Sarcoidosis Questions

Sarcoidosis - pain in all my muscle groups, my ankles and the outer edges of both feet; sarcoid has?

Posted 31 Oct 2017 by Vrillay • 1 answer

... been "in remission" for years. Could this awful pain be a flare up? I also have neuropathy from type 2 diabetes.

Has anyone been on Lexapro and Prednisone at the same time? I had a high ANA titer and they?

Posted 16 Jan 2016 by blaaccypher • 4 answers

Started me on the Prednisone as a precaution pretty high dose. I have been on it before for two years but not with Lexapro. Please help!!!

After the results of two consecutive monthly blood tests, my dr. told me my immune system was low?

Posted 20 Oct 2017 by Annmarie49 • 0 answers

I have had active sarcoidosis started in 2003 - 2008 in which it then went into remission. I have had many other health issues and spinal issues starting shortly after in 2003 and still remain to this day. This year (as every year), I definitely want to get my flu shot , but I am afraid to because ...

Sarcoidosis pain relief that doesn't contain acetaminophen?

Posted 4 May 2017 by devonneadams • 0 answers

Had anyone with sarcoidosis tried Remicade ?

Posted 5 Nov 2016 by LiseLad • 0 answers

I have sarcoidosis of the lungs. An I was told mine would never go into remission. My breathing is?

Posted 21 Jan 2016 by ecjones • 1 answer

... becoming so difficult. I guess there's a surgery that does like radio shock waves to my lungs. it's done in four different sessions. has anyone else had this procedure?

Does prednisone cause lightheadedness?

Posted 18 Oct 2014 by GreenLizard • 1 answer

Been on low dose prednisone for 5 years for sarcoidosis in lungs. Doctors can't figure out what causes intermittent lightheadedness (not dizzy). I have passed every heart, brain, ENT, PFT, vascular study, and blood test. O2 is always ok on oximeter. I call it prednipoison cause of rapid ...

Looking for updated information on Sarcoidosis treatment?

Posted 26 Oct 2015 by Annmarie49 • 0 answers

I was previously diagnosed with Sarcoidosis in 2003 (subcutaneous raised plaque in my arm) and went into remission within 5 yrs after treatment with 3 different medications. I recently had an endoscopy done by my Gastro dr. and biopsies were done. He has given me the results of the biopsies as ...

Are there specific drugs that cause neuropathy?

Posted 1 Apr 2015 by Ej21244 • 2 answers

I have sarcoidosis and was prescribed remicade briefly. Since discontinuing this drug, I have acquired neuropathy. Is there a correlation between this drug, or any others, that may have contributed to my neuropathy?

I have been advised to take 60 mgs prednisone for sarcoidosis, possibly for life. Am very reluctant?

Posted 21 Feb 2015 by Larry Thomson • 1 answer

... to go down this track as apparently it will come back worse of I want to stop and the side effects look worse than the condition. Help

Mycobacterium avium-intracellulare - Treatment - We live in Tampa, fl and just diagnosed with?

Posted 1 Mar 2014 by Traci in Zephyrhills • 1 answer

... mycobacterium avium intracellulare. First we were told sarcoidosis , then lymphoma, then leprosy, then Mac , then back to leprosy, now back to Mac . Anyone that has this, can you tell me if u have skin plaques all over your body, or running very high fever. None of this makes sense nor does my ...

Sarcoidosis - Is the Methotrexate better than Prednisone, which one give better results?

Posted 9 Feb 2011 by smartel27 • 3 answers

I been on Prednisones for a little over 3 years and the side effects are not good so my Doctor wants to start me on the Methotrexate with the folic acid and fosomax now i have these Meds in my Possesion but Iam little leary about taking these Meds because of the side effects that the prednisones ...

Pulmonary Hypertension - Hi, I just joined this group and I'm so glad I found you guys, it helps?

Posted 2 Sep 2013 by Susan873 • 2 answers

... talking to people who are in the same situation as you are. I have had sarcoidosis for about 19 yrs and as a result I was diagnosed with secondary ph in 2010. I'm on revatio and was on atacand but now just started taking norvasac. I'm just glad I have someone to talk to now

Hi every1. My gf just got diagnosed with sarcoidosis after 2 different biopsies came back neg for?

Posted 17 Aug 2012 by lynikins • 3 answers

... cancer. She had stage 3 breast cancer in 2010 and they thought this was a recurrance. Thank goodness it wasn't. What type of doctor should we be looking for? Her onocologist is forwarding her records to her pcp but after that, we are lost. Thanks in advance for any help you can give us

Sarcoidosis - I am experiencing uncontrollable muscle/nerve tremors?

Posted 23 Mar 2012 by pastoramanda • 1 answer

have sarcoidosis and being treated with 2.5mg predisone and 200mg hydroxychlor. could this be just a side effect of the meds or could it be my sarcoid acting up and spreading?