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Sjogren's Syndrome Questions
We found 32 questions associated with the 'Sjogren's Syndrome' topic.
Posted 12 Nov 2009 by • 8 answers
I started 200mg/day of plaquenil on May 2th. Was told by the doctor that the med, should help me control the systemic arthrirts(Sjogren syndrome /lupus) after 4-6 months of using the med. So far I have no more energy than when I first started and has developed neuropathy which I have just found out ...
Posted 25 Jun 2013 by • 6 answers
I took Plaquenil for Sjogren's Syndrome. It got so I couldn't walk up a curb without help before I switched to oral Methotrexate. My peripheral neuropathy actually went away too, and my rheumy thinks it was a rare, toxic side-effect of the Plaquenil. Has anyone else had that happen?
Posted 2 Aug 2010 by • 1 answer
My husband has been taking Plaquinil (generic hydroxychloroquin) for almost 2 yrs., under a rheumatologist's care. He has Sjogren's Syndrome. He became very ill, and was diagnosed w/ viral meningial encephalitis. We were much later told that the Plaquinil had "lowered his tolerance ...
Posted 21 Dec 2015 by • 2 answers
I've been on it for 15 years. My vision is being affected, although my retna looks good. I also have periferal neuropthy along with just feeling crappy. Insomnia too. I want off.
Posted 25 May 2016 by • 2 answers
I was diagnosed with Lupus & Sjogrens in 2007. I developed unexplained extreme low blood pressure at the end of last year. I take Evoxac, Plaquenil, Gabapentin, and Prednisone intermittently, as needed. My systolic number is typically in the 80's, the diastolic number is around 45. My ...
Posted 9 Jun 2012 by • 4 answers
I've been on methotrexate for just over a year for RA. I have also tried hydroxychloroquine and sulfazalazine both of which caused tinnitus so had to come off them. My consultant has now put my methotrexate up to 25mg to see if my symptoms improve. I'm trying to stay positive but if this ...
Posted 24 Jan 2013 by • 1 answer
Posted 9 Feb 2012 by • 1 answer
I have been on plaquenil for about 3 years. At one time, i tried to stop taking it due to money issues. I started experiencing joint pain in my hips. Does Plaquenil actually stop joint pain in Lupus or does it just slow your progress in Lupus? It was never actually explained to me and I have ...
Posted 12 Jul 2016 by • 3 answers
I have been on Mychophenolate for 6 months as well as Hydroxychloroquine and prednisolone for even longer. My consultant wants me to reduce the prednisolone by 5mg. I can't,every time I do I have a huge flair up and the pain is unbearable. I have been diagnosed with RA,Lupus,sjrogrens and have ...
Posted 5 Nov 2009 by • 2 answers
Posted 1 Oct 2011 by • 2 answers
... Sjogren's. Was experiencing elbow and wrist pain, tiredness and my hair started falling out (thinning). Was put on hydroxychloroquine two months ago and all seemed to go well until I broke out in an itchy rash on arms, legs and stomache. I've stopped the meds for about two weeks now ...
Posted 19 Feb 2016 by • 3 answers
My symptoms are not getting any better. I am 25 years old and was diagnosed 6 months ago and the symptoms seem to have gotten worse. I have been hesitant to start plaquenil because of side effects and I was hoping I would get better (I guess hopefulness) but truth is I have gotten worse. I have ...
Posted 6 Mar 2016 by • 3 answers
... like it doesn't do anyt
Posted 23 Mar 2012 by • 1 answer
The only medicine that works is Tussionex Pennkinetic ER suspension, and the insurance only covers the generic. The Generic Hydrocodone-Chlorpheniramine does not work!
Posted 18 Mar 2013 by • 1 answer
I have Renaud's. I got Sjogren's about 3 years' ago after very stressful episodes during that year.