User Reviews for Levetiracetam
Also known as: Elepsia XR, Keppra, Keppra XR, Spritam
The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.
Learn more about Levetiracetam.
Reviews for Levetiracetam to treat Seizures
Keppra (levetiracetam): "I had surgery for a benign brain tumor over 8 yrs. ago; Gamma Knife radiation surgery 3 yrs. ago. The Gamma Knife surgery left me with scar tissue that caused me to have my first partial seizure. This required me to remain on seizure medication, levetiracetam. To prevent recurrent seizures, I was on a dose of 1,000 mg./ 2x's day. I was on this dosage for over 2 yrs. No seizures, but side effects crept up slowly: bad memory loss, difficulty finding words, fatigue, weight gain. Then, the intolerable ones: deep depression, mood swings, crazy flip-out anger. It just kept getting worse, until I couldn't wait to get off of it! My doctor called it the "Keppra Rage". I guess this is well- known side effect that I could not tolerate."
Renatajbn November 20, 2013
|87 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Keppra (levetiracetam): "My son had his first seizure at 18 yrs old. He has a brain injury from birth and very mild cerebral palsy affecting his right side. Went to ER and was referred to neurologist. Did a CT scan, blood work, EEG all normal except the injury to brain which showed no changes in size or concern. Was told not to drive for three months CA law. Was put on Keppra 500mg morning and night total 1000mg. Has not had a seizure and we will be following up with the neurologist in 2 days to have his driving privileges reinstated with DMV. Very hard for him not being able to drive and having someone else do it. Regarding side affects none. Has taken medicine every day. Neurologist did say we will re evaluate stopping the medicne in 2ys."
Jonathan's mom (taken for 1 to 6 months) November 9, 2013
|37 users found this comment helpful. Did you? Yes No||Report as inappropriate|
"Currently taking this medication also. Have told my doctor about side effects. Told me that "I must be taking it at the wrong". I had to show him issues from manufacture and from pharmacy. Changed dosages from twice a day to only once, but I have to eat a lot to get rid of the dizziness each morning. Feel that my issues were caused by drop in glucose levels, but doctor has stated that would not cause this also...."
Friday 13th (taken for 2 to 5 years) November 5, 2013
|3 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Keppra (levetiracetam): "I was given one dose of keppra as a precaution because I had a "spell" that I'm not sure was a seizure or just a bad anxiety attack. It made be feel dreadful: dizzy, depressed, weepy, spaced out. It's been nearly 36 hours since I took it and I'm still feeling not quite right. Horrible stuff. I had an EEG and it was normal. I wish the doctor had waited with the med until the results of the EEG, CatScan and MRI."
Newport620 (taken for less than 1 month) November 1, 2013
|38 users found this comment helpful. Did you? Yes No||Report as inappropriate|
"I had two seizures prior to removal of a benign right frontal lobe brain tumor. I was initially placed on Keppra 1000 mg 2x/day. After a year, I went down to 750 mg and the following year 500 mg. My neurologist will keep me at 500 mg until I am 4 1/2 years from my surgery when he will take me to 250 mg for the final 6 months. At that point, he says I am just as likely to have a seizure as someone who has never had a seizure. I have no side effects from Keppra, but am looking forward to my 5 year mark when I will no longer have to take medication."
5455T (taken for 2 to 5 years) October 19, 2013
|3 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Keppra (levetiracetam): "Started taking Keppa (750mg twice daily) alongside Lamictal (250mg twice daily) as the latter medicine was not 100% efficient to control partial seizures. Although the Keppra seems to have stopped the seizures completely, there are many side effects to be aware of. Drowsiness, tiredness and irritability/moodiness are extremely common, so that is often a downer, especially when you're trying to enjoy yourself. Depression is difficult to identify as dwelling on the side effects on the leaflet only makes you feel worse! Overall, an effective medicine for treating epilepsy but I had many bad side effects."
JJHarvey (taken for 1 to 6 months) July 20, 2013
|68 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Keppra (levetiracetam): "46 yr old male. Over 3 month period experienced 3 auras and finally the first seizure in January '13. Prescribed Keppra by neurologist. 500mg x2 daily. Not a hint of seizure activity since being placed on this medicine. However, I do experience some tiredness (mild). Otherwise leading a very normal life style."
NDfan (taken for 1 to 6 months) April 30, 2013
|85 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Keppra (levetiracetam): "I'm French and am 28 years old. I had my first seizure in 2009. My neurologist gave me Lamotrigine for 2 years, from 100mg daily at the beginning to 400mg at the end. The frequency of seizures has been reduced but I still had some. I arrived in USA in 2011 and my new neurologist prescribed me Keppra because I wanted to have a new medication, more efficient. I take 500mg twice daily. I don't have any seizure since I started this medication, so more than one year now. I'm very satisfied so far, but of course I have side effects and it's sometimes very difficult to deal with. I'm very tired all day long, I need to sleep at least 8 hours every night. I'm like bipolar, sometimes euphoric, sometimes very depressed. I'm a different person now."
