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Levetiracetam for Seizures User Reviews (Page 3)

Brand names: Keppra, Keppra XR, Elepsia XR, Spritam, Roweepra, Roweepra XR

Levetiracetam has an average rating of 5.9 out of 10 from a total of 227 reviews for the treatment of Seizures. 42% of reviewers reported a positive experience, while 31% reported a negative experience.

Reviews for Levetiracetam

  • Anonymous
  • Taken for 1 to 6 months
  • October 15, 2015

Keppra (levetiracetam) "Made me more aggressive lost nearly 50% of my friends on facebook while on this. Caused me to lose contact with several family members after they saw my anger from being on this. Product should be off the market!"

1 / 10
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  • Father...
  • Taken for less than 1 month
  • June 6, 2014

Keppra (levetiracetam) "I am from Bahrain. My daughter is 4 years old, she got grand mal seizures and doctors prescribed her Keppra syrup (oral). Since 18 days no seizure but we feel side effects like mood changes and one time she had minor rashes appeared on her face but it went after 3 days. So far we are happy with Keppra and I hope and pray that it will treat her epilepsy."

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  • Beci-...
  • June 28, 2017

Keppra (levetiracetam) "I think the definition of hell was the 4 weeks I was on this medication. Every single day I was constantly in a state of panic. If you've had temporal lobe seizures you may know what I'm referring to; the brief state of panic that occurs when a seizure is coming about. I was in that state of panic ALL day. I was in high school at the time and had to stay home nearly every single day. The neurologist tried adding an antidepressant, a xanax, and nothing would calm it down. When my hair began falling out at an alarming rate that was the final straw for me. I had to DEMAND to be switched to something else. I take lamotrigine now and it has completely turned around. My hair finally stopped falling out about 2 months after I quit the keppra."

1 / 10
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36 Report
  • Newport
  • Taken for less than 1 month
  • November 1, 2013

Keppra (levetiracetam) "I was given one dose of keppra as a precaution because I had a "spell" that I'm not sure was a seizure or just a bad anxiety attack. It made be feel dreadful: dizzy, depressed, weepy, spaced out. It's been nearly 36 hours since I took it and I'm still feeling not quite right. Horrible stuff. I had an EEG and it was normal. I wish the doctor had waited with the med until the results of the EEG, CatScan and MRI."

3 / 10
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  • Sam
  • Taken for 10 years or more
  • July 2, 2016

Keppra (levetiracetam) "I havery epilepsy since I was a baby. I take Lamictal and Keppra. Last year I had a grand mal seizure. Went to the hospital and everything. I saw my neurologist and she put me on Lamictal XR and Keppra XR. Ever since then I'm having a lot of side effects. I have atleast 10 of them from both Lamictal and Keppra. Having problems from both. My neurologist does not care about the side effects. I'm scared to go outside a lot. I'm moody every day, sleep during the day, insomnia, diarrhea, constipation, etc, it is annoying. I want to be off of thsee pills and want a better life. I rather take something else."

2 / 10
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  • arc
  • March 20, 2011

Keppra (levetiracetam) "I have been on many anti-epileptic medicines over the course of 30 years: Dilantin, Mysoline, Klonopin, Depakote, Topamax, Lamictal, etc. While Keppra did a good job of controlling the myoclonic jerks which I often experience, it was way too sedating when combined with Topamax. It wasn't uncommon for me to sleep twelve hours a day. The real problem with Keppra was the mood swings, depression, anger and suicidal thoughts. It's no secret that a link exists between epilepsy/seizure disorders and some (all) of these issues; however, in my case these feelings and emotions definitely intensified while taking Keppra."

5 / 10
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  • JME...
  • November 1, 2015

Keppra (levetiracetam) "I am 16, I have had Juvenille Myoclonic Epilepsy for almost 2 years now and have been on keppra ever since. I experienced some weight loss, extreme depression, hallucinations, and memory loss. I've only had one other grand mal seizure while on this and I do not jerk anymore. Though it works I wish I felt alive and awake during normal daily tasks. If you can seek other medications for physiological and behavioral reasons, I suggest it."

6 / 10
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  • Jonat...
  • Taken for 1 to 6 months
  • November 9, 2013

Keppra (levetiracetam) "My son had his first seizure at 18 yrs old. He has a brain injury from birth and very mild cerebral palsy affecting his right side. Went to ER and was referred to neurologist. Did a CT scan, blood work, EEG all normal except the injury to brain which showed no changes in size or concern. Was told not to drive for three months CA law. Was put on Keppra 500mg morning and night total 1000mg. Has not had a seizure and we will be following up with the neurologist in 2 days to have his driving privileges reinstated with DMV. Very hard for him not being able to drive and having someone else do it. Regarding side affects none. Has taken medicine every day. Neurologist did say we will re evaluate stopping the medicne in 2ys."

