Levothyroxine for Hypothyroidism, After Thyroid Removal User Reviews (Page 4)

• angela...
• August 16, 2016

Synthroid (levothyroxine) "Had my thyroid removed at age 9 (cancer) 38 yrs ago. Been on Synthroid ever since then. My dosage has changed over the years. I am now on 150 mg (blue tablets) I have been getting a all over skin rash and itching for the last 4 months. After numerous tests my doctor told me it may be the dye in the blue 150 mg tablets. Has anyone else experienced this problem? I just switched today to take the 50 mg (white tablets with no dye) three times a day. I am hoping this was the problem."

• Care
• Taken for 10 years or more
• July 18, 2021

Tirosint (levothyroxine) "After other useless generics, name brand Tirosint was most effective. Known as the hypoallergenic, it has no dyes and weird additives. Worth the name brand money. My thyroid removed in 2001. Give it a couple weeks to level out. Covered due to failure of others, have doc get a drug exception."

• margo...
• Taken for 1 to 6 months
• June 23, 2021

Euthyrox (levothyroxine) "I was writing a email to my doctor because my eyes were super irritated and dry and when I looked in the mirror it seem like they were bulging again. I realized that I haven't been able to really sleep at night and I recently experienced a minor rash that I wrote off as something else. I had hyperthyroidism 15 years ago and had my thyroid removed but I'm also a T1 diabetic so I didn't realize that what was going on might have been related to the change in medication. Recently Walmart also changed me to euthyrox and I just happened to google the medicine while I was writing to my doctor and found these reviews. I'm definitely asking to be switched back. I will also file a complaint with the FDA."

• firep...
• Taken for 2 to 5 years
• October 2, 2016

Synthroid (levothyroxine) "I was 1st diagnosed w/hyperparathyroidism.The dr. said it wasn't bad to just watch it.After a couple of years it got worse-I saw another dr. & he did 6 biopsy's-found that I had Papillary Cancer-following mo. I had my thyroid & 2 parathyroids removed-surgeon put me on 100mcg of generic Synthroid-seemed to be doing ok until I had the RAI, twice, then everything messed up. I was still having hair loss, ears ringing, teeth getting bad, bathroom habits were never the same, cramps, affected my salivary glands permanently so I'm dry all the time plus I've put on 25 lbs. I eat, I don't eat, it doesn't matter, the weight will not come off.The Endo dr. changed my dosage to 112mcg & I seemed to be doing better.I am back to 100mcg w/previous symptoms."

• sheramo
• Taken for 1 to 6 months
• April 14, 2023

Euthyrox (levothyroxine) "Worst drug on the planet!!!! I had always taken levothyroxine until May 2022. I went to get a refill when the pharmacist at Walmart said they had switched to Euthyrox. He told me it was the exact same thing, so I thought nothing of it. The side effects were absolutely horrid. Gaining 15 pounds, have extreme fatigue, a rash on my chest, extreme irritability, and hot flashes just to name a few. I feel like I was robbed months of my life taking this medicine that I was not warned about. Not to mention in the meantime, we had spent hundreds of dollars seeing doctors thinking it was my hormones or maybe diabetes. Thankfully I complained to my sister enough about how bad I was feeling she googled the drug (something I never thought about because I was told it was the exact same thing as levothyroxine). I got off of it in September and I still do not feel like myself! I hope and pray they take this off the market."

• jrb
• Taken for less than 1 month
• October 26, 2020

Unithroid (levothyroxine) "I had a partial thyroidectomy. I took generics for years and the Sandoz distributed generic made by Cediprof disappeared after a distributing war. I needed a brand so this won't happen again. I felt terrible on Unthroid from the moment I took it in the morning, with nausea, finger pain and overall ill feeling. I didn't take it the next day and the symptoms went away. My Dr recommended Levoxyl and all those symptoms went away and it's cheaper. Unithroid puts a bunch of rubbish in their meds and clearly it does make a difference."

• Mrs...
• Taken for 6 months to 1 year
• October 1, 2015

Levoxyl (levothyroxine) "I've used this drug for years until the recall. I take 175 mcg. I switched to Synthroid and it was "just okay." I missed Levoxyl. After I learned Levoxyl returned to the market I requested to be placed back on it. I've had several problems with my TSH levels being too low (0.02 and 0.03!) meaning that my dose is too high."

