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WHAT YOU NEED TO KNOW:
Guillain-Barre syndrome (GBS) is a disorder that results in inflammation and damage to the nerves in your body. This may cause mild symptoms such a muscle weakness, or more serious symptoms, such as paralysis.
- Blood thinners help prevent blood clots. Examples of blood thinners include heparin and warfarin. Clots can cause strokes, heart attacks, and death. The following are general safety guidelines to follow while you are taking a blood thinner:
- Watch for bleeding and bruising while you take blood thinners. Watch for bleeding from your gums or nose. Watch for blood in your urine and bowel movements. Use a soft washcloth on your skin, and a soft toothbrush to brush your teeth. This can keep your skin and gums from bleeding. If you shave, use an electric shaver. Do not play contact sports.
- Tell your dentist and other healthcare providers that you take anticoagulants. Wear a bracelet or necklace that says you take this medicine.
- Do not start or stop any medicines unless your healthcare provider tells you to. Many medicines cannot be used with blood thinners.
- Tell your healthcare provider right away if you forget to take the medicine, or if you take too much.
- Warfarin is a blood thinner that you may need to take. The following are things you should be aware of if you take warfarin.
- Foods and medicines can affect the amount of warfarin in your blood. Do not make major changes to your diet while you take warfarin. Warfarin works best when you eat about the same amount of vitamin K every day. Vitamin K is found in green leafy vegetables and certain other foods. Ask for more information about what to eat when you are taking warfarin.
- You will need to see your healthcare provider for follow-up visits when you are on warfarin. You will need regular blood tests. These tests are used to decide how much medicine you need.
- Heart medicine: This medicine may be given to help your heart beat more regularly.
- Pain medicine: You may be given a prescription medicine to decrease pain. Do not wait until the pain is severe before you take this medicine.
- Stool softeners: This medicine may help soften your bowel movements, decrease straining, and prevent constipation.
- Take your medicine as directed. Contact your healthcare provider if you think your medicine is not helping or if you have side effects. Tell him or her if you are allergic to any medicine. Keep a list of the medicines, vitamins, and herbs you take. Include the amounts, and when and why you take them. Bring the list or the pill bottles to follow-up visits. Carry your medicine list with you in case of an emergency.
Follow up with your healthcare provider as directed:
Write down your questions so you remember to ask them during your visits.
Manage your symptoms:
- Take deep breaths and cough 10 times each hour. This will decrease your risk for a lung infection. Take a deep breath and hold it for as long as you can. Let the air out and then cough strongly. Deep breaths help open your airway. You may be given an incentive spirometer to help you take deep breaths. Put the plastic piece in your mouth and take a slow, deep breath, then let the air out and cough. Repeat these steps 10 times every hour.
- Heat: Heat helps decrease pain and muscle spasms. Apply heat on the area for 20 to 30 minutes every 2 hours for as many days as directed.
- Rest: Rest when you feel it is needed. Slowly start to do more each day. Return to your daily activities as directed.
- Physical and occupational therapy: A physical therapist teaches you exercises to help improve movement and strength, and to decrease pain. An occupational therapist teaches you skills to help with your daily activities.
- Liquids: Ask how much liquid to drink each day and which liquids are best for you. This may help to prevent constipation.
- Eat healthy foods: Healthy foods include fruits, vegetables, whole-grain breads, low-fat dairy products, beans, lean meats, and fish. Ask if you need to be on a special diet.
- Do not smoke: If you smoke, it is never too late to quit. Ask for information if you need help quitting.
You may need to stay in a skilled nursing facility until you are well enough to go home. You may need special ramps and side rails to help you move around safely in your home. For awhile, you may not be able to feel hot and cold things as well as before your illness. Have someone else test the water before you bathe to keep from burning yourself.
You may have an increased risk of problems after you get certain vaccines. Ask your healthcare provider before you get immunizations to help prevent the flu or pneumonia.
For more information:
- Guillain-Barré Syndrome Foundation International
P.O. Box 262
Wynnewood , PA 19096
Phone: 1- 610 - 667-0131
Web Address: http://www.guillain-barre.com
Contact your healthcare provider if:
- You have a fever.
- You have new or worsening skin sores.
- You have changes in your vision.
- You have swollen or tender calves.
- You cannot have a bowel movement, or it becomes more difficult.
- You have redness, a rash, or swelling of your skin.
- You have questions or concerns about your condition or care.
Seek care immediately or call 911 if:
- You are drooling or have difficulty swallowing.
- You faint or cannot think clearly.
- Your lips or fingernails turn pale, dusky, or blue.
- You have shortness of breath.
- You become unable to move part of your body.
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The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.