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WHAT YOU NEED TO KNOW:
Sjogren syndrome is a disease that causes your immune system to attack healthy cells in your body. Tear and saliva glands are the most common areas to be attacked. Sjogren syndrome may happen alone. This is called primary Sjogren syndrome. Secondary Sjogren syndrome means you also have an autoimmune disease, such as lupus or arthritis.
Contact your healthcare provider if:
- You have new or worsening symptoms.
- Your symptoms do not get better even with treatment.
- You have questions or concerns about your condition or care.
- Artificial tears are drops or gels you can put in your eyes. Artificial tears help your eyes stay moist. You may be give a prescription, or your healthcare provider may tell you to use over-the-counter types. You might need to use artificial tears that do not contain preservatives. These can irritate your eyes. Use an ointment at night. An ointment that is thicker than tears may also be helpful. They can make your vision blurry for a time. It may help to use them only before you sleep.
- Steroid drops may be needed to lower inflammation.
- Take your medicine as directed. Contact your healthcare provider if you think your medicine is not helping or if you have side effects. Tell him or her if you are allergic to any medicine. Keep a list of the medicines, vitamins, and herbs you take. Include the amounts, and when and why you take them. Bring the list or the pill bottles to follow-up visits. Carry your medicine list with you in case of an emergency.
For dry eye problems:
- Blink often. You keep your eyes moist each time you blink. Remember to blink often, especially when you are working on a computer.
- Protect your eyes. Cover your eyes when you are in cold or windy weather. You can also use a humidifier to help keep the air moist. Avoid anything that irritates your eyes, such as smoke.
- Tear duct plugs may help keep tears in your eyes. Your healthcare provider can put the plugs into the ducts. The plugs prevent tears from draining out of your eyes too quickly.
- Surgery may be needed to fix tear gland or duct problems. Surgery may help if your symptoms are severe or if other treatments do not work.
For dry mouth problems:
- Keep your mouth moist. Chew gum or suck on candy to help produce saliva. Choose gum or candy that does not contain sugar. Dry mouth increases your risk for cavities. Sugar in gum or candy can make your risk even higher. Take sips of water during the day. Try to wet your mouth each time you take a drink. Do not take sips often. You can remove mucus inside your mouth if you sip water too often during the day. The mucus coating in your mouth help keep it moist.
- Go to the dentist regularly. Your dentist can check for cavities and clean your teeth. Tell your doctor that you have Sjogren syndrome. Go to the dentist twice each year and if you have any pain or other problems in your mouth. Your dentist may prescribe fluoride supplements or a gel you can apply to your teeth at night. You may also be able to have a coating applied to your teeth to protect the enamel.
- Brush and floss your teeth. Use a toothpaste that contains fluoride. Brush your teeth, gums, and tongue. Brush after each meal and before you go to bed. Floss after your brush.
- Apply lip balm if your lips are dry or cracked. Ask your healthcare provider what kind of lip balm to use.
- Rinse your mouth with water each day. Do not use any rinse or mouthwash that contains alcohol. Alcohol can dry your mouth. Your healthcare provider may prescribe a rinse or gel to use if you have pain or inflammation in your mouth.
What else you can do to manage Sjogren syndrome:
- Be careful with your voice. You may be hoarse if your vocal cords are swollen or get irritated from a dry throat or coughing. Do not clear your throat before you talk. Drink some water or use gum or candy to prevent hoarseness. You can also make an "h" sound to clear your throat gently.
- Ask about liquids. Depending on your symptoms and other diseases, your healthcare provider may tell you to increase or decrease the amount of liquid you drink. Liquids prevent dehydration, but too much liquid can increase urination. Increased urination can lead to dryness. Limit or do not drink alcohol as directed. Alcohol can increase dryness.
- Exercise as directed. Exercise can increase your energy. Exercise can also help keep your joints limber if you have an autoimmune disease such as arthritis. Your healthcare provider can help you create an exercise plan. Ask how often to exercise and which exercises are best for you.
- Eat a variety of healthy foods. Healthy foods include fruits, vegetables, low-fat dairy products, lean meats, fish, whole-grain breads, and cooked beans. Limit foods that are high in sodium (salt). Salt can lead to dehydration and increase dryness.
Follow up with your doctor as directed:
Write down your questions so you remember to ask them during your visits.
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