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User Reviews for Temozolomide

Also known as: Temodar

Temozolomide has an average rating of 7.4 out of 10 from a total of 9 ratings on 78% of those users who reviewed Temozolomide reported a positive effect, while 22% reported a negative effect.

Condition Avg. Rating Reviews Compare
Anaplastic Oligodendroglioma  Off-label 10.0
3 reviews 5 medications
Glioblastoma Multiforme   9.0
2 reviews 7 medications
Melanoma, Metastatic  Off-label 5.0
2 reviews 14 medications
Anaplastic Astrocytoma   4.5
2 reviews 2 medications
Summary of Temozolomide reviews 7.4 9 reviews

Reviews may be moderated or edited before publication to correct grammar and spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest in the medication will not be published. As reviews and ratings are subjective and self-reported, this information should not be used as the basis for any statistical analysis or scientific studies.

Ahbab June 11, 2015

Temodar (temozolomide) for Anaplastic Astrocytoma: “I had taken temodar for anaplastic astrocytoma who grade 3. Took radiation ,7 weeks temodar during radiation days 100 mg per day, then 400 mg on every day for 5 days in 28 days cycle. After completing this dose for a year it came to know that the medication did not worked and new growth of tumor found. Then dosage changed to 100 mg daily but that also could not stop growth of the tumor but moderately grown as revealed In MRI scans done twice in 4 months”

1 / 10
KJ13 June 8, 2014

Temodar (temozolomide) for Anaplastic Astrocytoma: “I was diagnosed with an anaplastic astrocytoma about 18 months ago. I had 6 weeks of radiation, then started on Temodar. I take 300 mg for 5 days every 4 weeks. I have one cycle to go. My last 2 MRIs have been clear. So far I would say this medication is working very well. As long as I take my anti-nausea medication about 30 minutes before the Temodar, I am fine. I take it at night right before I go to bed.”

8 / 10
It's working I believe? July 22, 2013

For Anaplastic Oligodendroglioma: “Doctor says her tumor that was about 95% removed has been shrinking. Thanks to the medicine for saving my moms life one by one. Don't stop fighting people with this brain tumor as well. ”

10 / 10
long term survivor -uk · Taken for 10 years or more May 7, 2013

Temodar (temozolomide) for Glioblastoma Multiforme: “Have taken a reduced dose of Temodar (Temodol in UK) for 12 years on a five week cycle. Side effects bad - nausea, vomiting, fatigue, etc. However, I have MRI scans every 8 weeks and so far no recurrence.”

9 / 10
Anonymous January 15, 2012

Temodar (temozolomide) for Anaplastic Oligodendroglioma: “Oligoastrocytoma WHO ll: It stopped the growth of the brain tumor that I've been fighting for ten years. I'm one of the lucky ones. Keep fighting.”

10 / 10
Bobby Lowe June 6, 2011

Temodar (temozolomide) for Melanoma, Metastatic: “After surgery (right axillary nodes), radiation of that site, subsequent CT scans and biopsy revealed that it had spread to his right lung. After treatment with this oral chemo (covered by Medicare), he has a complete remission of the lung tumor. Side effects were minimal. He is BRAF positive, although I don't know if that has any connection with the Temodar.”

9 / 10
tomschumm June 1, 2011

Temodar (temozolomide) for Anaplastic Oligodendroglioma: “It saved my life--what can I say?”

10 / 10
DSAMMIS May 30, 2011

Temodar (temozolomide) for Melanoma, Metastatic: “Non of the listed side effects, but after one month at prescribed dosage my red, white and platelet counts were down. Needed platelet and red cell infusion, on two consecutive weeks after dosage was stopped.”

1 / 10
Anonymous February 22, 2011

For Glioblastoma Multiforme: “have used this drug as maintenance over 100 cycles - 35day cycles. 1/2 normal dose slightly longer interval (28 day usual cycle). Some side effects but recover. Worth the side effects - 10years since surgery and radiotherapy”

9 / 10

This information is NOT intended to endorse any particular medication. While these reviews might be helpful, they are not a substitute for the expertise, knowledge and judgement of healthcare practitioners.