Skip to Content

Join the 'Sjogren's Syndrome' group to help and get support from people like you.

Sjogren's Syndrome Questions

 Clear

We found 39 questions associated with the 'Sjogren's Syndrome' topic.

What is the correct way to discontinue use of plaquenil?

Posted 12 Nov 2009 by awl 5 answers

I started 200mg/day of plaquenil on May 2th. Was told by the doctor that the med, should help me control the systemic arthrirts(Sjogren syndrome /lupus) after 4-6 months of using the med. So far I have no more energy than when I first started and has developed neuropathy which I have just found out ...

Sjogren's Syndrome - I've been having sickle cell since I was born.. now that I've been diagnosed?

Posted 1 day 14 hours ago by JohnEva 0 answers

... with Sjogren just some months ago and I've been in a great deal of pain.. sometimes I can't get out of bed. My Dr. want me to take Humira and I'm not sure if I should. Do anyone know anything about Humira or take it? I know what Humira is for but being that I have sickle cell ...

Hydroxychloroquine - What is the main reason for patients forgetting to take their tablets ?

Posted 6 Oct 2016 by StephanieZan 0 answers

*researching a reason and way to support taking medication daily at the same time

Hydroxychloroquine - How long can we expect to be on this medication?

Posted 2 Aug 2016 by svplus4 1 answer

My daughter was just diagnosed with Sjogrens disease at the age of 18. From what I have read, most people are not diagnosed with this until much later in life. How long can I expect her to be on medication? Does this medicine cure the disease or just make her symptoms lessen or go away. She has ...

Please help I would like an opinion on the serious side effects of rituximab?

Posted 12 Jul 2016 by stavert1 3 answers

I have been on Mychophenolate for 6 months as well as Hydroxychloroquine and prednisolone for even longer. My consultant wants me to reduce the prednisolone by 5mg. I can't,every time I do I have a huge flair up and the pain is unbearable. I have been diagnosed with RA,Lupus,sjrogrens and have ...

Does anyone know if you have to be weaned off Plaquenil? I've been on it for 15 years, for Lupus?

Posted 21 Dec 2015 by Lupie523 2 answers

I've been on it for 15 years. My vision is being affected, although my retna looks good. I also have periferal neuropthy along with just feeling crappy. Insomnia too. I want off.

Anyone experience extremely low blood pressure with Lupus & Sjogrens?

Posted 25 May 2016 by Superchic 2 answers

I was diagnosed with Lupus & Sjogrens in 2007. I developed unexplained extreme low blood pressure at the end of last year. I take Evoxac, Plaquenil, Gabapentin, and Prednisone intermittently, as needed. My systolic number is typically in the 80's, the diastolic number is around 45. My ...

Just found out I have toxicity in my eyes from taking plaquanil. I have had lupus,sjoens and other?

Posted 25 May 2016 by stinggold1 1 answer

Wondering if anyone else have this problem?

Energy levels on hydroxychloroquine?

Posted 23 May 2016 by MHollands 0 answers

I've been on hydroxychloroquine for (1 200mg twice a day) for 2 months now. Still don't have any energy - feeling physically very tired all the time. How long before I will start to see benefits with regards to engery?

I have been giving plaquenil to start and I have been hesitating, should I start it?

Posted 19 Feb 2016 by Disneylover23 3 answers

My symptoms are not getting any better. I am 25 years old and was diagnosed 6 months ago and the symptoms seem to have gotten worse. I have been hesitant to start plaquenil because of side effects and I was hoping I would get better (I guess hopefulness) but truth is I have gotten worse. I have ...

What effect does Plaquenil have on the eyes?

Posted 21 Sep 2015 by VickieOwen 1 answer

Page 1 2 3 Next

Ask a Question

Further Information

Related Condition Support Groups

Connective Tissue Disorders

Related Drug Support Groups

Remicade, Plaquenil, hydroxychloroquine, evening primrose, Primrose Oil, Evening Primrose Oil, infliximab, Evoxac, cevimeline, Plaquenil Sulfate, Quineprox

Search this Group