User Reviews for Levetiracetam

Also known as: Keppra, Keppra XR

The following information is NOT intended to endorse drugs or recommend therapy. While these reviews might be helpful, they are not a substitute for the expertise, skill, knowledge and judgement of healthcare practitioners in patient care.

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24%(24)
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23%(23)
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8%(8)
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15%(15)
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8%(8)
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Levetiracetam review summary

7.2/10 Average Rating

102 Ratings with 82 User Reviews

Compare all 66 medications used in the treatment of Seizures.

Reviews for Levetiracetam to treat Seizures

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Review by offtheshelf: User Rating:  
   
10

Keppra (levetiracetam): After thirty plus years unable to control nocturnal seizures with Dilantin, Tegretol and now, Tegretol XR I now take 500MG of Keppra twice daily plus the XR and am controlled night and day with no noticeable side effects. This has lasted for the last six years. I am very pleased and glad to get rid of those nocturnal seizures with their after effects. The difficult part is the cost of the non-generic, especially as I get older.

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January 19, 2011 4:50 PM
Review by 0726: User Rating:  
   
7.0

Keppra (levetiracetam): Started having grand mal seizures about 4 or 5 years ago. I've been on Keppra for awhile now the 1st two drugs made me way too tired. I get headaches everyday and sometimes "flip out" (get really mean and mad) easily. I never thought it could be from the Keppra but now I wonder if it is. I have been seizure free though which is worth it to me!

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September 20, 2010 2:10 PM
Review by Ehh443: User Rating:  
   
9.0

Keppra (levetiracetam): I have been taking 1500mg a day of Keppra for 7 years. I have had two perfectly healthy babies. I did not breast feed. I didn't want to take the chance. I was just happy they were born normal and healthy. At first it made me very, very tired but after a couple months, that subsided. I did start to gain weight after taking it but I thought that was from the pregnancies or a thyroid issue. I had no idea so many people gained weight with it and had irritability problems. Those are some things I have lived with for the last 7 years that could be a result of this. It does however, control my seizures. I have grand mal seizures and had a few over the years because I could not afford to buy the Keppra.

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September 1, 2010 5:37 AM
Review by confused mom: User Rating:  
   
1.0

Keppra (levetiracetam): My son, 11 has had absence seizures for a year now. Have been trying to treat it and have been through 7 different medicines. Added Keppra 500 mg to his 300 mg of Zonegran. The NEXT DAY after first dose of Keppra he had not noticeable seizures, but 2 weeks later he had his first and only grand mal. We took him off Keppra; the absence seizures are back, but no grand mals.

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August 31, 2010 2:42 PM
Review by watch yourself: User Rating:  
   
8.0

Keppra (levetiracetam): I did not get seizures daily, weekly, monthly or yearly not that I'm aware of anyway. I had my first major seizure at 37 years old at a wedding, next one was at 42 years old and recently May 10 (46 years old) on my way to work at our ferry. I've been on Tegretol, Dilantin and now Keppra...now I see the difference. The Keppra is working great where before I may have been having light seizures and did not know it. My eyes were blinking too fast. I thought that was tired eyes, my right hand would become numb while sleeping and I thought it was just from sleeping the wrong way.

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May 28, 2010 11:03 AM
Review by GMAOR: User Rating:  
   
8.0

Keppra (levetiracetam): I suffered a traumatic brain injury from being assaulted. Was on Dilantin for a few months. Due to no seizures they withdrew the Dilantin but a couple of months later I suffered my first grand mal seizure. I was put on Epilim (Sodium Valproate) but continued to have grand mal's. I had 3 in a week while at the highest level of Epilim and woke in hospital to find out they gave me Dilantin through a drip. They gradually reduced the Epilim whilst introducing Keppra. I was toxic for about 6 weeks but believe it was because the Dilantin level had increased. I have been seizure free for about 6 months now whilst the Dilantin is below the therapeutic range so I hope it's the Keppra. My neurologist wants to have me on Keppra only.

