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Behcet Syndrome

WHAT YOU NEED TO KNOW:

Behcet syndrome, also called Behcet disease, is a condition that causes inflammation of your blood vessels. Inflammation may happen when your body attacks its own healthy tissue. Behcet syndrome may affect any blood vessel, but most commonly affects the blood vessels in your intestines, eyes, mouth, genitals, or brain. Behcet syndrome may increase your risk for certain problems, such as blood clots, or swelling of tissues that surround your brain and spinal cord. Behcet syndrome is not contagious.

DISCHARGE INSTRUCTIONS:

Call 911 for any of the following:

  • You have any of the following signs of a heart attack:
    • Squeezing, pressure, or pain in your chest
    • and any of the following:
      • Discomfort or pain in your back, neck, jaw, stomach, or arm
      • Shortness of breath
      • Nausea or vomiting
      • Lightheadedness or a sudden cold sweat
  • You have any of the following signs of a stroke:
    • Numbness or drooping on one side of your face
    • Weakness in an arm or leg
    • Confusion or difficulty speaking
    • Dizziness, a severe headache, or vision loss
  • You feel lightheaded, short of breath, and have chest pain.
  • You cough up blood.
  • You have trouble breathing.

Seek care immediately if:

  • Your arm or leg feels warm, tender, and painful. It may look swollen and red.
  • You have blood in your vomit or bowel movement, or when you cough.
  • You have severe abdominal pain.
  • You have a severe headache, stiff neck, and are vomiting.
  • You have trouble walking or keeping your balance.
  • You have trouble moving your arms or legs.

Contact your healthcare provider if:

  • You have a fever.
  • You have changes in your vision.
  • You have new symptoms.
  • Your symptoms do not get better with treatment.
  • You have questions or concerns about your condition or care.

Medicines:

  • Medicines may only be given during a flare-up. You may be given medicine to decrease pain and inflammation. Medicine may also be given to prevent your immune system from attacking healthy tissue. Medicines may be given as pills, ointments, eye drops, or mouth rinses.
  • Take your medicine as directed. Contact your healthcare provider if you think your medicine is not helping or if you have side effects. Tell him of her if you are allergic to any medicine. Keep a list of the medicines, vitamins, and herbs you take. Include the amounts, and when and why you take them. Bring the list or the pill bottles to follow-up visits. Carry your medicine list with you in case of an emergency.

Self-care:

  • Rest during a flare-up. Slowly start to do more each day. Try to do activities that decrease stress, such as listening to music. Stress can make symptoms worse.
  • Apply ice or heat on painful joints. Apply ice on your joint for 15 to 20 minutes every hour or as directed. Use an ice pack, or put crushed ice in a plastic bag. Cover it with a towel before you apply it to your skin. Ice helps prevent tissue damage and decreases swelling and pain. Apply heat on your joint for 20 to 30 minutes every 2 hours for as many days as directed. Heat helps decrease pain and muscle spasms.
  • Eat soft, bland foods if you have mouth sores. These foods will decrease mouth and throat pain from ulcers. Examples include applesauce, gelatin, mashed potatoes, cooked vegetables, rice, and pasta.
  • Get regular exercise when your symptoms are gone. Exercise prevents stiff joints, increases your energy, and improves your mood. Do exercises that decrease stress on your joints, such as swimming or biking. Ask your healthcare provider to help create an exercise plan that is right for you.
  • Join a support group. It may be helpful to talk with others who have Behcet syndrome. For more information:
    • American Behcets Disease Association
      Web Address: http://www.behcets.com/site/c.8oIJJRPsGcISF/b.9145371/k.BD9A/Home.htm

Follow up with your healthcare provider as directed:

Write down your questions so you remember to ask them during your visits.

Further information

Always consult your healthcare provider to ensure the information displayed on this page applies to your personal circumstances.

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