Levothyroxine for Hypothyroidism, After Thyroid Removal User Reviews (Page 3)

• M77
• Taken for less than 1 month
• January 10, 2013

Tirosint (levothyroxine) "Within 30 seconds after taking this medicine, my stomach becomes a volcano. I think it is something in the coating rather than the medicine itself. Discontinued use and am now on Armour 45mg and Synthroid (not generic) 50mcg. Am still working on blood levels, but after stopping Tirosint, my stomach problems ceased. Too bad, I was really excited by this new medicine."

• Willm...
• Taken for 6 months to 1 year
• July 20, 2015

Synthroid (levothyroxine) "Due to variances in generic medications I kept experiencing thyroid fog until my doctor changed me to synthroid. My stats immediately stabilize and it has worked well. I found I must take it as prescribed and at the same time daily to avoid the fog."

• tmir
• April 9, 2015

Synthroid (levothyroxine) "I had a goiter in my teens that was treated with radioactive iodine, I've been on synthroid for almost ten years, having trouble finding the right dose, I was on 125mcg for a few years but my TSH jumped around a lot, last time I checked it was around 30, so not good, I decided to try 150mcg at first I had a bit of insomnia but otherwise I felt great, going to find out on Saturday if it's been working as good as I thought, I ran out 3 days ago... and I've already gained a bit of weight (looks like I'm bloated) and woke up this morning depressed, oh well I get more on Saturday"

• Queen...
• February 17, 2017

Synthroid (levothyroxine) "I was diagnosed with papillary thyroid cancer & had a total thyroidectomy & also lost one parathyroid. The dr used high levels of iodine during my surgery and my endocrinologist had to put me on an iodine free diet for 4 months to clear it from my body. During this time I wasn't allowed to take any thyroid meds at all. I spent that entire time in bed under an electric blanket turned on high during a Vegas summer. Nothing normal there. I was a zombie. I had to have help to use the bathroom, shower & everything I was so weak. After RAI I started Synthroid. A few months later I noticed small improvements but gained 50# within the first year. It's been 7 years now and I'm worse all the time. I've lost my life to this. I'm switching to Armour."

• Sleep...
• February 17, 2012

Tirosint (levothyroxine) "This is the third medication I have been on since my thyroid removal. Tirosint seems smoother than Synthroid. However, I have had a lot of gastro-intestinal issues and sleep issues while on Tirosint. My quality of life is now very poor. Since Tirosint is better than the other 2 medications I tried, I will remain on it."

• Janine
• January 29, 2016

Levoxyl (levothyroxine) "I'm not sure how to rate Levoxyl honestly. I had thyroid cancer and a full thyroidectomy 2 years ago and I still have yet to feel like me again. I'll be good for a few months then they weight goes back on, I'm exhaused, brain fog, and anxiety. I'm on 176mcg and 10mcg T3. I still feel like crap and unable to lose weight. I used to do bikini competitions for bodybuilding so I know how to be motivated to eat clean and hit the gym. I'm do all of this with zero results. I'm beyond frustrated."

• SPARKLE
• Taken for 6 months to 1 year
• April 16, 2020

"Total-Thyroid ectomy following Graves substernal goiter 8 mo ago. On 175mg Levothyroxin. Felt good but as the months go by, a host of symptoms: intense moods/anger, depression, spinning thoughts; hair loss, brittle no curl dry; diminished eyesight, dry irritated; bone pain; hot poker nerve pain feet; muscle cramps; tendon disturbances; Charlie horses legs rib cage!! ; hot cold flashes; itchy skin; swollen itchy neck; diarrhea; joint pain swelling; and now shoulder blade hot poker pains. Insurance forced LevoT first....I want to switch. Would love to have recommendations. I'm 70 but have always felt pretty good until now. Supplements of calcium, D3 have helped some. Also taking zinc, magnesium and potassium - helping? hurting?"

• JakeB...
• April 27, 2017

Synthroid (levothyroxine) "After my thyroid surgery, I was put on Synthroid. I continued to get WORSE until I was nearly totally bedridden. I did some research and after several months, found a doctor who prescribed medications other than synthroid. I started taking a Natural desiccated thyroid (NDT) medicine. Within two weeks, I woke up and felt like getting out of bed. I continued to improve, however my strength never came back. I am totally confined to a wheelchair now."

