Aubagio User Reviews & Ratings (Page 3)

• Tango
• Taken for 1 to 6 months
• October 25, 2020

For Multiple Sclerosis "I was diagnosed with MS after an MRI and a lumbar puncture on 8/25/2020. My event was optic neuritis when I woke up one morning in July and could not see out of my left eye. I went to the opthamologist who then referred me to the imaging center and then to the neurologist. MRI showed only four MS lesions. Doctor put me on Aubagio. Seven milligrams for 30 days, the 14 milligrams thereafter. About the third week of the 7 milligram course I did some light yard work, as up until that time I had no symptoms of MS except for my eye, which continues. After I did the yard work I got really bad pain in my upper arms and shoulders, and my chest, like in my sternum. At first I thought it was sore muscles from the work, but then the pain continued and got worse not better. I didn't know initially whether the pain was a side effect or a symptom of MS. I forgot to take a pill one day and my pain almost completely stopped. Like magic."

• Ellie...
• October 6, 2016

For Multiple Sclerosis "Hate the way the pills are packaged. This has helped me a lot but not completely. Still have bladder issues and muscle spasms and some tingling and burning. I did have elevated liver enzymes for the first 6 months but they were tested yesterday and now back to normal. I've had this relapse now since February but really it's much better than it was."

• Sam
• October 23, 2019

For Multiple Sclerosis "I had the worst experience ever since I started taking Aubagio. 75% of its sides effect hit me , I got even an anxiety attack where I became like the walking dead . Heart beat was faster than usual, electricity in my both arms and many more. I felt great after I've flushed it out ."

• JCV
• June 18, 2019

For Multiple Sclerosis ".I was diagnosed with MS 2001 however I was told I have had MS since I was in my 20's. My first and only medication so far has been Copaxone. I was tested for the JC Virus and came back positive. My Neurologist said the only medication I am able to take is Abagio. I have read the reviews and the side effects seem horrible...I am still deciding whether or not to try Abagio. June 16 2019...."

• Belle...
• Taken for 1 to 2 years
• January 10, 2021

For Multiple Sclerosis "I got diagnosed with MS in 2018. Haven't got and new "spots". What I now have come to recognize as attacks , is pain and hurt I've dealt with for many years. So I guess I've had MS a long time before I got diagnosed with it. I'm on Aubagio and gotten lazy, tired, angry, sad, clumsy as anything! It's like everything about my personality have gotten heightened by a 100. I used to run half marathons, lift weights, walk and run in the mountains. That's not happening now. I thought it was because of the MS, but now, after reading these reviews, I'm starting to think the Aubagio is to blame...."

• Beck
• Taken for 2 to 5 years
• June 2, 2019

For Multiple Sclerosis "I experienced a great deal of hair loss. I also had a lot of GI issues. Also, Aubagio has the worst customer service I have ever experienced. Because I moved I had a new neurologist who had not been informed of a protocol for ordering a lab. The doctor stated an aubagio rep has never even been to their office and they were unaware of the protocol. Well, I am stuck with an over 500 dollar lab bill. Aubagio normally pays for this lab, but told me there was nothing they could do since the doctor did not know the protocol. Very poor customer service. I have stopped taking this med and will never take it again."

• Sof
• Taken for 2 to 5 years
• February 9, 2020

For Multiple Sclerosis "I have been diagnosed with MS on 2004 and I haven’t taken any medication till 2018 which I started on Tecfedera and it was horrible I had all the side effects and felt I wasn’t living a whole month. The doctor decided that I try gylenia that didn’t work for me since my heartbeat was too low to be on it. Then started on aubagio and was on it for two years at the beginning I had the hair thinning and loss, sometimes I have heavy legs and weakness , fatigue. My vision sometimes not clear specially if am stressed on that day. Recently doctor asked me to stop it since I started having bruises all over my body and from my blood work I have bleeding disorder caused by the med and alopecia . I am having my MRI tomorrow and will decide what to be on. As some one said we are just poisoning ourselves."

• Gigi
• Taken for 1 to 6 months
• June 26, 2019

For Multiple Sclerosis "Have had M.S. since 19yrs. Now 60yrs. Was on Tysbri for 7 years no relapses. Then tested positive for C. J. Virus. Have taken Abugio for 6 months lots of hair loss and upset stomach also burning in feet. Haven't had MRI yet hope working."

