She doesn't like wearing the oxygen, so she keeps taking it off, and she has also turned down the machine to 2. She thinks 2 stands for 2 Liters. The machine originally was set at 5. Now she constantly complains of back pain, her legs hurting and cramping, no energy. She states her oxygen on her finger still says 95%. I feel that her oxygen is not sufficient and she needs to turn it back up and quit taking it off so much. I have tried to talk to her, she won't listen. I would like another opinion.
I have COPD; I smoked for 2 months 40 years ago. I got adult asthma and have many allergies.
POSSIBLE ANSWERS: safety in mind, use longer lined nasal canulas so she can be away from machine. Use water soluble gels to keep mucous membranes moist. Periodic checks with a home oximeter to see if O2 levels are OK during activity. "Discuss" with her a plan of agreement about what activities "she feels" she needs extra O2 assist. Agree the plan is flexable with periodic evaluation.
Last Option: get medical practitioner /case manager more involved in your mom's care assessment and plan; some parents just resist dependence or any advice from children they once cared for. She may simply become more agreeable once she has further factual talks, with medical professionals about expected progression of outcomes and how they expect to help her manage those phases.
MY PETSPECTIVE: The oxygen often makes people feel dried out. "Noisy" machines limit rest and are constant reminders of your disease. I would probably do better, some days, with portable O2 but, I'm resisting asking for it as long as possible. I put up with my sleep APNEA and hope I wake up the next day. I hate my inhalers for the same reasons. For me, I feel like routinely using them makes me feel I need them more. I'm loosing control of a lot of things; it sometimes makes me obstinate about having the final word about my health decisions. I realize, I sometimes frustrate people.
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