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We found 16 questions associated with the 'Xyrem' topic.
Posted 13 Oct 2013 • 3 answers
Is there anyone with CFS who has had success with Xyrem? I've suffered with CFS (not fibromyalgia) for about 25 years and would be interested in hearing what benefits Xyrem has provided. Thank you, Kim
Posted 13 Feb 2017 • 2 answers
orexin nasal spray could give you a cure without side effects of this expensive medication. They have already done studies and continue to do research in Germany but Narcolepsy seems to not be important enough to cure because JAZZ Pharmaceutical wouldn't make money, they would actually lose ...
Posted 30 Aug 2010 • 2 answers
I am a narcoleptic whose cataplexy was treated with Xyrem until I began to develop a severe loss of muscular strength that seems to have been associated with the drug. My physician has switched me to Anafranil, which has worked very well on the cataplexy, without the muscular problems I was ...
Posted 17 Oct 2012 • 2 answers
My narcolepsy is bizarre. I have months where I sleep 14 hours, and still exhausted and always in a fog and exhausted. Even if I get the recommended 8 hours I am ALWAYS tired. Then I have insomnia for months and can't get to sleep on ambien, lunesta, restoril, you name it. I was just given ...
Posted 5 Aug 2013 • 2 answers
I just started 2 weeks ago and tonight I did not fall asleep after my first dose. In fact, I am wide awake 2 hours after taking it. Always before after 5-10 minutes I was out. Haven't had any food, no stimulants - I have no idea why it didn't work. Any ideas? I am on 2.25 mg twice a night.
Posted 2 Feb 2014 • 2 answers
My Doctor is suggesting that I start Xyrem for my Narcolepsy/cataplexy. I am concerned that I will not wake up when my alarms go off. I can barely do it now, most times I don't even know I'm turning them off or sleep right through it all. I am on Ritalin 20 mg 3x day right now, and it ...
Posted 6 Apr 2014 • 2 answers
I was recently diagnosed with narcolepsy brought on by a brain injury in an accident. My accident was a year and a half ago. I have taken adderal and nuvigil and other amphetamines none worked well enough. I just tried xyrem for the first time last night. I took one 2.25 dose around 2 at night. I ...
Posted 3 Jun 2015 • 2 answers
i have been on xyrem for 8 years and swear it saved my life. I have been experiencing short term memory loss and wonder if it could be my xyrem? I take 3.75 mg twice at night and have no daytime sleepiness now. The memory loss may be normal with age but can't help but wondering if it is my ...
Posted 13 Dec 2009 • 2 answers
Posted 15 Oct 2012 • 2 answers
Posted 30 Nov 2015 • 2 answers
My husband is on Xyrem and has been for 8 years. It has definately improved his sleep but has some very concerning side effects which I think are from his overdosing. When he first started he was instructed to take his first dose around 10pm and having not eaten anything since 8pm. Then take 2 ...
Posted 21 Nov 2011 • 1 answer
I wake up after taking Xyrem and I have immense pain in my shoulder and arm. I'm pretty sure I may have fallen down the stairs or something, but I can't remember. Well, I took some Tylenol Extra Strength (acetaminophen, 500mg) to tide the pain, but now I'm reading sites that say that ...
Posted 10 Aug 2013 • 2 answers
Posted 2 Jun 2015 • 1 answer
... been on Xyrem about two weeks. As of last Thursday ive had an almost constant headache. I started drinking Pedialyte thinking that rehydrating was a good idea, but then the pharmacist says that its the high salt content that may be contributing to the headaches. So pedialyte is not the way to ...
Posted 31 Jul 2015 • 1 answer
I have been on xyrem for 4 weeks now and am now up to 4.5 grams twice a night. It helps me sleep better at night but I am seeing no changes at all in my narcolepsy symptoms. I know everyone is different, but can yall tell me how long it took for yall to notice a difference so I can have some kind ...
Related Condition Support Groups
Xyrem Patient Information at Drugs.com
- Xyrem Information for Consumers
- Xyrem Information for Healthcare Professionals (includes dosage details)
- Side Effects of Xyrem (detailed)