Join the 'Neurofibromatosis' group to help and get support from people like you.
Related terms: NF, Neurofibromatosis-1, Neurofibromatosis 2, NF1, Von Recklinghausen neurofibromatosis, NF2, Bilateral acoustic neurofibromatosis, Central bilateral acoustic NF
We found 8 questions associated with the 'Neurofibromatosis' topic.
Posted 14 Jun 2016 by Cmbrown63 • 0 answers
A tumor removed from my kidney which was cancer sovi had radiation on the kidney in 2017 I found another tumor near that area the doctor I seen inform me that it's cancer without doing a biopsy he said that when you have radiation on a tumor and if the tumor grows back around that same area ...
Posted 5 Feb 2016 by James253 • 1 answer
I am not going in for any procedures. I'm just taking the medication and I can't remember if my doctor told me if I can have food with it or not. If not how long do I have to wait between taking it and eating? Please don't give me any answers about colonoscopy procedures, I am not ...
Posted 27 Jan 2014 by davidb101 • 1 answer
Make me ill?
Posted 23 Aug 2014 by Boopy • 1 answer
... disturbing nightmares in an 88 year old lady with congestive heart failure? she's been taking this at night 17grams before bedtime for about 4 months.
Posted 28 May 2013 by mali1109 • 1 answer
I have NF1 and a lot of neurofibromas at my back and they are itching so badly and embarrassing so and I avoid public space due to this as I have to scrach myself to ease the itching.
Posted 19 Apr 2013 by lj dyer • 3 answers
When i was 26 I found out I have nf1 neurofibromatosis 1. I also have neuropathic pain. my insurance will only pay for 3 pills a day. the pain I have just keeps getting worse. If anyone can help thank you. the tummors i have some of them hurt bad. if anyone can help thank you.
Posted 27 Oct 2012 by Fli1895 • 1 answer
For a continuous infusion? After reconstitute with provided sterile water, can it be diluted further with normal saline? If yes, how long is it stable?
Posted 7 Aug 2010 by garciah • 1 answer
... am going more than 5 times to the bathroom. Thanks