• Ang
• Taken for 1 to 2 years
• January 29, 2020

"I had a total Thyroidectomy June 2018 after being diagnosed with cancer. I was put on Levothyroxine. Ever since I have felt absolutely horrible. Feel the worst possible. Anxiety, tremors, mental confusion, shakey legs, hyperventilating, chest pain . Hand cramps. Feeling like I'm going to pass out. Can't drive without feeling disoriented. Several trips to the ER, MRI'S, CT'S, dozens of trips to the doctor. Chalked it up just not having a thyroid until I read others had same symptoms. My levels keep coming back too high. Keep lowering every six weeks. I feel like I'm poisoned. I have asked my doctor to switch to Synthroid from levothyroxine. If that doesn't work, we'll try something else. We will see how it works. Just want to feel normal again. Please...."

• Not-H...
• July 20, 2021

Synthroid (levothyroxine) "I had a thyroidectomy and I'm on synthroid. This medicine just doesn't work like they told me it would. It doesn't work!!!! My nails are falling off and ripping more easily. My hair which was always so beautiful and long is looking like a dollar store mop. It has breakage really bad and it's so thin and just yucky. Also gained 70 pounds"

• Dele
• August 16, 2016

Synthroid (levothyroxine) "Thyroid was removed 3 years ago due to hashimoto and nodule hyperplasia. Surgery discovered a substernal thyroid. Prior to surgery and attempts to reduce goiter with synthroid, felt terrible everyday. Multiple diagnosis due to muscle pain,fatigue, insonima, stomach upset, rapid heart beat, irrational blood pressure. Take synthroid every morning 1 hour prior to breakfast. Feel great. No negative side effects. All above symptoms are gone. Age 59!"

• hwu
• November 25, 2013

"One month after being on Levothyroxine (only 25mcg), my hair started to fall out like crazy. (did not have hair loss problem before). I lost 40% of my hair volume in the 4 month-period. I took my courage to stop taking it. 2 days after stopping, my hair loss has gradually subsided. 3 weeks after I stopped the medicine, my hair loss has started to go back to normal. I am hoping my hair to grow back. Another side effect I suggest from the medicine is that I have "burning & dry mouth". That made me very uncomfortable. I feel like a normal person without the medicine. I still have issues with the dry mouth sensation, but a lot better. I hope it will go away."

• Vinoj...
• Taken for 1 to 6 months
• June 6, 2016

Synthroid (levothyroxine) "I had my thyroid out in Feb. of 2016. I was put on 125mgr of generic Synthroid. My blood sugar was dropping below 50 on a daily basis. I looked the problem up on the internet and found that people had the same problem and advocated that I take the brand name drug to correct the problem. For the past two months I have been on the name brand and I seem to be leveling out in the high 60s with my sugar which is ok. I am stuck paying the extra charge not covered by my insurance. roughly $32 per month for 30 pills. Have had no weight gain yet which I am very happy about. I am going to ask my doctor at the end of this month to increase my dosage to bring my sugar up into the 80s or even 90s where it belongs."

• Jewel
• Taken for 1 to 6 months
• July 27, 2018

Tirosint (levothyroxine) "Had started on synthroid after thyroidectomy. Felt terrible for 2 years. Went on WP thyroid & was doing fairly well on that for 2 years until the shortage. Started out on 112 dose. This was too high, but so far I'm feeling good on 100 dose. Better than when I was on any of the 3 desiccated thyroid meds I had tried. (WP, NP, Naturethroid). So glad they make this! My only comment is 28 pills in a refill. I get mine every 90 days, so I'm shorted. It's not logical."

• Borega
• June 20, 2015

Synthroid (levothyroxine) "I was taking Levothyroid 75mcg. Lost 15 pounds, stomach pain, unable to eat, shaky, unable to think or exercise. Also have dark, stone hard stools. Will see my endocrinologist next week. When in my 30's, took Synthyroid for 16 years with no problems, then all went as above. Took Levothyroid by Forest for 4 years with no problems until it was taken of the market about 2 years ago."

• DannyRS
• December 13, 2010

Levothroid (levothyroxine) "I have used Levothroid and Synthroid. I am currently on Levothroid. It does okay, I have been able to maintain a normal life although I have bad joint pain now after 18 years of use. I have more memory problems now than I did before especially names. And I have lost bone height. I am over an inch shorter now than I was before. I am only 52 and had my thyroid removed due to cancer 18 years ago."

• Bette...
• May 19, 2009

Synthroid (levothyroxine) "I have had my thyroid removed one year ago. Medication causes blurred vision. Some weight gain nothing significant that can't be worked off with exercise. But, even though I have this problem, it's better than previous symptoms, heart palpitations, sweating, losing 20lbs in less than a month without trying."

