Skip to Content

Join the 'Pyoderma Gangrenosum' group to help and get support from people like you.

Pyoderma Gangrenosum Questions

We found 9 questions associated with the 'Pyoderma Gangrenosum' topic.

Remicade - I have been offered this drug for pyoderma gangrenosum of the leg this is a large ulcer 5

Posted 27 Jan 2010 by dollnice 4 answers

... inches by 4 that i have had for 3 years but i am worried about using it as there is a risk of getting certain types of cancer from also says that you should not use it if you have open wounds. well mine is an open wound so why do they keep on trying to get me to use it

Pyoderma Gangrenosum - once I have a lesion, will I keep getting them?

Posted 16 May 2011 by pgnewbie 3 answers

I have a new diagnosis of PG. Lots of questions. Once you have a lesion will I keep getting them? My docs don't know much but think I also have Sarcoidosis. Another rare autoimmune. Anybody got advice?

Is anyone using Humira to treat Pyoderma Gangrenosum?

Posted 22 Jul 2011 by heavyweather 4 answers

I have had an ulcer on my leg for 18 months, and expect to begin treatment with Humira today. What experiences have people been having with this drug/diagnosis?

Neuralgia - Why is it that my doctors have been so demeaning and passed the buck about my pain?

Posted 27 Dec 2011 by heavyweather 6 answers

Two years ago I started developing an ulcer on my right leg. It has been diagnosed as pyoderma gangrenosum, a very rare disease that is believed to be related to Crohns - but in an external form. Extremely painful, each doctor passes the pain issue to the next and shows little concern for how I ...

Anyone hAve any success? iam at a loss. the pain is too much?

Posted 23 Aug 2015 by Mandy81 4 answers

I spent 3yrs mis diagnosed. I finally have a referral to a dermatologist. They now think pyoderma gangorysm (pg). The pain is the worst in the morning. It feels like its burning, from the inside out. I know this is a condition that is approx 1 I. 100,000/ so I pray I can find people to help talk ...

Is anyone aware of a "rebound effect" as the body's immune system catches up to the Remicade assault

Posted 12 Jul 2012 by heavyweather 1 answer

... on the body causing a need to increase the dosage? Have been on Remicade to treat Pyoderma Gangrenosum for almost a year (every eight weeks) and suddenly it seems like the medication isn't working and my wound has become wounds with a topping of Santyl debriding gel and a SoloSite ...

What can be done about the smell from pyoderma gangrenosum?

Posted 21 Oct 2014 by EBR910 2 answers

I change my bandages every other day but the smell is awful and never goes away and it's EXTREMELY embarrassing!!! What can I do to make it go away?

Pyoderma Gangrenosum - Does anyone know of any health supplements for PG and what the best treatment

Posted 22 Feb 2012 by no1knows 1 answer

... has been for PG around or in vaginal area?

My sister has pyoderma gangrenosum, she has had it for a year and a half and it has just been?

Posted 17 Oct 2014 by winntech76 1 answer

... diagnosed. I have been taking care of her and the first time I saw the wound, it had a purple ring around it, a couple days ago when I was changing the bandage, the purple ring was gone! Does this mean that the healing has began? I would really appreciate any feedback. Thanks for the time and ...

Ask a Question

Further Information

Related Condition Support Groups

Dermatological Disorders

Related Drug Support Groups