Ponyo March 20, 2013
|91 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Keppra (levetiracetam): "I am so glad I found this forum! My husband was on Dilantin and it was working well but a few years ago his Dr switched him to Keppra because it was newer. He started having severe depression and mood swings to a point where they diagnosed him with Bipolar. The depression has been getting worse and worse to a point where we almost hospitalized him because I was afraid he may hurt himself. Today I spoke with his mental health provider and asked about trying Depakote and decided to come home and research if he could take both. After reading the reviews I am 100% convinced that it is the Keppra causing his depression and I am taking him to the Dr Monday to have him put back on Dilantin!"
falisamarie (taken for 2 to 5 years) February 22, 2013
|81 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Keppra (levetiracetam): "I have a brain tumor. I've been on 1500mg/day since Feb 2011. I had a gran-mal seizure in the middle of the night. First seizure, first indication of the brain tumor. Haven't had a seizure since. Radiation took care of the tumor. Have not experienced any of the side-effects that most other people comment on other than occasional constipation. My dreams seem to be more vivid and realistic than before. I'm 50 in two months."
mrb62 (taken for 1 to 2 years) September 3, 2012
|67 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Keppra (levetiracetam): "After a motor vehicle accident in 2008 I started having seizures. (grand mal) I just started on Keppra 3 1/2 months ago. 1000mg in the morning and again evening. I also take Gabapentin. 300mg 3 times a day. I haven't had a seizure since. (yay!) Not only that, but I feel 'alert' and I don't feel tired. The Gabapentin can make me feel a little sleepy, but after taking it in the afternoon I immediately take a walk outside or take a 20 minute power nap and then I feel great. I haven't had the side effects of mood swings or feeling tired or depressed. I didn't even realize before I started taking Keppra how "out of it" I felt at times. I'd gotten so used to feeling tired and 'unclear' in my head. Now that I'm on Keppra, I feel 'alive' again!"
LifeIsGood_44 February 23, 2012
|76 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Keppra (levetiracetam): "In April 2010 I was went into Grand mal seizures which was found to be due to brain cancer. After surgery and sent home I was put on Keppra. As of Feb 2012 I have not had a seizure since but I have found this medicine makes me very tired and I itch all over all the time. I was taking 500mg in the morning and 500 in the evening. Then we changed it to 1000mg in the evening and none in the morning. I find it very hard to get motivated in the mornings. I want to stay in bed and sleep. I take antidepressants but I'm not depressed or crying. I had been and they felt under the circumstances I need to stay on the antidpressant. We tried changing it and I still stayed very tired and that is why I am sure its the Keppra making me so tired. Otherwise Kuddos."
Angeliz February 16, 2012
|30 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Keppra (levetiracetam): "I've been taking this medicine since December 2009, and I haven't had a seizure while taking it. I've doubled my dose according to my doctor's instructions since then and am now taking 3000 mg/day, the max adult dose. I've noticed an increase in anxiety and severe anxiety symptoms since beginning Keppra, but other than that it's been a great medicine."
Anonymous November 16, 2011
|32 users found this comment helpful. Did you? Yes No||Report as inappropriate|
"Our 11 year old takes this medicine for unknown seizures that occur several years apart. She seems to be very tired and irritable. She's moody to the point of insulting and disrespectful for no apparent reason. These things did not occur until she started taking the Keppra."
Anonymous October 10, 2011
|1 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Keppra (levetiracetam): "Have been on Keppra for about 8 months now. Only one seizure, but the side effects are getting to me. Depressed, irritable, weight gain. Neurologist has added a antidepressant to see if that helps. Just wish the medication was cheaper."
jl2470 September 24, 2011
|20 users found this comment helpful. Did you? Yes No||Report as inappropriate|
"I had my first grand mal at age 35. I started taking 500mg of Keppra 1x a day and eventually worked down to 250mg 1x a day without any seizures. My doctor and I decided to take me off the medicine as there has been no epilepsy detected in all the testing I have done. After being off the medicine for 30 days I had another grand mal. So, I started taking the minimal dosage of 1/2 of a 250mg pill once a day. It has been over a year now and I have not had another seizure. I do experience dizziness at the beginning of my day before I take my pill. After a few hours I feel fine. I also sometimes experience drowsiness, tiredness, agitation, anger, anxiety, depression, irritability and occasional panic attacks. I'd rather have these than seizures!"
Anonymous August 26, 2011
|6 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Keppra (levetiracetam): "I'd been having partial seizures every 2 wks lasting a few days for about 3yrs before having a tonic-clonic seizure and finally agreeing to go on medication. I started on Keppra and the seizures came once a month for about a week, similar to a girl's period, and I became very depressed, suicidal, and uninterested in anything. About 2yrs later I had another tonic-clonic seizure. Shortly after that I switched to Lamictal and am no longer suicidal but am still depressed and uninterested in anything and the seizures now come more frequently and randomly. "
Anonymous August 15, 2011
|19 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Keppra XR (levetiracetam): "My neurologist prescribed Keppra initially 500 MG in the morning and 500 MG in the eveninig. I was so groggy it was unbelievable. All I wanted to do was sleep. We switched to the XR Keppra 500 MG twice per day at bedtime and it has been much better. Still suffer from some side effects (skin rash, stiff neck) but feeling much better. 8 weeks into it and all appears well! Good luck to all, I hope this helps."
Anonymous July 26, 2011
|15 users found this comment helpful. Did you? Yes No||Report as inappropriate|
Learn more about Seizures
Micromedex® Care Notes:
- Epilepsy In Children
- Febrile Seizure In Children
- Non-epileptic Seizures
- Status Epilepticus
Drugs.com Health Center:
Mayo Clinic Reference:
More about levetiracetam
- Levetiracetam extended-release tablets
- Levetiracetam solution
- Levetiracetam tablets
- Levetiracetam (Advanced Reading)
- Levetiracetam Intravenous (Advanced Reading)