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Sjogren's Syndrome Questions


We found 40 questions associated with the 'Sjogren's Syndrome' topic.

What is the correct way to discontinue use of plaquenil?

Posted 12 Nov 2009 by awl 8 answers

I started 200mg/day of plaquenil on May 2th. Was told by the doctor that the med, should help me control the systemic arthrirts(Sjogren syndrome /lupus) after 4-6 months of using the med. So far I have no more energy than when I first started and has developed neuropathy which I have just found out ...

Sjogren's Syndrome - My insurance no longer covers Cevimeline or Evoxac. Both worked well for my dry

Posted 11 days ago by lbsymone 0 answers

... mouth. The covered medication is Pilocarpine which doesn't work for me. Has anyone else experienced this? What was your solution. Also can anyone instruct me on the best discount pharmacy card I will have to pay without insurance coverage

Sjogren's Syndrome - Hi odd question about fruit... I've had trouble swallowing fruit as sour?

Posted 23 Sep 2017 by LindNC 0 answers

... sensation is painful! currently waiting to get into see rheumatologist to verify SS. But .7 on one antibody 1.5 on other. Positive ANA and one anti-smith positive -but most symptoms I've had most of my life(50+) Should I mention sour issue? I had tonsils and adenoids removed and it ...

Does anyone know if you have to be weaned off Plaquenil? I've been on it for 15 years, for Lupus?

Posted 21 Dec 2015 by Lupie523 3 answers

I've been on it for 15 years. My vision is being affected, although my retna looks good. I also have periferal neuropthy along with just feeling crappy. Insomnia too. I want off.

Anyone experience extremely low blood pressure with Lupus & Sjogrens?

Posted 25 May 2016 by Superchic 2 answers

I was diagnosed with Lupus & Sjogrens in 2007. I developed unexplained extreme low blood pressure at the end of last year. I take Evoxac, Plaquenil, Gabapentin, and Prednisone intermittently, as needed. My systolic number is typically in the 80's, the diastolic number is around 45. My ...

Possible side effect of hydroxychloroquine that haven't been mentioned?

Posted 22 Jan 2017 by Sickofthis51 1 answer

Have been on Plaquenil for 3 months with no ill effects until recently when l developed this terrible itch--feels like ants biting you under your skin, and appears in different places on your body, mostly arms and legs, but apart from the marks left from scratching, doesn't leave a mark on the ...

Do either hydroxychol./Plaquinil put you @ risk for greater immunosuppression problems?

Posted 2 Aug 2010 by cjmorr06 1 answer

My husband has been taking Plaquinil (generic hydroxychloroquin) for almost 2 yrs., under a rheumatologist's care. He has Sjogren's Syndrome. He became very ill, and was diagnosed w/ viral meningial encephalitis. We were much later told that the Plaquinil had "lowered his tolerance ...

Sjogren's Syndrome - I've been having sickle cell since I was born.. now that I've been diagnosed?

Posted 6 Dec 2016 by JohnEva 1 answer

... with Sjogren just some months ago and I've been in a great deal of pain.. sometimes I can't get out of bed. My Dr. want me to take Humira and I'm not sure if I should. Do anyone know anything about Humira or take it? I know what Humira is for but being that I have sickle cell ...

Hydroxychloroquine - thigh muscle weakness?

Posted 25 Jun 2013 by sjsrdh49 4 answers

I took Plaquenil for Sjogren's Syndrome. It got so I couldn't walk up a curb without help before I switched to oral Methotrexate. My peripheral neuropathy actually went away too, and my rheumy thinks it was a rare, toxic side-effect of the Plaquenil. Has anyone else had that happen?

Hydroxychloroquine - What is the main reason for patients forgetting to take their tablets ?

Posted 6 Oct 2016 by StephanieZan 0 answers

*researching a reason and way to support taking medication daily at the same time

Please help I would like an opinion on the serious side effects of rituximab?

Posted 12 Jul 2016 by stavert1 3 answers

I have been on Mychophenolate for 6 months as well as Hydroxychloroquine and prednisolone for even longer. My consultant wants me to reduce the prednisolone by 5mg. I can't,every time I do I have a huge flair up and the pain is unbearable. I have been diagnosed with RA,Lupus,sjrogrens and have ...

Hydroxychloroquine - How long can we expect to be on this medication?

Posted 2 Aug 2016 by svplus4 1 answer

My daughter was just diagnosed with Sjogrens disease at the age of 18. From what I have read, most people are not diagnosed with this until much later in life. How long can I expect her to be on medication? Does this medicine cure the disease or just make her symptoms lessen or go away. She has ...

Just found out I have toxicity in my eyes from taking plaquanil. I have had lupus,sjoens and other?

Posted 25 May 2016 by stinggold1 1 answer

Wondering if anyone else have this problem?

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