• DarkF...
• Taken for 1 to 6 months
• September 4, 2021

Tirosint (levothyroxine) "I have Hashimoto’s and I’ve had half my thyroid removed (thanks Midwest doctors who never even tested for Hashi’s before assuming it was cancerous and removing it….). Anyway, I’ve had a horror story of a life with my thyroid. I went years after they removed half with no medication at all because they told me my other side would work on its own. It didn’t. Lost babies, felt like rubbish for years. I read all the stories on the internet that said Armour was the best and I was pregnant and didn’t want to lose another baby, so that’s what I did, I was on Armour from 2010-2021, and for some reason, Armour just stopped working for me in 2020 despite huge dose increases. Switched to Tirosint and Cytomel combo and it’s been 5 weeks and I don’t think my dose is perfect yet, but I’m becoming more regular and less constipated, my breasts aren’t sore all the time, and it’s day 28 of my cycle and I don’t feel like a run down mess!!!! Tirosint is awesome!!!!!"

• Lady
• Taken for 2 to 5 years
• July 11, 2023

Tirosint (levothyroxine) "I've been on Tirosint for roughly 3 years. I was on NP before, and Synthroid before that. I had a TT 8 years ago. I've lost nearly 50 pounds. This is the most normal I've felt after my surgery. I still have some dislikes about Tirosint, but I choose this over the others. One of the things on Tirosint is if my levels are off, even just a smidge, my menstrual cycle will go haywire. Sometimes stopping altogether. I also feel I deal with more anxiety. This was something I noticed after my surgery but is more prominent on Tirosint. I try to counteract that by taking an omega supplement. Also, I started to develop hives just a few hours after taking it. The endo said Tirosint wasn't the cause, but I had literally fasted from everything but water for 48 hours to try to figure the hives out. After speaking with the pharmacist, they advised me to take it with coffee first thing in the morning. That did the trick. Tirosint is very potent, so have labs checked every 4-6 months."

• Redhead
• Taken for 1 to 6 months
• February 16, 2020

Unithroid (levothyroxine) "I started on levothyroxine after my thyroidectomy due to cancer after about 7 months I decided to switch to brand name and my doctor picked this. While my body adjusted to the new stuff I felt awful. I had a couple days I felt really good and then boom it all went down hill. My period was four days early and horrible. I also became extremely anxious and depressed. This med is not right for me and I am hopeful to get to switch and try something new. If I have to be on it for life, better make sure it suits my body."

• Jenny...
• Taken for 1 to 6 months
• September 16, 2012

"I've been on this medicine for more than 4 months. Not feeling any better at all. More tired, and more hair loss is what I've been experiencing. Still feeling no motivation, lethargy and depressed/isolated. "

• Early...
• August 7, 2011

Synthroid (levothyroxine) "Synthroid seems to work well, but still working to get to the correct dosage. Currently, my dose is too high and I see my doctor next week to adjust. Feel fine, but have daily armpit and back sweat. Will be really glad when that stops as it's difficult to work at client sites when your shirt is soaked."

• Joseyb
• August 1, 2016

Tirosint (levothyroxine) "After trying 3 different medicines and a countless number of dosage combinations we found out that my body was not absorbing the tablets properly and the gel capsules allow my body to absorb the proper amounts. After having thyroid cancer at 15 and not being able to find anything that really worked I'm glad we tried this. The only downside is the cost since it is almost triple what I have been paying for every other medications."

• sfergu
• Taken for 1 to 6 months
• September 14, 2019

Levoxyl (levothyroxine) "I had Radioactive iodine (RAI) 29 years ago and have been on Synthroid all that time. The side effects I had got worse as the years went by. I had rapid heart beat (over medicated) and just felt awful as the years went. I just switched to Levoxyl 6 weeks ago and most of the adverse side effects I had on synthroid have subsided. However, I am listless, loss of hair is bad, terrible brain fog and just as weak as can be. Increased the dose two weeks ago and still no response. Sorry I cannot rate this a 10 yet. Will stay on it for another 6 weeks and then rerate it. Right now not responding properly."

• Drea...
• Taken for 5 to 10 years
• November 27, 2017

Tirosint (levothyroxine) "I've had my thyroid removed for over ten years now. I've taken generic thyroid medicine, Synthroid, and now Tirosint. The dye in my Synthroid kept me from getting regulated. My body responded well to Tirosint for about 5 consecutive years. Due to insurance changes, I got off of it last year and got back on this year when my physician made a few calls to assist me. To my dismay, Tirosint is not working for me, even with me taking Cytomel to help me digest and absorb it. I'm tired, have thinning hair, levels are at 8.999, and I'm sweating with every movement. I'm quite disappointed that I can't get regulated."