Levetiracetam for Seizures User Reviews (Page 4)
Brand names: Keppra, Keppra XR, Elepsia XR, Spritam, Roweepra XR, Roweepra
Levetiracetam has an average rating of 5.9 out of 10 from a total of 223 reviews for the treatment of Seizures. 42% of reviewers reported a positive experience, while 31% reported a negative experience.
Reviews for Levetiracetam
- Hailey...
- November 18, 2007
Keppra (levetiracetam) "My daughter is now six years old, and she began taking Keppra at age 3 after the severe seizure she had that put her in a coma. She has many behavioral issues with Keppra as a downfall, but it has maintained control of the grand mal seizures. So, we give it a chance for the simple reason of the seizure-free time."
- Nkap
- Taken for 1 to 2 years
- October 11, 2015
Keppra (levetiracetam) "My fiancé (22 yrs old, 130 lbs) has been on Keppra combined with Vimpat for over a year, and he has had very bad mood swings, weight loss, anxiety, feelings of hopelessness, depression, and irritability/quick temper. We are trying to find out if there is another medication he can take in combination with these to help combat the side effects, or if someone has found another med that works as well with less severe side effects, seeing this is the only med that has helped his seizures so far (diagnosed at 17). Anyone else with a similar problem, or know what might help?"
- Al123...
- December 14, 2017
Keppra (levetiracetam) "My boyfriend is 22 years old and he has never experienced seizures before and then one day at work after not eating or sleeping very well he had a seizure (I forget what kind of seizure) he was rushed to the hospital and they did scans and tried to send him home after 10 mins of leaving the hospital he had another seizure. (just to mention his dads sister has seizures and is on Dilantin) then he had a bunch of CAT scans and an EEG and nothing came back, but now he has to take keppra 4000mg a day for 3 months . He hates it he's very moody now, depressed and he was never like this before. They are going to do a stress test after the 3 months of taking keppra and see if not sleeping and eating right caused abnormal brain waves... I just want this to be over"
- SJTHO...
- December 18, 2007
Keppra (levetiracetam) "I have been taking Keppra for 6 years now. It has helped my grand mal seizures out somewhat. My doctor has tried me on so many other seizure meds along with this one. I have experienced mood changes and all kinds of others, but this is the only seizure med that keeps them calmed down. Not kept away, but calmed down enough to where I can have somewhat of a life."
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- CKLADY
- Taken for 1 to 6 months
- July 22, 2015
Keppra (levetiracetam) "I am 37 years old and have had Petit Mal seizures since I was 2 years old. My seizures were always controlled on Epival. However, this drug isn't safe during pregnancy, so my doctor prescribed me Keppra (500 mg) before we started to try for a baby. Keppra works well for me to control the Petit Mal seizures. However, it has really bad side effects. It made me extremely tired and quite moody. The worst part about this medication is that it caused me to have 2 Grand Mal seizures (10 weeks and 18 weeks). Before these 2 seizures, I had never had a Grand Mal before. I am now off of Keppra and on Lamotrigine and feel great. I have energy and feel like myself again. Best of all, no Grand Mal seizures!"
- G Girl
- June 17, 2008
Keppra (levetiracetam) "I have been taking Keppra for 3 years now. I used to take Lamictal and felt crazy during that time. I used to feel sleepy, and at first, I couldn't wake up in the morning when I started taking Keppra, but now I am happy to be on it. My biggest issue with Keppra is the rising cost and the fact that my body gets used to it, so I have to increase my dose."
- KarenHG
- Taken for 5 to 10 years
- December 2, 2013
Keppra (levetiracetam) "It works most of the time. I developed epilepsy when I was almost 60 years old, and the first medication I took gave me horrible headaches. This works, but it also can give me diarrhea, and when that happens and the medicine doesn't stay in my body long enough to work, I can have mild attacks. Sometimes I have the mild, brief attacks even when the medicine stays in me."
- Bob...
- June 30, 2011
Keppra (levetiracetam) "I have been taking Keppra for 4 years. When I keep up with a 2000 mg dose daily, I rarely have seizures anymore. When I go off the medicine, they come back. I would have to say it does the trick with minimal side effects."