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May 26, 2010 9:12 PM
Review by marks10: User Rating:  
   
9.0

Keppra (levetiracetam): Keppra worked very effectively on controlling my seizure disorder for the most part. I still had seizures every once in and while during the period of time that I was on Keppra. I wish that more insurance companies would cover the cost of Keppra to any person who has seizures.

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March 28, 2010 9:42 PM
Review by AT3: User Rating:  
   
10

levetiracetam: I had a very positive experience on this drug. Much less side effects than other drugs I have been on in the past (no side effects really), and it completely controlled my seizures.

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February 26, 2010 10:53 PM
Review by icannotusethisnickname: User Rating:  
   
5.0

Keppra (levetiracetam): I've been on Keppra for around 4 months now. The only thing I like about it is that I don't feel like a zombie like I did while taking Tegretol. Apart from that it does not really control my seizures and makes me dizzy and forgetful.

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January 29, 2010 1:12 PM
Review by Justin's mommy: User Rating:  
   
3.0

levetiracetam: My 4 yr old son started having seizures a few months ago. All the tests have been run and still they cannot find out what is causing them. They diagnosed him with epilepsy and started him on liquid Levetiracetam (Keppra). Side effects were hyper-ness, not-focused, anger, rage, frustration, hard to fall asleep at night, out of control. His UCLA Pediatric Neurologist prescribed him Lamotrigine (Lamictal) starting with a really low dose and increasing every week. So far with decreasing the Keppra I can see a difference, and so can his teachers at pre-school. This month January 2010 he has only had 2 grand-mals and a bunch of petit-mals. So far no side effects from the Lamotrigine. It's a day by day process.

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January 28, 2010 6:22 PM
Review by Anonymous: User Rating:  
   
4.0

Keppra (levetiracetam): Keppra alone did not do anything for me except make me depressed and have "Keppra rage". I was up to 1500mg 2x a day and would still have a grand mal about every 4 months and absence seizures in between. My neuro switched me to Topamax, Depakote and everything else but would break out in rashes or have horrible diarrhea and every other side effect. Back to Keppra I am 2000mg 2x a day (400mg a day total) now, weighing 175 (hell of a dose) and got put on Lamictal as well up to 100mg 2x a day of that. 1 month since addition of Lamictal and higher dose of Keppra and no seizure yet. We shall see.

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December 4, 2009 3:29 PM
Review by kdoster: User Rating:  
   
6.0

Keppra XR (levetiracetam): Increased anxiety and insomnia, did not control my SPS.

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November 6, 2009 2:36 PM
Review by Lizardoli: User Rating:  
   
9.0

Keppra XR (levetiracetam): I have tried 3 other types of seizure medications, but they all seemed to have many more negative side effects. Keppra XR has been a good medicine for me at this time and any noticeable side effects went away within a short time.

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November 2, 2009 2:23 AM
Review by robtho: User Rating:  
   
9.0

Keppra (levetiracetam): My 19 year old daughter started having gran mal seizures 3 years ago and was started on Keppra. She was started at 500mg/day and is now at 1000mg/day. Since starting, her seizures have been kept about 95% at bay. She still has an occasional mild seizure (2 in the past year), and they haven't been nearly as intense or as long as before starting Keppra. I'm very pleased and I know she is relieved. The only side effect I've noticed is some constipation. I haven't seen any negative changes in her demeanor.

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September 2, 2009 9:34 PM
Review by shelbylaina: User Rating:  
   
10

Keppra (levetiracetam): I am an 18-year old who has been having seizures for the last three years or so. Keppra helps me a lot. I just wanted to say, for those women who have mood swings and anger issues due to this medicine, talk to your doctor about going on prenatal vitamins, such as Vinate a-z. I became the meanest person I had ever met, but after I was put on Vinate, I went back to normal the day I started taking it.

