Skip to Content

Join the 'Erivedge' group to help and get support from people like you.

Erivedge Questions


We found 18 questions associated with the 'Erivedge' topic.

I began taking Erivedge 6 days ago. How soon can I expect side effects - hair loss, muscle cramps?

Posted 8 Jan 2017 by tschambers 2 answers

I began taking Erivedge 6 days ago for infiltrative, locally advanced BCC on my scalp. So far, I have felt a little tired and have had diarrhea. However, in doing research on the drug, I am aware that other side effects are associated with it... such as muscle cramps, joint pain, hair loss, changes ...

Who else did not have a positive outcome on Erivedge?

Posted 8 Jan 2017 by thanksforhelp 1 answer

Anyone else that would like to see this off the market?? I have had over 100 bc's removed in my life and I still would NEVER use this drug again for multiple bc's (I do think it serves a purpose for other diagnoses- but not multiple bc's) This is CHEMO therapy being used for a ...

I started erivedge after having 54 BCC's cut off over the last 16 years. I was on it from June until

Posted 7 Jul 2016 by reed236 0 answers

... Sept last year, but stopped it because of all the side effects. From Sept 2015 until Mar 2016 I had grown 17 new skin cancers. Needless to say I had to go back on the Erivedge to take care of those spots and to keep more from growing. So I have a few questions. Has anybody else had this many ...

Has anyone taken Erivedge less frequently as in a couple times a week with good results?

Posted 23 Feb 2015 by msmeggers 1 answer

I was on for 8 months. ALL side effects and total loss to quality of life! After 2 months off I was in for MOHS surgery on my head and now I'm covered in more basal cells then ever before! The thought of going back on it makes me cringe but I wonder if taking it less frequently would lighten ...

What is your experience using Erivedge?

Posted 15 May 2012 by john691 15 answers

My derm has recommended Erivedge for persistent recurring basal cell carcinoma. What is your experience with the side effects and the effectiveness of the drug to cure bcc?

Erivedge - How do you know if Everidge is working?

Posted 19 Feb 2014 by Fowler1950 1 answer

I have been on Everidge for three weeks, I have had FIVE MOHs surgeries in the same place the corner of my left eye. Reconstructive surgeries but the cancer is back in the same place. I researched and found Everidge went to oncologist so want this to work to stop the spread on the cancer. No more ...

Is Erivedge less effeçtive when dealing with Gorlings Syndrome?

Posted 15 Jul 2014 by Ferneyberger 1 answer

I think my Oncologist was inferriñg this

Any tips to avoid or lessen side effects of Erivedge?

Posted 23 Dec 2013 by theGoat 2 answers

I've been on Erivedge for 13 months and my metastatic BCC is stable (has gotten in my lungs so for me stable is about as good as it gets ... so far) but have all the usual side effects. Hair and taste loss are annoying but better than the alternative. Muscle spasms can get really bad for me, ...

Looking for other metastatic Basal Cell Carcinoma patients?

Posted 23 Dec 2013 by theGoat 1 answer

Have mBCC in my axilla lymph nodes and lungs. Looking to compare notes with others. Currently on Erivedge with stable results.

Hi! I was on Erivedge for only 2 months and my hair loss is rediculous! Anyone else with this?

Posted 7 Jul 2013 by thanksforhelp 5 answers

My doc said I would most likely not experience much hair loss because I am only on it for a couple months. Boy was she wrong! It wont stop & I have been off the drug for over 3 weeks now. Now what? How much longer?? Thanks for any suggestions!:)

What is the degree of hair loss experienced while taking Erivedge?

Posted 19 Nov 2012 by ramblinwreck 4 answers

I have Gorlin's Syndrome and have been taking Erivedge since 8/1/2012. I have experienced significant thinning of my hair starting in early October, after two full months on the drug. Will this hair loss moderate as I continue on the med or result in some degree of baldness?

I took erivedge for 3 months to treat my BCC. I've been finished since mid May, 2013. My skin looks?

Posted 5 Jun 2013 by Brandon36 1 answer

... great! However, my taste buds are gone, muscle spasms, joint pain, fatigue. Since I shaved my head anyway, the hair loss didn't matter. However, my moustache is falling out. This has occured since I quit taking the medication - for 4 weeks now. My joints are feeling better and the cramping ...

Page 1 2 Next

Ask a Question

Further Information

Related Condition Support Groups

Basal Cell Carcinoma

Erivedge Patient Information at

Search this Group