- yogiman
- July 16, 2008
Keppra (levetiracetam) "I had brain surgery in December 1996. A tumor was found in the middle of my brain. I had been having blackouts for 16 years before they could find it. I had been on Dilantin before the surgery. It worked, but the doctor said Keppra was much better, so I was put on Keppra after the operation and haven't had a blackout since."
- Angeliz
- February 16, 2012
Keppra (levetiracetam) "In April 2010, I went into grand mal seizures, which were found to be due to brain cancer. After surgery and being sent home, I was put on Keppra. As of Feb 2012, I have not had a seizure since, but I have found this medicine makes me very tired and I itch all over all the time. I was taking 500 mg in the morning and 500 mg in the evening. Then we changed it to 1000 mg in the evening and none in the morning. I find it very hard to get motivated in the mornings. I want to stay in bed and sleep. I take antidepressants, but I'm not depressed or crying. I had been, and they felt under the circumstances I needed to stay on the antidepressant. We tried changing it, and I still stayed very tired, and that is why I am sure it's the Keppra making me so tired. Otherwise, kudos."
- Anonymous
- November 16, 2011
Keppra (levetiracetam) "I've been taking this medicine since December 2009, and I haven't had a seizure while taking it. I've doubled my dose according to my doctor's instructions since then and am now taking 3000 mg/day, the max adult dose. I've noticed an increase in anxiety and severe anxiety symptoms since beginning Keppra, but other than that, it's been a great medicine."
- Alan...
- April 6, 2009
Keppra (levetiracetam) "I have been taking Keppra for about four years now. I have had no negative side effects or weird stuff that happens to those on Keppra. I plan on taking 2000 mg daily, so hopefully I will not have any seizures."
- With...
- May 18, 2015
Keppra (levetiracetam) "I'm 63 now using Keppra (levetiracetam) 500 mg has been a good choice by my neurologist for approximately 5 yrs. I take 750 mg at bed time and it has worked well. My insurance covers Keppra but levetiracetam is more affordable and has worked for me."
- RyanB
- Taken for 5 to 10 years
- February 16, 2016
Keppra (levetiracetam) "My brother had a tumor 15 yrs ago removed after having a seizure. Takes 1000mg keppra a day. He has mood swings, diarrea if he does eat b4 so, and delusional. Still effective. I started having anxiety attacks n seizures at 24yrs of age. Neurologist perscribed me keppra 500mg daily and 2mg xanax a day when needed, usually I break xanax into pieces as u can because they have little bars to do so. I don't have any side effects besides feeling sleepy at the end of the day. I don't take xanax til after work at the end of the day as xanax does makes me sleepy. Keppra deserves 10 for me. But my brother rates it 7. Every one is different. I know this is for keppra but XANAX is not for anyone a lot of people can't handle the drug and can't control themselves let doc determine."
- robtho
- September 2, 2009
Keppra (levetiracetam) "My 19-year-old daughter started having grand mal seizures 3 years ago and was started on Keppra. She was started at 500 mg/day and is now at 1000 mg/day. Since starting, her seizures have been kept about 95% at bay. She still has an occasional mild seizure (2 in the past year), and they haven't been nearly as intense or as long as before starting Keppra. I'm very pleased, and I know she is relieved. The only side effect I've noticed is some constipation. I haven't seen any negative changes in her demeanor."
- Anonymous
- January 18, 2016
Keppra (levetiracetam) "I have jerky events that have not technically been epilepsy, but it runs throughout my mom's side of the family and I have just started keppra at 2000mg a day. I have been on topamax for a couple years now and my doc added keppra in conjunction with 300mg topamax a day, since only 400mg of topamax a day was not working and the side effects of memory loss and painful pins/needles were too awful to deal with. Keppra so far has only made me feel a zonked and not too hungry, but my memory is coming back which I am happy about. I also have not had event. I am sure the zombieness will wear off with some time."
- spyro
- Taken for 5 to 10 years
- March 26, 2019
"Been on levetiracetam for around 9 years for my seizures and the side effects were, harsh the first year, bad mood swings, severe depression and migraines daily but over a couple years the side effects decreased. Plus the levetiracetam controls my seizures caused by brain surgery very well, I only 2-4 seizures in 9 years. Very happy with this medication"
- Luke...