8 / 10
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  • unpha...
  • May 24, 2014

Keppra (levetiracetam) "I've been on Keppra for two years now, 500mg morning & 500mg evening. No side effects at all and no seizures since I started on it. Initially I had some tingling in my lips but that ended after a week or so, nothing since. Like the "animal alerts" I keep on my vehicles you can't tell if it works except for the absence of anything bad happening which in my case nothing has with either Keppra or the animal alerts so they both must work since before them I had one seizure and also hit a deer a moose and some rodents who darted out in front of me but no longer do. I checked for interactions of all medications and would advise anyone with a bad reaction to any med to do so as well."

9 / 10
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  • New...
  • February 21, 2015

Keppra (levetiracetam) "I'm over 65 male, in my youth I suffered several head injuries some of these were diagnosed as concussion. I was involved in a motor accident in 2000 with a severe head injury. Soon thereafter I started to have auras followed by migraines. In 2010 I started having mycolonic jerks that would awaken me at 3/4 times at night. In 2013 the jerks became so severe I visited a neurosurgeon, after scans etc I was diagnosed with Partial Epilepsy. In march 2014 I had a seizure in my sleep. Taken to hospital and put on Keppra by the neurosurgeon.I take 750mg at night and 500 in the morning. Auras and migraines have decreased,but my mood swings have been getting worse,changed personality, overreaction,I feel like I'm bipolar its affecting my marriage."

10 / 10
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  • Denny
  • May 17, 2008

Keppra (levetiracetam) "I have juvenile myoclonic epilepsy. I was taking lamotrigine for 4 years and it wasn't having much of an effect. I asked if there was anything else, I was given Keppra. I felt an almost instant change. I had no more funny feelings in my head, no twitching in the mornings. I felt much safer and that lead to me being much happier. I can stay out later. I've had no seizures since taking this and. I recommend it."

9 / 10
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  • JMP
  • February 13, 2017

Keppra (levetiracetam) "I have been on Keppra for about 15 yrs. I received my Epilepsy from a bad car accident when I was young. I received my first Epileptic Seizure when I was 27 yrs old. I have tried every single seizure med made for the severity of my Grand Mal seizures. I now take 5- 500mg pills plus 3- 100mg caps of Dilantin. That is 300 mg shy of brain surgery. I am at piece w/ myself. I know what I have tried, what worked and what didn't. My seizures are extreme. I keep my blood level Therapeutic and have fewer seizures so I know it is working. I still get Grand Mal seizures, just not as many. That proves to me it works. That is all I care about, ME!"

10 / 10
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  • Brodie
  • Taken for 1 to 6 months
  • June 10, 2023

Keppra (levetiracetam) "I feel betrayed by everyone who was supposed to be knowledgeable and help me. I had my first seizure at 30 after taking amoxicillin for a tooth infection. My family doctor retired during covid so I had to go to hospital doctors who did prescribed me Keppra before any test results came back. Then every single "professional" I've talked to has known little to nothing about keppra (one told me I could wean off in a couple days. Thats a good way to trigger seizures). I have gotten almost every side effect except coma and random bleeding, but I feel like a horrible person, I feel like I'm dying and I can't tell if something is wrong with me or if it's side effects. I feel like I'm living in a haze. People are getting annoyed at repeating everything. I can't write down info fast enough to keep it. So I feel like there's no point in talking to my husband because I'll forget most of what he says and make us both depressed. I've forgotten years worth of routines I built up. I hate this."

1 / 10
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  • Hambu...
  • November 15, 2017

Keppra (levetiracetam) "I haven't had a seizure in over 3 years because of this drug. It has helped me so much in daily life that I can't imagine my life without it. The price is also very reasonable considering what it treats."

10 / 10
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30 Report
  • apivom
  • July 2, 2011

Keppra (levetiracetam) "I've been on 500mg 2x/day for 5 years. Keppra controlled the seizures immediately the day I started it but I did experience extreme drowsiness and can sleep for days. People always told me I looked tired and knew I was always sleepy. I also got very moody and am easily irritated to the point where no one wants to be around me. I didn't think that it could be linked to the medication until now. It's a terrible feeling but it does control the seizures."

7 / 10
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  • Coffee...
  • February 3, 2016

Keppra (levetiracetam) "After a stroke in 2005 I had seizures until starting with Keppra @ 500mg bid, now i'm up to 1000 twice a day, and haven't been bothered by any side effects at all. I'm glad that it is available as a generic, now- I use Levetiracetam, only $4 a month as opposed to the $720 a month Keppra was until recently."