• Nisat...
• Taken for 10 years or more
• October 10, 2018

"This drug does me no good, swells up my face, body, fatigue, no energy, brain fog, more depressed, insomnia, appetite increase, more migraines, dry swollen irritated eyes, sinusitis ,blurry vision, anxiety, overnight weight gain, heat intolerance, sweating more, hair falling, heart palpitations, muscle spasms in neck, shoulders, back, legs, acne, just miserable. I've told Drs. I can't take this medicine, it does nothing for me, but they don't listen for over 50 years. I've had a total thyroidectomy, thyroplasty and as a result of surgical negligence, permanent paralyzed left vocal cord, compromised voice box, permanent laryngeal spasms. So miserable"

• Anonymous
• June 15, 2022

Tirosint (levothyroxine) "I have been on tirosint for about 7 weeks. I was on synthroid, then levothyroxine, then armour. This is the only medicine that seems to work. I also take 5mg of t3. I take it first thing at 540 am wait an hour or more to eat and it’s successful. I sleep well, I’m losing weight. I’m normally around 150 pounds and I gained up to 210 on the other medications. I’m finally feeling more normal again. Let’s hope it stays this way"

• Anonymous
• Taken for 1 to 6 months
• June 17, 2023

"IF you start on Synthroid brand sometimes you can not switch to the generic Levothyroxine. Reason a person can be allergic to the fillers in the generic brand. But, if you start on the generic, you can switch to the Synthroid brand. Many, many years ago this was settled in a Federal District Court case. The worst side effect I had was spontaneously falling asleep, especially during a conversation, therefore, I was afraid to drive a car until I got back on the Synthroid brand. Another was mood changes and crying for no reason. Due to changes in a state law, pharmacies were required to fill prescriptions with generic drugs unless doctors notified them otherwise."

• other...
• October 9, 2016

Synthroid (levothyroxine) "Took 1.0 right after surgery for ten years. Then special ist concerned to high. Conservative drop to .95 then dropped to .88 when dropped to .88 was very tired put on 5 lbs in 5 dayswas a weight watchers person has lost 20 pounds took me ten months to lose 20 then change in dosage gain 5 pounds added steps up to 20000 a day and cut portions back more finally ten months later have kept 20 pounds off . I worked hard to do this since the change from .95 to .88 made me very tired. Now they want to drop it to 65? I am still tired constipated and do not understand why if I am borderline? Whatever that means why would you stop it to .65 very disappointed. Have moved to clovis California will have to find new doctor. Change in meds really stressed"

• Hope
• Taken for 1 to 2 years
• May 26, 2023

Synthroid (levothyroxine) "I had my thyroid removed in December 2013 and have not felt like me since it was removed. I have been on Synthroid 100mcg and am having back and knee pain, terrible chest discomfort, tiredness, fatigue, and shortness of breath which prevents me from doing daily chores as I would like. Doctors keep saying it has nothing to do with the med but I beg to differ. Cardiac work up fine; at times cholesterol goes up, glucose and blood pressure go up, and the list goes on. When will the doctors listen to patients and don’t try to tell them how they feel (because they are not the ones suffering)? Pray that I can find a doctor who has thyroid problems. These drug companies are thinking of their bank accounts and not that of the people that have to take their drugs."

• Retired...
• July 5, 2021

Tirosint (levothyroxine) "I was on generic levothyroxine for a couple of years and developed wheezing. When I received inhalers and even nebulizer treatment it had adverse effects and worsened my asthma symptoms. I read about Tirosint and persuaded my PCP to prescribe it. I have to pay $80 every month out of pocket. My asthma is completely gone. It was drug induced, probable some fillers in the generic levothyroxine caused it. I wish my insurance company would make it less expensive."

• Nadia...
• February 6, 2016

Unithroid (levothyroxine) "I get sick, angry and depressed from the medicine. I get migraines, I can't take it but through my research I am going to ask for Armour , it is natural but it replaces two hormones and you do need a prescription"

• Denewco
• March 4, 2016

"Do not do it! I causes tiredness, mental fog, emotional instability, and depression. The thyroid is critical to mental function. This med will cause you to behave in ways your find surprising. The problem is that this is a T4 only medication. Your body also produces T1, T2, T3."

