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Sjogren's Syndrome Questions
We found 39 questions associated with the 'Sjogren's Syndrome' topic.
Posted 12 Nov 2009 by • 6 answers
I started 200mg/day of plaquenil on May 2th. Was told by the doctor that the med, should help me control the systemic arthrirts(Sjogren syndrome /lupus) after 4-6 months of using the med. So far I have no more energy than when I first started and has developed neuropathy which I have just found out ...
Posted 23 Sep 2017 by • 0 answers
... sensation is painful! currently waiting to get into see rheumatologist to verify SS. But .7 on one antibody 1.5 on other. Positive ANA and one anti-smith positive -but most symptoms I've had most of my life(50+) Should I mention sour issue? I had tonsils and adenoids removed and it ...
Posted 22 Jan 2017 by • 1 answer
Have been on Plaquenil for 3 months with no ill effects until recently when l developed this terrible itch--feels like ants biting you under your skin, and appears in different places on your body, mostly arms and legs, but apart from the marks left from scratching, doesn't leave a mark on the ...
Posted 21 Dec 2015 by • 3 answers
I've been on it for 15 years. My vision is being affected, although my retna looks good. I also have periferal neuropthy along with just feeling crappy. Insomnia too. I want off.
Posted 25 May 2016 by • 2 answers
I was diagnosed with Lupus & Sjogrens in 2007. I developed unexplained extreme low blood pressure at the end of last year. I take Evoxac, Plaquenil, Gabapentin, and Prednisone intermittently, as needed. My systolic number is typically in the 80's, the diastolic number is around 45. My ...
Posted 23 Jan 2017 by • 1 answer
Posted 6 Dec 2016 by • 1 answer
... with Sjogren just some months ago and I've been in a great deal of pain.. sometimes I can't get out of bed. My Dr. want me to take Humira and I'm not sure if I should. Do anyone know anything about Humira or take it? I know what Humira is for but being that I have sickle cell ...
Posted 2 Aug 2010 by • 1 answer
My husband has been taking Plaquinil (generic hydroxychloroquin) for almost 2 yrs., under a rheumatologist's care. He has Sjogren's Syndrome. He became very ill, and was diagnosed w/ viral meningial encephalitis. We were much later told that the Plaquinil had "lowered his tolerance ...
Posted 6 Oct 2016 by • 0 answers
*researching a reason and way to support taking medication daily at the same time
Posted 25 Jun 2013 by • 4 answers
I took Plaquenil for Sjogren's Syndrome. It got so I couldn't walk up a curb without help before I switched to oral Methotrexate. My peripheral neuropathy actually went away too, and my rheumy thinks it was a rare, toxic side-effect of the Plaquenil. Has anyone else had that happen?
Posted 12 Jul 2016 by • 3 answers
I have been on Mychophenolate for 6 months as well as Hydroxychloroquine and prednisolone for even longer. My consultant wants me to reduce the prednisolone by 5mg. I can't,every time I do I have a huge flair up and the pain is unbearable. I have been diagnosed with RA,Lupus,sjrogrens and have ...
Posted 2 Aug 2016 by • 1 answer
My daughter was just diagnosed with Sjogrens disease at the age of 18. From what I have read, most people are not diagnosed with this until much later in life. How long can I expect her to be on medication? Does this medicine cure the disease or just make her symptoms lessen or go away. She has ...
Posted 25 May 2016 by • 1 answer
Wondering if anyone else have this problem?
Posted 23 May 2016 by • 0 answers
I've been on hydroxychloroquine for (1 200mg twice a day) for 2 months now. Still don't have any energy - feeling physically very tired all the time. How long before I will start to see benefits with regards to engery?
Posted 6 Mar 2016 by • 3 answers
... like it doesn't do anyt