- Taken for 2 to 5 years
- December 15, 2016
Keppra (levetiracetam) "I have had epilepsy from 18 months old started on epilim. By the time I turned 3 I was seizure free till I was 16. Just before my maths exam I had a seizure wasn't exactly sure what caused. I went to my GP I was put on 100mg of lamotrogine then went up to 250mg of lamotrogine finished on 300 the drug didn't work at all. I was then referred to see a neurologist and we started off taking keppra 500mg alongside with the lamotrogine. We then moved to 750mg or keppra with the lamotrogine BD.After all of that we then moved to 1000mg BD since then to know I'm now on 4grams a day along side 600mg of oxcarbazapine and currently on 6mg of Perampanel. I'm getting the drowsiness tiredness and from the keppra I'm turning aggressive."
- Mariels
- April 12, 2015
Keppra (levetiracetam) "I began using generic Keppra in 10/14 after four seizures, 500 mg in the am and pm. There were abnormalities in my EEG. No seizures but very sleepy and sluggish during the day and weight gain. Neurologist changed medication one Keppra extended release three weeks ago and now I'm losing my hair. I'm calling the neurologist to see what we can do."
- watch...
- May 28, 2010
Keppra (levetiracetam) "I did not get seizures daily, weekly, monthly, or yearly, not that I'm aware of anyway. I had my first major seizure at 37 years old at a wedding, the next one was at 42 years old, and recently, May 10 (46 years old), on my way to work at our ferry. I've been on Tegretol, Dilantin, and now Keppra... now I see the difference. The Keppra is working great where before I may have been having light seizures and did not know it. My eyes were blinking too fast. I thought that was tired eyes, my right hand would become numb while sleeping, and I thought it was just from sleeping the wrong way."
- Lory...
- June 5, 2008
Keppra (levetiracetam) "My epilepsy began when I was 7 years old, and I've always been treated with multiple drugs because seizures didn't stop. I've been using Keppra for 3 weeks and haven't had any seizures. I'm so happy with this drug. The only side effect I've felt is I get a bit sleepy after taking the pill. I surely recommend it."
- Nelle
- Taken for 5 to 10 years
- July 7, 2023
Keppra (levetiracetam) "I've been on Keppra for about 6 years. Over my lifetime, I've been prone to periodic depression, but this drug brought on almost major depression, especially the last 2 plus years. It also caused a lot of anger, irritability, agitation, impatience, fatigue, and easily brought on crying (I was never a big crier). I'm off it now for only 6 days. Too soon to say, but I do feel a bit calmer. I pray that I improve."
- Anonymous
- July 26, 2011
Keppra XR (levetiracetam) "My neurologist prescribed Keppra initially 500 MG in the morning and 500 MG in the evening. I was so groggy it was unbelievable. All I wanted to do was sleep. We switched to the XR Keppra 500 MG twice per day at bedtime, and it has been much better. Still suffer from some side effects (skin rash, stiff neck) but feeling much better. Eight weeks into it and all appears well! Good luck to all, I hope this helps."
- Anonymous
- July 14, 2011
Keppra (levetiracetam) "I have currently started taking Keppra for the last week and a half. I have experienced numbness and tingling throughout my whole body, along with what feels like electrical impulse shocks. I'm tired all the time, trouble sleeping. I can only hope that these side effects will cease because the side effects are making me feel really bad, just the same way as I did with Dilantin I was taking."
Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.
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Keppra (levetiracetam) "I have had 1 seizure at the end of October 2020. Doctors put me on medication right away. I only took it because they said it was the fastest way to get my license back. My neurologist when I finally talked to him didn't want me on medication first. Had multiple tests done everything normal. Neurologist came back and asked if I was still taking the Medication. I stopped taking it because my wife first noticed I was a lot more irritable, then the longer I took Keppra, iIhad no fuse and would just snap at people. I haven't gone on any other Medication since all my tests results were normal. Now I have the neurologist saying I have to be on medication for at least 6 months, which I don't understand for my first seizure and clear test results. Haven't had any other seizures since and have felt back to normal since going off the medication."