Join the 'Neurofibromatosis' group to help and get support from people like you.
Related terms: NF, Neurofibromatosis-1, Neurofibromatosis 2, NF1, Von Recklinghausen neurofibromatosis, NF2, Bilateral acoustic neurofibromatosis, Central bilateral acoustic NF
We found 10 questions associated with the 'Neurofibromatosis' topic.
Posted 6 Jan 2018 by • 0 answers
Posted 13 Dec 2017 by • 0 answers
Posted 17 May 2017 by • 0 answers
... an infant. He just graduated from high school. His mother told him not to mention his NF, as did his recruiter. Besides lying to get into the military, if he went through basic training, and given the rigorous nature of this training, could he not be in danger of the NF rearing up?
Posted 27 Jan 2014 by • 1 answer
Make me ill?
Posted 14 Jun 2016 by • 0 answers
A tumor removed from my kidney which was cancer sovi had radiation on the kidney in 2017 I found another tumor near that area the doctor I seen inform me that it's cancer without doing a biopsy he said that when you have radiation on a tumor and if the tumor grows back around that same area ...
Posted 5 Feb 2016 by • 1 answer
I am not going in for any procedures. I'm just taking the medication and I can't remember if my doctor told me if I can have food with it or not. If not how long do I have to wait between taking it and eating? Please don't give me any answers about colonoscopy procedures, I am not ...
Posted 28 May 2013 by • 1 answer
I have NF1 and a lot of neurofibromas at my back and they are itching so badly and embarrassing so and I avoid public space due to this as I have to scrach myself to ease the itching.
Posted 19 Apr 2013 by • 3 answers
When i was 26 I found out I have nf1 neurofibromatosis 1. I also have neuropathic pain. my insurance will only pay for 3 pills a day. the pain I have just keeps getting worse. If anyone can help thank you. the tummors i have some of them hurt bad. if anyone can help thank you.
Posted 27 Oct 2012 by • 1 answer
For a continuous infusion? After reconstitute with provided sterile water, can it be diluted further with normal saline? If yes, how long is it stable?
Posted 7 Aug 2010 by • 1 answer
... am going more than 5 times to the bathroom. Thanks