10 / 10
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  • shelb...
  • August 23, 2009

Keppra (levetiracetam) "I am an 18-year old who has been having seizures for the last three years or so. Keppra helps me a lot. I just wanted to say, for those women who have mood swings and anger issues due to this medicine, talk to your doctor about going on prenatal vitamins, such as Vinate a-z. I became the meanest person I had ever met, but after I was put on Vinate, I went back to normal the day I started taking it."

10 / 10
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  • Dia...
  • Taken for 1 to 6 months
  • November 10, 2015

Keppra (levetiracetam) "I had my first seizure February 2014 and was prescribed Keppra. I took it for a while and experienced all the symptoms as everyone else: depression, fatigue, mood swings, hallucinations, etc. You name it I had it. I had no energy and all I could do was sleep. I got tired of living like that and one day decided to stop taking them, bad move. It was fine for 4 days, I was energized and happy but on that day I had another seizure. I told my doctor and he changed my prescription to Trileptal. I have been on it since that day and the only side effect I think I have would be hair thinning."

3 / 10
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  • 17...
  • February 22, 2009

Keppra (levetiracetam) "I'm 17 years old and have been taking Keppra for three years now. Keppra has stopped my seizures except on 3 occasions where I missed a dose. Although it works very well I have been experienceing some side affects including moodiness, iritability, anger, rage, confusion and hallucinations. Although I have side effects, I like the overall results of being a well kid."

6 / 10
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51 Report
  • Alfmann
  • June 16, 2015

Keppra (levetiracetam) "My daughter just started this medicine and she is still having seizures. Before the seizures were not happening during the as often, now it is happening more frequently. I still yet to see any real good results..."

2 / 10
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  • sharyl
  • Taken for 1 to 6 months
  • April 1, 2023

Keppra (levetiracetam) "Had a Grand Mal Seizure last May and was prescribed Keppra. The drug made me have a full blown psychotic episode and NDE(near death experience) where I saw the light at the end of the tunnel. This medication landed me in the mental hospital for a week. I couldn't sleep, had auditory and internal hallucinations within my mind that lead me to lay down in the middle of the street trying to get anyone to listen to me. Was switched to Divalaproex and have been okay. Still reeling from almost breaking up with my husband of 18+ years who will now never see me the same ever again thanks to this crazy drug... Do not recommend anyone try this. Only as a last resort! Unless you want to risk your life never being the same."

1 / 10
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  • Anonymous
  • October 17, 2008

Keppra (levetiracetam) "I had my first gran-mal seizure over 1 year ago, have no reason for why I had a seizure but I was put on Keppra the same night. In the beginning I was VERY tired and had alot of anxiety so they gave me Lexapro along with it. I feel great, no feeling like I'm going to pass out and no more racing thoughts in my head."

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  • minds...
  • April 1, 2008

Keppra (levetiracetam) "I have been taking Keppra for 4 1/2 years, after head trauma from an auto accident caused me to have a seizure while in hospital. I have experienced some minor occurances of side effects, but nothing compared to the problem I experienced while taking Dilantin, which caused me to lose my ability to reason, and to express myself, i.e. Dilantin made me an apparent idiot. My greatest annoyance with Keppra is the rise in cost- 46% over these past 4 1/2 years."

9 / 10
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  • New...
  • April 27, 2009

Keppra (levetiracetam) "Had my first seizure this year, put on Keppra a month later. Stopped the seizures, but makes me sleepy all the time. I have mood swings, depression, irritable and get frustrated easily. Tried to talk to my neurologist, but was told the only side effect Keppra has is being tired. Too scared to ask if I could try anything else because this is supposed to be the safest drug available."

4 / 10
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  • Guy
  • Taken for 1 to 6 months
  • March 4, 2021

Keppra (levetiracetam) "I have had 1 seizure at the end of October 2020. Doctors put me on medication right away. I only took it because they said it was the fastest way to get my license back. My neurologist when I finally talked to him didn't want me on medication first. Had multiple tests done everything normal. Neurologist came back and asked if I was still taking the Medication. I stopped taking it because my wife first noticed I was a lot more irritable, then the longer I took Keppra, iIhad no fuse and would just snap at people. I haven't gone on any other Medication since all my tests results were normal. Now I have the neurologist saying I have to be on medication for at least 6 months, which I don't understand for my first seizure and clear test results. Haven't had any other seizures since and have felt back to normal since going off the medication."

1 / 10
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15 Report

Reviews may be edited to correct grammar/spelling or to remove inappropriate language and content. Reviews that appear to be created by parties with a vested interest are not published. This information is not intended to endorse any particular medication. While these reviews may be helpful, they are not a substitute for the expertise, knowledge, and judgement of healthcare professionals.