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Gastroschisis

Medically reviewed by Drugs.com. Last updated on Oct 3, 2022.

What is gastroschisis?

Gastroschisis is a birth defect. Your baby's intestines, and sometimes other organs, are pushed through an opening near his or her belly button. The opening may be small or large. His or her intestines will float freely in amniotic fluid during pregnancy. This may cause the intestines to become irritated, swollen, or damaged. Your baby will be born with his or her intestines and any other involved organs outside of his or her body. Gastroschisis is a life-threatening emergency that needs surgery as soon as possible after your baby is born.

What increases my baby's risk for gastroschisis?

The exact cause of gastroschisis is not known. Your baby's risk may be increased if his or her mother used cigarettes, alcohol, decongestants, or NSAIDs during pregnancy. His or her risk may also be increased if his or her mother has urinary tract infections.

What do I need to know about delivery?

  • Healthcare providers can usually see the intestines on an ultrasound before the baby is born. They will be visible on your baby's abdomen after he or she is born if it was not found on an ultrasound.
  • You will need to deliver your baby at a hospital or facility that has experience with gastroschisis. Your baby may be premature or smaller than normal. He or she will need to stay in the neonatal intensive care unit (NICU) so he or she can be cared for by healthcare providers. He or she may be placed on his or her right side to keep the intestines from becoming twisted or developing other problems.

What will happen after my baby is born?

  • A ventilator may be used to give your baby extra oxygen. A ventilator is a machine that breathes for your baby if he or she cannot breathe well on his or her own.
  • A nasogastric tube may be used to relieve pressure. The tube will be placed into your baby's nose and guided down to his or her stomach. Suction is used to remove fluid and air from your baby's abdomen.
  • Your baby will have an IV placed in a vein. Healthcare providers will use the IV to give him or her liquids and medicine. He or she will get nutrition through the IV so that his or her intestines do not have to process the nutrition. He or she will get antibiotics to prevent an infection caused by bacteria.
  • Your baby will be kept warm. He or she will be placed in a warmer. The warmer will help prevent him or her from becoming too cold from his or her exposed organs.
  • Your baby's intestines will be protected. Healthcare providers will wrap the intestines in moist gauze and cover them with plastic to prevent fluid loss from the intestines. They may place your baby's lower body in a medical bag. The bag is designed to keep your baby warm and prevent dehydration from moisture loss.
  • Tests will be used to plan treatment. Healthcare providers may use x-ray, ultrasound, or other pictures to check your baby's organs. Blood tests will also be used to check for infection and show how well his or her organs are working.

How is gastroschisis treated?

Your baby may need to stay in the hospital for 1 to 3 months. He or she may need to stay longer if he or she has medical problems.

  • Organ reduction means the amount of intestines is small enough for healthcare providers to put them back into place. They will be guided through the opening in your baby's abdomen. The opening may be covered with part of the umbilical cord stump. After a few days, the opening may close on its own. This method may give your child a more normal looking belly button when he or she is older.
  • A silo is a device used to help put the organs back into your baby's abdomen. It is used if he or she cannot have surgery right away. Your baby's intestines are put into the silo. The silo is tightened over a few days to help guide the organs into place. The silo will then be removed, and the abdomen will be closed during surgery.
  • Surgery is used to put your baby's intestines or other organs back into his or her abdomen. Your baby may have surgery right after he or she is born. He or she may need to wait a few days if he or she is not strong enough for surgery or if the opening on his or her abdomen is large.

What are the risks of gastroschisis?

  • Your baby's intestines may become infected or develop necrosis (tissue death). He or she may have a shorter bowel than normal. This may prevent his or her body from absorbing nutrients correctly. He or she may need to have surgery on his or her bowel. As he or she grows, he or she may have trouble feeding or breathing. He or she may not grow as quickly as expected. He or she may also develop a bowel obstruction (block) or get sick more easily than other children.
  • Even after the gastroschisis is repaired, your baby may have problems feeding. His or her body may not absorb nutrition correctly and he or she may need a feeding tube. Liquid from his or her stomach may get pushed into his or her lower esophagus and cause damage. He or she may have constipation or abdominal pain often. He or she may develop a food allergy or intolerance.

How can I prevent gastroschisis in a future pregnancy?

Take prenatal vitamins as directed. Make sure the vitamins contain 400 micrograms of folic acid. Folic acid helps prevent birth defects such as gastroschisis. Do not smoke cigarettes or drink alcohol while you are pregnant. Do not take any medicines unless your healthcare provider says it is okay. Ask your healthcare provider for other ways to prevent gastroschisis.

Call 911 if:

  • Your baby is not breathing, has breathing problems, or is wheezing.
  • Your baby's skin or nails are blue.

When should I seek immediate care?

  • Your baby has a fever.
  • Your baby has constipation, blood in his or her bowel movement, or loses weight.
  • Your baby has apnea (periods of not breathing).
  • Your baby has green or yellow vomit.

When should I contact my baby's healthcare provider?

  • Your baby has fewer bowel movements than usual or has feeding problems.
  • Your baby has a swollen abdomen or is vomiting.
  • Your baby is crying more than usual, fussy, or difficult to comfort.
  • You have questions or concerns about your baby's condition or care.

Care Agreement

You have the right to help plan your baby's care. Learn about your baby's health condition and how it may be treated. Discuss treatment options with your baby's healthcare providers to decide what care you want for your baby. The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.

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Further information

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