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Craniosynostosis

WHAT YOU NEED TO KNOW:

Craniosynostosis is a condition that causes one or more skull bones to close (fuse) too early. Tissues that connect skull bones are called sutures. Sutures usually close after a few years, when a baby's brain is finished growing. When only 1 suture closes too soon, the brain continues to grow to a normal size. When several areas close too soon, the brain cannot grow to its full size or completely develop. Your baby's sutures may have closed before or after he or she was born.

DISCHARGE INSTRUCTIONS:

Call your baby's doctor if:

  • You have questions or concerns about your baby's condition or care.

Care for your child:

  • Help your child develop healthy self-esteem as he or she gets older. Your child may feel self-conscious or have body image problems if he or she looks different from other children. Try not to minimize your child's feelings. Listen when your child wants to talk about how he or she looks. Also talk with your child about his or her strengths and interests. For example, your child may be a talented artist or writer, or have a great sense of humor. He or she may enjoy working with computers or be good at math. By helping your child focus on strengths and interests, you can help make appearance less important.
  • Ask about early intervention programs, if needed. Early intervention includes therapy, exercises, and activities that will help with development during the first 3 years. Your child may be taught physical, speech, or social skills. He or she may work with more than one provider to learn new skills. Providers can work with you and everyone who takes care of your child. This will help make sure everyone knows how to support your child.
  • Join a support group. It may help to talk with other parents who have a child with craniosynostosis.

Follow up with your baby's healthcare providers as directed:

Your baby may need ongoing tests to check his or her brain and skull development. Your baby's head size will be measured at each visit. Fast growth may be a sign of extra fluid in the brain that must be treated. Write down your questions so you remember to ask them during your visits.

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The above information is an educational aid only. It is not intended as medical advice for individual conditions or treatments. Talk to your doctor, nurse or pharmacist before following any medical regimen to see if it is safe and effective for you.

Further information

Always consult your healthcare provider to ensure the information displayed on this page applies to your personal circumstances.