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August 23, 2009 11:33 PM
Review by Anonymous: User Rating:  
   
7.0

Keppra (levetiracetam): I am currently on Lamictal and Keppra. I've been through lots of changes in medicine since pregnacy and had brain surgery on the injured part of the the brain due to being in a coma as a child. I'm still having seizures, not as often but when they hit they hit in numbers not just one! I want more options and no more surgery! And I and my family want the mood swings, anger, agitation, and racing thought to be gone!

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August 19, 2009 10:54 PM
Review by Anonymous: User Rating:  
   
9.0

Keppra (levetiracetam): This has been my life saver. I've been on this for 7 years or more. I take 4500mg a day along with 600mg Lamictal a day. With each increase I have better control but this knocked me out when increased in larger increments. People say I look tired but I'm so used to it I don't notice. Unfortunately I can't think straight. My reading, comprehension, learning is shot. I've been trying college for years, each increase brings better control. I wish I could stop the medication for a few days to see if there is another world out there but my brain gives me an unfortunate reminder if I'm late.

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August 19, 2009 6:18 AM
Review by Sandpoet: User Rating:  
   
5.0

Keppra (levetiracetam): I was placed on Keppra in January 2009 by an emergency room physician after a reported seizure, which had no professional diagnosis. A neurologist whom I saw post emergency kept me on the medication as I reported no side effects. I had what I now believe to be a fainting spell related to an atrial fibrillation condition of my heart and a strenuous run, without a "cool-down". I am pushing to get off this drug, as I experience dizziness, light-headedness, sleepiness and somnolence, fatigue and exhaustion most of the time. I am a 2008 Herat Valve transplant recipient and on diuretics and blood thinners, both required to avoid congestive heart failure and embolisms(artificial valve).

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August 9, 2009 10:11 PM
Review by Anonymous: User Rating:  
   
8.0

Keppra (levetiracetam): I have been taking 2000 mg of Keppra a day for about 8 years now. I think that it is working good. I even took it when I was pregnant and thank goodness my baby came out fine. Think that there needs to be other information for woman who may want to have a child but are afraid to have a child due to seizures.

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August 4, 2009 10:54 PM
Review by Bosha: User Rating:  
   
9.0

Keppra XR (levetiracetam): I took the regular Keppra and it made me feel groggy and tired. Since taking the Keppra XR I feel more normal and balanced.

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July 31, 2009 1:35 PM
Review by Dulse: User Rating:  
   
8.0

levetiracetam: I was diagnosed with seizures due to a car accident in 1996. I was 16 yrs old. I am now 29 yrs old. I have been on many medications for my seizures and I've noticed that levetiracetam works best for me. I was on Dilantin for a few years but the seizures just got worse.

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July 28, 2009 12:22 AM
Review by Anonymous: User Rating:  
   
5.0

levetiracetam: My 22 month old daughter has been on it for 1 1/2 weeks. Is done to two seizures a day but she is clingy and irritable. Her P.T came and she screamed the whole time she was here, usually she works well with her.

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July 9, 2009 12:06 AM
Review by SharKe36804: User Rating:  
   
1.0

Keppra (levetiracetam): I have tonic-clonic seizures due to a malignant tumor in my frontal lobe. I was prescribed phenytoin, which controlled the seizures but my doctors could not get my blood levels stable so I was constantly oscillating from sub-therapeutic to toxic. After 6 months of trial and error with no success, I was switched to Keppra. Keppra failed to control the seizures and I became hyperactive, easily agitated, and began having suicidal thoughts. My doctor made me switch back to phenytoin. The FDA recently required the manufacturer of Keppra to change the warning label to include these as known adverse reactions in some patients.

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June 28, 2009 4:07 PM
Review by Anonymous: User Rating:  
   
10

Keppra XR (levetiracetam): My fiance has been using Keppra XR since January of 09. So far he has not had any seizures. But has experienced all the side effects of the medication. But it does work. I would recommend Keppra XR.

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June 16, 2009 11:29 PM
Review by Anonymous: User Rating:  
   
7.0

Keppra (levetiracetam): It makes me dizzy.

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June 11, 2009 6:28 PM
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