Have been tapering and now at 2 mg. But have had three flareups this year. Several doctors, including specialist at Duke, don't seem to know enough about PMR to provide enough medication to treat the return of painful swelling. How have you dealt with this in communicating with your doctor? How long do you take higher dose before going back to taper off dose? I need major surgery and surgeon canceled because we can't get answers. Close to having to quit PT job because of flare.
I've tapered off twice but it doesn't make PMR go away. Does anyone know the confirmed reasoning for this recommendation in all the online references on PMR treatment?