• Aplied
• Taken for 1 to 6 months
• December 18, 2022

Euthyrox (levothyroxine) "I have used Levothyroxine for 30 years. I was first on Synthroid, but had to switch due to cost. Then I was on generic levothyroxine 125 mcg. Five years ago I was lowered to 100 mcg, everything was still fine. Three months ago Walmart filled my prescription with Euthyrox. I have taken this for 2 1/2 months. I feel horrible, I already have heart issues, R.A. Now I have no energy, my hair is falling out, I am gaining weight, all the stuff I used to have. Also, my blood work shows my thyroid is low. How could Walmart just up and give me this crap drug? Doctors need to make a stand for the patients. If they don’t give me what I had, I’m done with Walmart."

• Anonymous
• Taken for 1 to 2 years
• January 15, 2022

Euthyrox (levothyroxine) "Weight gain 2 to 3 pounds a month after levothyroxine was changed to euthyroid with 40 pound weight gain. Have lack of energy and after 2 years have fatigue, thinned skin, chronic muscle soreness and decreased libido."

• Tom
• Taken for 10 years or more
• August 26, 2016

Unithroid (levothyroxine) "My thyroid was removed in 1978 due to cancer. I started out on Armour but was eventually switched over to Synthroid. I have had no side effects from the drug and my doctor and I have been happy with the results. Frequent blood monitoring dictated that I alternate between 175mcg and 150mcg doses per day in order to fine tune my "numbers.""

• Angry
• Taken for 1 to 6 months
• July 20, 2021

Euthyrox (levothyroxine) "I have taken levothyroxine for 38 years with no issues. Lately I have been having severe anxiety, body aches and my hair was falling out. All of these things could be from other issues and I didn't connect the dots. I was refilling my med pack, and a light went off. The last time I had my prescription refilled, Walmart filled it with Euthyrox. I went on line and started reading the reviews and side effects. I have experienced nearly all of them! I have been testing for food, detergent allergies as I have had lip and mouth swelling, hives, itching. I called my old pharmacy and am going to pick up my old med. Do not use this! I am just hoping that things will get back to normal."

• fatty...
• October 31, 2009

"Been taking it for over 1 year and have had loads of weight gain which in turn makes me feel tired all the time so I'm not a happy bunny. It's hard to tell if its just the fact that I've put on so much weight that makes me feel so bad or that its a genuine side effect."

• Moon
• Taken for 1 to 2 years
• April 17, 2021

"I didn't do well using it. I felt awful all the time. If the Dr would have paid closer attention to what my body was saying instead of the test results I wouldn't have suffered over a year and a half with this medicine. It may work for some but is definitely not helpful for all."

• deptat
• Taken for 1 to 2 years
• September 6, 2019

Levothroid (levothyroxine) "Started out with the pink 200mg, had swelling in my tongue. Was switched to four 50mg tab. I hate this pill, I already have issues with insomnia it has made it 10 times worse. Not to mention that within an hour of taking it have diarrhea for 2 hours."

• Lucin...
• Taken for 2 to 5 years
• July 15, 2016

"I am so frustrated. My endocrinologist keeps saying my labs are just right on 88 mcg daily of levothyroxine. But I am miserable since thyroidectomy 3 years ago. He originally had me on a higher dose but brought it down twice. I've gained 35 pounds, lost a lot of my hair, have constant headaches, vision problems, body aches and absolutely no energy! The doctor says it's not because of my thyroid meds and says there is no alternative medication and he will not increase the dosage either. I am increasingly depressed by this but don't know where to turn. I have also lost much bone mass but refused Prolia because of known side effects."

• Tabby...
• January 20, 2018

Unithroid (levothyroxine) "This medication gave me severe gastric upset. And it messed up my levels so bad. I was on Sandoz brand for years and got switched to this. All of a sudden I'm severely overdosed. This med does absorb better then most so doctors beware."

• sally
• Taken for 6 months to 1 year
• March 18, 2021

Euthyrox (levothyroxine) "I had the right side of my thyroid removed 3/10/20 and started on Euthyrox about one month later at 75 mcg from Walmart and the side effects stink. Since I have not been on this medicine side effects are terrible. They have switched me to 50 mcg and have more side effects. Going to switch to Walgreens to see if anything is better. Because I can't live with the pain I am in right now."