning up, insomnia, loss of focus and so much more. Through the grace of God I found this website. Dr immediately change my medication when I showed him what I found. It is really bad and makes you feel out of control because you can't slow your heart down or do anything about the anxiety. I have been off of it for 3 days and I am praying the side effects go away soon. If you are having these problems take a deep breath and give yourself a break. Exercise was the only thing that would help, but the chest pain, fast heartbeat and anxiety would come right back. Tell the people around you so they can give you a break. It makes everything really hard and the smallest thing will frustrate you and then you fill worse. Try to remember it's the medicine and not you and it will get better."

• Anonymous
• Taken for 10 years or more
• July 31, 2020

Levothroid (levothyroxine) "I took armour thyroid for 40 years and Dr put me on levocyl. Anyway a few months ago he dropped my dosage to 50 from 75. The tests showed there was a need. I feel drained...tired. Can I get back on 75 even if test shows I should be on 50?"

• Von
• Taken for 2 to 5 years
• November 11, 2022

"Poor experiences from this medication. The side effects & warnings given with the drug, TAKE NOTICE, it does happen. Headaches, irregular heart beats, shortness of breath, flushing & swelling of the hands, feet, ankles and lower legs!! Yes you can have all of these from the generic. They try to tell you the makeup/compounds are the "same", BUT they AREN'T!! If they were you wouldn't have all of the side effects. I can sit in a relaxed position watching a comedy all of a sudden my heart will race and shortness of breath till the episode subsides. I don't have any of these problems with Synthroid. Unfortunately my insurance requires a prior approval for the brand name, my Doctor and I have to jump through hoops every year to get my insurance to cover the brand name."

• Roberta...
• September 30, 2015

"Diagnosed Summer of 2000 with Graves' disease. (I was a hot mess with a huge goiter in my throat and my eyes were bulgy along with hair falling out and weight loss mood changes) (5-6 years prior to finally being diagnosed with Graves, Drs thought I had major depression and anxiety) A few weeks later I had radiation therapy to kill off my thyroid. Endocrinologist put me on non generic Synthroid. Then the Symthroid was recalled and I panicked. I have to be on this Med if not my life is over. But then dr put me on Levothyroxine and I'm here today. It actually works better than the Synthroid. I'm currently on .200 MCG a day."

• Monimon
• April 10, 2021

Euthyrox (levothyroxine) "Thank you everyone for sharing your experiences with this drug. I couldn’t figure out why my hair was falling out and I was dizzy all the time since I filled my prescription in January at Walmart! Switched back to levothyroxine tonight!"

• JRR
• Taken for less than 1 month
• January 4, 2022

Euthyrox (levothyroxine) "Within just a few days of taking this brand of medicine I broke out in head to toe hives, rapid heart rate and trouble breathing. I’ve been on the generic for levothyroxine from Walgreens and Krogers for years with no issue. Had to get a steroid injection from dr and she immediately called in a new prescription to Walgreens for levothyroxine. I’ve filed with the FDA and will be talking to Walmart tomorrow, who is who switched me to this horrible medication. After reading these reviews I know I’m not crazy for how bad this medicine made me feel."

• hcat
• Taken for 1 to 6 months
• December 6, 2021

Euthyrox (levothyroxine) "Had my thyroid removed in 2006, and have been taking Levothyroxine for years with no issues. Walmart recently switched me to Euthyrox. Just had my labs done and my TSH level was 20! Warning to everyone, do NOT take this medicine!"

• Bobby
• Taken for 5 to 10 years
• May 4, 2019

"Oroxine does not work and you usually get most of the side effects that they have listed on their CMI sheet - also Aspen is the only manufacturer of thyroid meds including generic brands. Oroxine is a T4 medication only- which doesn’t work. Aspen also make Tertroxin which is T3 but doctors either don’t know about it or won’t prescribe it for some reason - I have been on Oroxine for 8-1/2 years two years ago I was diagnosed with osteoporosis now stage 3 kidney disease - side effects of too high a dose of Oroxine - Aspen needs to do a customer survey to see how many people are struggling everyday by taking a medication that doesn’t work -"

• Jossie
• November 22, 2020

Synthroid (levothyroxine) "I had large thyroid nodules and was advised to have a Thyroidectomy which I did 5 months. It seem that it is hard to adjust my dosage of thyroxine which started at 11/mcg, 88 mcg and now down to 50mcg’s . I was told that my thyroxine level was low? Is this usually normal after having a Thyroidectomy. The nodules were benign."