• PJH
• Taken for 1 to 2 years
• April 14, 2023

For Multiple Sclerosis "The medication was ok. I didn’t have a reaction to it. Working with the company’s MS One-to-One program was an ENORMOUS NIGHTMARE! Unbelievably inefficient process. I began speaking to them in early December to ensure I would get through the process more seamlessly this year than last year. Today is April 14 and the paperwork still isn’t finished. The nursing staff blames another department or my doctor… no accountability. Now I’m off my MS therapeutic for more than a week. I’ve had several drug companies to deal with during the 15 years I’ve had MS. This one is the worst! Unless you are ok with stopping and restarting treatment… or if your insurance pays for this medication, don’t start. MS one to One is a completely incompetent organization to deal with! I’ve spent many hours on this and made at least a dozen highly frustrating phone calls. Terrible! They really don’t seem to care or want to help."

• ann
• Taken for 6 months to 1 year
• March 9, 2021

For Multiple Sclerosis "The medicine made me weak, always sick to my stomach, it effected my eyes which the drug company said they had never heard of that. Headache, skin was itchy all the time, and losing hair was not my cup of tea either. Dr took me off. This drug is not for everyone."

• Lala
• Taken for 1 to 6 months
• June 18, 2019

For Multiple Sclerosis "I took aubagio for 6 months. My hair started to fall out and I was being billed for my blood work. I've stopped taking it for a little over a month now and I think my skin looks yellow. If you decide to take this you should do your homework and always get your bloodwork done"

• SMR
• Taken for 1 to 6 months
• September 28, 2021

For Multiple Sclerosis "Started on Aubagio 6 months ago and seem to be working for me but then the neuropathy in feet and hands felt like burning pins and my toes felt like they wanted to explode. I'm going to get off this as soon as my neurologist will respond to me. Was diagnosed in 2005 on copaxone till I couldn't take hot injection areas on my body anymore. Then Tecfidera caused burning pins in my head, so couldn't take the med. Was doing nothing to help my MS. Back on copaxone 3 times a week injection. Started getting seizure like shaking so I stopped that and now Aubagio neuropathy. You have to come to grips with these meds that are out there for us and there terrible side effects or just pray that your MS doesn't worsen. I hope now that I'm on SSDI and it works. Was very stressful for me I can be somewhat ok with NO meds. Good luck to all with MS and any drugs you decide on."

• So sad
• Taken for 1 to 6 months
• November 8, 2022

For Multiple Sclerosis "This medication was toxic poison to my system. Legs felt like red hot burning coals. I took for 3 and a half months. My skin peeled off and I have nerve damage now that I didn’t have before. Terrible drug. I do not recommend this drug."

• Queen
• Taken for 5 to 10 years
• December 22, 2022

For Multiple Sclerosis "I have been taking Aubagio 14 mg since 2016 when I was diagnosed. This year in 2022; I started having heart palpitations. The first time it happened was in April 2022. I thought I was having a heart attack because my heart kept racing; Very scary. I had been taking Aubagio for so long. I couldn't imagine this was happening. So, me and my doctor tried me taking a half a pill (7mg half) because I just didn't want to change. My heart started racing again. In short, I have never had any problems with Aubagio. I've taken this drug for 6 years without any problems. So now I have to work on selecting a new drug. It's so hard to decide on another medication. They all have terrible side effects. The new drugs are scary most have this PML (brain infection that you could develop). I have noticed some issues developing neuropathy in left hand and left leg. I can walk fine, but something feels weird."

• Mathi...
• Taken for 5 to 10 years
• July 10, 2023

For Multiple Sclerosis "Nausea Cramps in leg muscles Burning sensation in fingers and feet while sleeping Twitching of toes at any time of day Lower back pain if do too much housework Aubagio helped me being able to walk, looking after myself, being able to shower, cook meals, doing light housework. I am not able to drive anymore due to doctor's orders. I have not had a relapse since 2016 and no further lesions since then."

• JMano
• Taken for less than 1 month
• September 29, 2020

For Multiple Sclerosis "I loved that Aubagio was a small pill, but I experienced GI symptoms starting on the first day. We hoped they would go away, but three weeks later, I was still having stomach issues every day. They diminished when the medication was discontinued."

• FMS
• Taken for 1 to 2 years
• August 6, 2020

For Multiple Sclerosis "I was diagnosed 3/1/19. My neuro put me on Aubagio that May. I’ve had no symptoms until about 2 weeks ago. I started to experience relapse symptoms that got worse by the day. I had an MRI yesterday and neuro says that she doesn’t think the Aubagio is working. This is so annoying! I was sure it was working. I say that to say, you may feel great taking it but that doesn’t mean it’s working. Have to give it a 2."

