Skip to Content

Join the 'Porphyria' group to help and get support from people like you.

Porphyria Questions

Related terms: Acute Intermittent Porphyria

We found 3 questions associated with the 'Porphyria' topic.

Where can I get an a correct diagnosis of Porphyria?

Posted 24 Dec 2013 by Sharonscott 2 answers

My husband and I seem to have the symptoms of AIP. The doctor thinks so too. We found both of us are related very far back, to families with Porphyria. Problem we live in a rural area of Virginia. Most doctors know very little about this. No testing place around here does either. We are both on ...

Ask a Question

Further Information

Related Condition Support Groups

Metabolic Disorder Including Congenital

Related Drug Support Groups

Thorazine, chlorpromazine, Panhematin, hemin, Ormazine