• Marti...
• Taken for less than 1 month
• November 4, 2021

Euthyrox (levothyroxine) "Hello, I have been switched to Euthyrox and have been taking for 8 days. the pharmacist said it's the same thing but different packaging. Day 4 started to feel lightheaded , nauseated, terrible muscle aches and feeling extremely tired. Very hard to concentrate, so I had to go to the ER , they said nothing wrong levels were fine today. Maybe I was getting a virus. now that I am reading these posts , I am convinced it IS this new medicine. I was on levothyroxine for 10 years and no problem. a few days of this and felling like rubbish! emailed my doctor to let them know and got a hold of the office and they show that the only one he prescribed was levo. not Euthyrox.I am contacting Walmart and my doctor again to get a my levothyroxine back. If you stop taking Euthyrox how long before side effects go away? ER brushed off without even checking into. I told them about it, but labs were normal today. If I kept taking, I wonder if my labs would have come out worse."

• mmmou...
• Taken for 10 years or more
• September 20, 2020

Synthroid (levothyroxine) "Synthroid in high doses can precipitate hyperthyroidism and in severe cases thyroid storm, cardiac shock, severe tremor, etc. It is often given with other medications which interact such as lithium, and therefore some chemical synchrony and finesse would be required. Mistakes can be avoided that way. The opposite of course is hypothyroidism. I hope we can have a collaboration between chemists and doctors in polypharmacy. Experience has taught me quite a bit. Cheers"

• Rae...
• December 12, 2020

"More recently I got put on a generic and have had lots of problems!! My life has been miserable!! I have a different PCP and these people to not seem very knowledgeable regarding thyroid (which I believe is very common). At the same time I was also under a lot of stress so I thought the stress was causing my symptoms, except the stress is over and the symptoms are still there and getting worse and worse. I was taking good care of myself, eating well, getting lots of exercise, taking supplements, etc. but everything I was doing was not helping. Saw my PCP and she is putting me back on Levoxyl. This was an awful experience. My heart rate was very low, I was extremely cold, I lost about half of my hair, and my skin was extremely dry no matter how much cream I put on it. And a lot of other symptoms too. Depression was bad. Joint pain and stiffness. I had swelling under my eyes, and my hands were swollen. And at the end I was extremely fatigued. The rating is for the generic medication."

• Jan
• Taken for 6 months to 1 year
• November 4, 2021

Euthyrox (levothyroxine) "Total thyroidectomy in 2017. Been taking levothyroxine for 3 with years with normal and consistent labs showing therapeutic TSH suppression. The Walmart pharmacy switched me to Euthyrox and it was not therapeutic at all... TSH was raised to 22. The only change was the medication... Beware!!!!"

• rebecca
• Taken for 1 to 2 years
• September 29, 2022

Euthyrox (levothyroxine) "In 1995, I had thyroid removed. In 2003, there were thyroid nodules. They were removed. Later, found some of it had grown back. Been taking levothyroxine for 20 plus years. Just like everyone else, around the time the pandemic started, all of a sudden my prescription was switched to the Euthrox brand. I didn't really think much of it. Just blamed the pandemic. But funny thing was, my mom's thyroid meds were not changed. (Maybe because of her age?) Never thought about it. My doctor didn't know about it. She didn't think much of it, said it wasn't recommended but since I really wasn't complaining and she was preoccupied with life I guess- she kept me on it. Didn't monitor it well. Went to another doctor.. Well, a lot of the effects mentioned here started popping up - but I didnt think it would be the meds. After many tests, New doc put me back to levo. Started today. Will update in 30 days. Stay on the medicine brand you originally started on. Follow the plan.You know your body."

• Maineah
• Taken for 10 years or more
• March 9, 2021

"I had a thyroidectomy in 2006 - benign growth. For 12 years I was on Levothyroxine Milan mfg. and my TSH stayed around 2.6, about 3 years ago due to insurance change they substituted from Milan to Lanette mfg. I spent 6 months going back to doctor for excruciating neck and headache. I found out after research ,the Lannett mfg, had a lactose binding agent in it. I changed doctors, he thought it was all in my head and told me to get a massage. I went back to Milan mfg., but my TSH recently has been .26. Started having pain nightly on mastoid bone behind left ear, insomnia , and joint pain. I am so frustrated, I like my doctor but he isn’t an endocrinologist. Anyone have symptoms like these?"