• Jan
• Taken for 2 to 5 years
• January 6, 2022

For Multiple Sclerosis "Aubagio seems to be working after 2 years. Was on Avonex for 12 years with good results, but it stopped working. Then went on Tysabri and I was allergic to it after my second infusion. I like a pill and not injections, so Aubagio works for me. The only problem I am having is paying for this drug. They keep raising the price every year to the point my insurance took it off their formulary. Even Medicare will not approve the tier structure for discount. I may have to discontinue using it for this reason. I believe the drug manufacturer is greedy and does not care about the Multiple Sclerosis patients. They only care about their bottom line!"

• Steve
• Taken for 2 to 5 years
• June 26, 2022

For Multiple Sclerosis "2022 makes 34th year of MS. No meds available then for a few years I started on Betaseron first for a few years. Switched to Avonex for 19 years, then finally got tired of harpooning myself and changed to Plegridy for 2 years. Had to try Copaxone to satisfy insurance for a month or two. Only with Copaxone it felt like I had been hit with a ball bat after each shot. Then switched to Aubagio 4 years ago and other than hair thinning a little I have had NO problems Enjoy the single pill and NO NEEDLES Copaxone was the only med that ever gave me PROBLEMS"

• Tammy
• May 17, 2022

For Multiple Sclerosis "Drug attempt number 3. I started Aubagio in January 2022. This is now May 2022. Since January I have had an ear infection x2, chest infection, covid (after being free of it for the whole 2 years), Labyrinthitis and now Pelvic Inflammatory disorder. It could all be a coincidence, However my MS nurses seem to think that I may be one of the unlucky ones who have an increased risk to viral and bacterial infections due to this medication. No issues at all with my liver while being on this. Only other side effect is that my hair comes out in clumps almost and my nails snap constantly. Which is a bit of a bummer. Feel lately like my body is a punching bag and I am terribly done in and mentally exhausted while trying to remain positive. Looking at switching again and if it doesn't work, I think I may go med free for a while and work with vitamins and being strict with being as active as I can and eating healthy. Because I can't take much more."

• Tilly
• Taken for 2 to 5 years
• January 13, 2022

For Multiple Sclerosis "I was diagnosed with MS July of 2017. I started out with Tecfidera which caused my lymphocytes to go too low. My neuro switched me to Aubagio which I've been on for over 2 1/2 years. I did have hair thinning for the first 7 or 8 months but no other side effects and the thinning stopped. In fact, my hair has been growing in thicker and now has a bit of a wave to it. I don't know if it's the Aubagio or just coincidence but I've always had naturally straight baby fine hair. I have always taken my pill at night right before bed so maybe that helps with not having other side effects. I had 8 lesions on my brain back in 2017 and since I've been on a DMD I have had no new lesions. Is it the meds working or just my body fighting it? Who knows, but I'll keep taking Aubagio since it's not causing any problems and there is the chance that it is keeping me from progressing. Plus my insurance covers it and with co-pay assist I don't pay anything. Time will tell."

• Rose
• Taken for less than 1 month
• May 11, 2020

For Multiple Sclerosis "Starting Aubagio next month. I was diagnosed with MS in 1994, at the age of 41. That started me on Avonex, but it was too hard for me to give myself shot with 1” needle. They next switched me to Rebif, with a daily shot. On that till I moved, new Neurologist changed me to Copaxone. Was on that till “Obamacare “, copay went upto 5K, off MS drugs till they got generic, which copay went down to $300 month. On that till Thanksgiving 2019, then I broke out in hives. I had to go to ER, they gave me Benadryl. Meanwhile, my lesions still increasing. Will see how this drug works for me."

• Yvanne
• Taken for 1 to 6 months
• November 24, 2022

For Multiple Sclerosis "Easy to swallow, but causing back ache, coughing/choking & the odd urgent toilet trips. Bloods taken every month for the last 6 months & assume that my liver is fine as not told otherwise. Last relapse was December 2017 pre diagnosis. No relapse after taking Copaxone /Brabio from 2/2010 -7/2022, aubagio 7/22-"

• Darlene
• Taken for 2 to 5 years
• August 23, 2022

For Multiple Sclerosis "I was diagnosed with MS in 1975. I was given Copaxone in 2008 and was tired of injecting myself. Started taking Aubagio in 2019. In November 2020 I needed a bridge on my teeth that cost me $2400 and now I found out I have the worst tooth decay under my bridge my dentist has ever seen in that short of time. I am not taking this medication anymore!"

• Anonymous
• Taken for 10 years or more
• March 20, 2024

For Multiple Sclerosis "I started on Aubagio in 2013. It's been over 10 years. The only drug I have taken for this long. I did all 4 of the injections available at the time, and nothing worked. It took me years, but I'm better than I was before. I even work part-time since 2018. This drug has been great for me."