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Tetralogy of Fallot in Children
WHAT YOU NEED TO KNOW:Tetralogy of Fallot (TOF) is a heart condition your child was born with. TOF causes the following 4 heart structure defects that lead to a weak heart and decreased blood flow:
- A narrowed blood vessel that connects the heart to the lungs
- A hole in the wall that separates the heart
- Aorta (major artery) growth from both sides of the heart instead of from one side as normal
- Blood flow that backs up and causes the right side of the heart to enlarge and thicken
WHILE YOU ARE HERE:
is a legal document that explains the tests, treatments, or procedures that your child may need. Informed consent means you understand what will be done and can make decisions about what you want. You give your permission when you sign the consent form. You can have someone sign this form for you if you are not able to sign it. You have the right to understand your child's medical care in words you know. Before you sign the consent form, understand the risks and benefits of what will be done to your child. Make sure all of your questions are answered.
Stay with your child for comfort and support as often as possible while he is in the hospital. Ask another family member or someone close to the family to stay with your child when you cannot be there. Bring items from home that will comfort your child, such as a favorite blanket or toy.
- Antibiotics help prevent or treat a bacterial infection.
- Diuretics help your child's body get rid of extra fluid, which can help your child breathe easier. He may urinate more often with this medicine.
- Heart medicine helps your child's heart beat stronger or more regularly.
- An iron supplement may be given to prevent or treat anemia (low red blood cell count).
- Blood tests may show how much oxygen is flowing through your child's blood.
- An EKG test records your child's heart rhythm and how fast his heart beats. It is used to check for heart enlargement and other problems with blood flow.
- A chest x-ray: may show the shape of your child's heart and any enlargement from his condition.
- An echocardiogram is a type of ultrasound. Sound waves are used to show the structure and function of your child's heart.
- A Doppler test checks the blood flow in your child's heart. A small metal disc with gel is placed on your child's chest. Abnormal sounds may be heard when TOF is present.
- A cardiac catheterization may show the blood vessels in your child's heart and how well the heart is working. A catheter is threaded into your child's heart through a blood vessel in his arm, leg, or neck. Contrast dye is injected into an artery and x-rays of your child's blood flow are taken. Tell a healthcare provider if your child has ever had an allergic reaction to contrast dye.
- Extra oxygen may be needed if your child's blood oxygen level is lower than it should be. Oxygen will help your child breathe easier. Your child may get oxygen through small tubes placed in his nostrils, or through a mask.
- Surgery may be needed between ages 3 to 6 months to correct the 4 heart defects. This will improve blood flow from your child's heart and lungs to his body.
Your child's signs and symptoms may limit his ability to function in his daily life. Without treatment, your child has an increased risk for endocarditis (swelling of the lining of the heart). Your child may also develop an abscess or blood clot. His signs and symptoms may get worse. His heart may weaken and stop working completely. This can be life-threatening.
CARE AGREEMENT:You have the right to help plan your child's care. Learn about your child's health condition and how it may be treated. Discuss treatment options with your child's healthcare providers to decide what care you want for your child.
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The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.
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