Skip to Content

Join the 'Behcet's Disease' group to help and get support from people like you.

Behcet's Disease Questions

Related terms: Behcets, Behcet's Syndrome

We found 15 questions associated with the 'Behcet's Disease' topic.

Behcet's Disease flair up without the ulcers?

Posted 30 May 2017 by Toryhess 0 answers

I was just diagnosed with behcets a few weeks ago, and just started working again for the first time in a few months, and I believe had my first flair up. It felt like my appendix was going. I couldn't keep anything down, not even water, had nausea and vomiting, horrible abdominal pain. Is ...

Is Humira a "lesser drug" than Remicade?

Posted 24 Aug 2013 by sasha223 2 answers

I have been on Remicade for just over a year to treat an undiagnosed disease related to my colon, Probably Crohns Disease vs. Behcet's Disease. In any event, I've had 2 colon resections in the past year. With the start of Remicade and totally changing my diet to a Paleo/ Primal lifestyle, ...

Behcet's Diseaset's- I need advice and support?

Posted 10 Aug 2016 by justkelseythefairy 1 answer

I was diagnosed a month ago through a biopsy of an ulcer inside my mouth. I really need support and information. Can any of you share advice especially on treatment options? I have been on prednisone already and it made me cranky and not sleep. Now I have the option of starting Dapsone which I ...

Methotrexate - Is anyone else on this to treat Bechets disease?

Posted 8 Mar 2016 by Jomogs_123 0 answers

My daughter who is 20 has been suffering for 8 years was diagnosed last year with bechets disease.. After a long run of other medication this is the next step !!! Read up on it and doesnt sound good !!! She is in constant pain and ill 24/7 I really don't want this to add to it all . Is any one ...

What can I expect during the very first infusion of Remicade?

Posted 3 Jul 2012 by sasha223 1 answer

I am starting my first treatment of Remicade to day, treating colitis secondary to Behcet's Disease. What can I expect during and after this infusion? I've read the side effeccts, which are frightening, but can't really find any first person account of what to expect during the ...

Behcet's Disease - Hi I've had chronic joint pain in varying degrees for 15 yrs. about 6 years ago I

Posted 15 Jan 2014 by Trish626 1 answer

... developed tiny itchy painful "holes" in the skin surrounding my anus and perineum. Last January my GP connected the dots asked me about mouth sores "Yes I do" was my reply. She was thinking Behcets. Next a Rheumatologist agrees. My eyes have been spared. But the symptoms ...

Behcet's Disease - I have every symptom of behcets apart from brain stem dysfunction ,plus arthritis

Posted 15 Aug 2013 by lolly33 1 answer

... that is deforming my joints which isnt usual with behcets , i was wondering if anyone else has it so serverely?

Infliximab serum levels?

Posted 24 Nov 2012 by dante2010 1 answer

Dear Dr, greetings; I am clinical pharmacist, I need to ask about who to measure serum Infliximab in patient, what is the method (ELISA, PCR, ... ) what is the procedure. please give with detail bcz I need the methods to start research about the subject

Diagnosed with behcets syndrome, I am on 20 mg of pred per day?

Posted 17 Oct 2012 by gojenny-o 3 answers

My rheumatologist said I could drop to 15 and then taper 1 mg per week to get off pred and go in plaquinil. After dropping to 15, I developed sores in my nose, dirreah, nausea. Needless to say she bumped me back up to 20 today... On one hand I'm sad... tired of the moon face, sleepless nights, ...

Remicade/ Imuran- treatments for Behcet's?

Posted 13 Mar 2012 by LollieBoo 3 answers

I was diagnosed with Behcet's nearly 7 years ago and have spent most of that time treating flares as they arose, usually with Prednisone or whatever seemed to work for whatever part of my body was most affected. I have been through skin/ mucosal issues, bladder, CNS, joint, eye and other ...

Has anyone experienced weight gain with Humira or Etanercept?

Posted 28 Nov 2011 by tamirra 3 answers

Has anybody suffered with weight gain with either of these medications please. Thanks

Behcet's Disease - Anyone else out there have any problems with bladder control?

Posted 16 Nov 2011 by Allheart2011 2 answers

Just started using catheters and looking for someplace to get them regularly

Remicade - How long does it take before a patient should notice a change/improvement in symptoms?

Posted 28 May 2011 by gbread 2 answers

I've completed two of my "loading" doses, but am not really noticing a change in symptoms. I'm currently prescribed remicade for Behcet's disease.

Behcet's Disease - Remicade - Does this med cause hair color changes?

Posted 27 May 2011 by gbread 1 answer

I've received two infusions so far, as this is still considered the induction phase. I've noticed that my hair color has gotten a bit darker. Is this common?

Ask a Question

Further Information

Related Condition Support Groups

Connective Tissue Disorders

Related Drug Support Groups

colchicine, azathioprine, infliximab, adalimumab, etanercept